Baby Born With Back-To-Front Knees Still Waiting For Treatment

01/07/2010 12:16 | Updated 22 May 2015

The family of a baby born with back-to-front knees have said they are disgusted that SIX months after his birth he is stil waiting for specialist treatment.

Gabriell Camilleri-Nugent was born with hyperextended knees and bronchomalacia, meaning his lungs and airways are too small for him to breathe on his own.

Doctors discovered his condition at 20 week scan. His were doubled back near his head in the womb, instead of being curled up in the foetal position.

When he was born by caesarean section last December his shocked family said he looked 'like he was doing the splits', as his knee caps are effectively back to front.

For the last six months Gabriell has worn plastic casts on his legs, but is still waiting for the specialist treatment he needs.

His grandmother Carol, 50, said "Gabriell is still in neo-natal just lying in his cot. He has never been outside and we can only pick him up on a good day"

'He has got lung problems and dislocated knees but we don't know if that's a particular syndrome because he has not been assessed since he was three weeks old.'

She added: 'Nobody wants to take control and the hospitals just kept moving the goalposts. We don't know when or where he can be treated because no one wants to take him.

'The nurses have been wonderful and are backing us but officials are stopping him being treated. It's disgusting how the NHS is treating our children.'

When Gabriell's mother Shahna Camilleri, 17, gave birth in Bedford Hospital last December, doctors quickly realised he needed to be transferred to a specialist unit. They sent him to the Royal Brompton Hospital in London, but at three weeks old and weighing just under 4lbs he was too weak for surgery.

He was then transferred to the Lister Hospital in Stevenage in order to gain weight. Sadly though, despite hitting his target weight of 7lbs within three months, he's still waiting for his treatment,

A spokesman for the Lister Hospital said Gabriell's needs are too specialist for them.

He said: 'We are helping support him with breathing and developmental requirements but we don't have the specialism or resources to do more.

'The actual treatment he needs has to be provided by a specialist centre like Great Ormond Street or Royal Brompton.'

Suggest a correction