Little Kai Clark had a heart attack when he was just two years old and was pronounced dead.
But doctors and paramedics refused to accept he'd gone and continued to work on his tiny heart until it started to beat again.
Kai's grateful family have now met with the team who saved his life to say thank you.
"We are just so grateful that he is still with us," said his mum, Kelly Clark, 32.
"He was pronounced dead for six minutes so it is a miracle that they could bring him back.
"We love him so much and I just don't know what I would have done if he died.
What the doctors and paramedics did was truly amazing I can't thank them enough if it was not for them my son would not be here.
The disorder causes the heart muscles to become unusually thick and triggered him to develop the condition Ventricular Fibrillation at his home in Clacton-on-Sea, Essex in October last year.
The disorder, which causes the heart to beat in a severely abnormal rhythm, is rare in adults and almost unheard of in children. The muscles in the lower chamber of the heart begin to randomly twitch which causes blood to stay in the heart when it should be pumped around the body.
The East Anglian Air Ambulance Service were then called and put Kai into an induced coma, before flying him to Addenbrooke's Hospital, Cambs. He was later transferred to Great Ormond Street Hospital, London.
The youngster was kept in hospital for five weeks and treated by specialist medical staff.
Dr Rich Lyon who treated Kai on his way to hospital told the Daily Mail: "It is very rare for such a young child to have a heart attack.
"I have never ever heard of such a young child suffering from Ventricular Fibrillation it is incredibly rare.
"In fact Kai has become somewhat of a medical mystery. It's fantastic to see Kai doing so well."
During the emotional reunion at Cambridge Airport Kai along with his father Phillip, 42, and siblings Josh and Kaitlin met members of the East Anglian Air Ambulance Service and Kai was allowed to play in the cockpit of the helicopter that saved his life.