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Laura Rutherford

Mother. Blogger. Campaigner

Laura is mum to Brody & Sydney. Brody is primarily undiagnosed but has global development delay, autism, epilepsy, hypotonia and hypermobility. She writes about life with an undiagnosed beauty on her blog Brody, Me & GDD.

Laura is passionate about making a difference and has a campaign asking supermarkets to sell bigger nappies for children with additional support needs, which can be found here.

She is a firm believer that Changing Places toilets should be available for the disabled community and wants to raise awareness of this issue through social media.

The Daisy Garland: Supporting Lives Touched By Epilepsy

Despite all of the risks associated with epilepsy, SUDEP has never been discussed with us by any of Brody's paediatricians. I found out what it was in a leaflet that was handed to us when he was diagnosed. It was briefly mentioned on a page, almost as though it was an afterthought.
31/10/2017 11:35 GMT

The Big Little Sister

To Syd, Brody is Brody. She accepts him for who is he - her brother. And in a world where we really should just embrace differences and celebrate them, that's a beautiful thing. Because sadly this isn't always the case.
20/10/2017 13:53 BST

Global Development Delay: The 'Two Year Review'

This time, there would be no follow up until preschool. There would be no referrals made. There would be no appointments to health professionals that I hadn't heard of. And there would be no confusing abbreviations thrown my way, which of course later would become part of my everyday vocabulary.
05/09/2017 13:16 BST

The (REAL) Great Nappy Debate

I can honestly say that I've lost count of the number of times I have changed my son Brody's nappy in our car boot. Trying to shield him from passers-by, some of whom almost tut at the fact that I'm doing it. <em>Like I want to be doing it</em>.
25/08/2017 15:20 BST

Thinking About School Transport When Your Disabled Child Starts School

<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" /> Although, I wish so much Brody that we could have walked that path to your local school together, I know that your new school will take great care of you. I know that you'll meet lots of other boys and girls just as special as you are. And I know that you will continue to develop and amaze us - taking everything at your own pace, surrounded by love from people who care.
21/08/2017 12:04 BST

A Few Of My Worries Parenting A Disabled Child

<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" /> Being a parent - and being a parent to a child with disabilities more so - scares me at times. I've always been a worrier, but these days I worry so much more. Because I love both of my children so much. And when it comes to my son Brody, I feel a never ending loss of control over so many things.
28/07/2017 14:50 BST

I'm Not Ashamed To Sometimes Ask For Help

<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" /> Unfortunately, parents also have to battle and beg local services for help and equipment and, although personally to date, we've been very fortunate with our local services, I am well aware from friends and social media how the services you receive are somewhat a postcode lottery.
10/07/2017 14:18 BST

A Few Things I've Learned As Mum To A Disabled Child

<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" /> There are so many things that I've learned in the five years that our son Brody has been in our lives. Although there have been more good times than bad, a lot of things I've learned have chipped away at me. Not because of him. He is perfectly imperfect after all. Simply because of the way the world works - people, businesses - and my non-stop worrying mum brain.
04/07/2017 08:01 BST

Back When I 'Just Knew'

That's not easy to come to terms with. I love Brody with all my heart and I know that everything happens for a reason. But sometimes I wish I knew what that reason was. No diagnosis means no prognosis after all. Still, having others to talk to who can relate really helps. It can make you feel less isolated in a world of unknowns.
13/06/2017 13:22 BST

Products SEND Parents REALLY Want!

My friend and I often joke that if we were entrepreneurial enough, we'd set up a store for the disabled community with an array of products at affordable prices. Someone is missing a trick! There are so many products not on store shelves that I know would sell! And why are we so often ripped off?
22/05/2017 14:30 BST

How Do I Know If It's A Seizure?

Laughing was never something I ever associated with seizures. Then late one night when I was heavily pregnant with our daughter, Brody was asleep next to me and began laughing hysterically. I turned round to face him and he started having a clonic tonic seizure (I miraculously managed not to go into labour).
03/05/2017 12:55 BST

The Lack Of Answers When Your Child Is Undiagnosed

Or at least if they don't know the answers straight away, they will in the end. It's not easy to process the reality that they can't always figure things out. That there are unknowns and sometimes - no matter how many tests - some syndromes are so rare they are a needle-in-a-haystack hard to find.
28/04/2017 11:26 BST

My Son's Autism

If you're walking a similar parenting path to mine, you've quite possibly heard the saying: "<em><strong>you meet one person with autism; you meet one person with autism</strong></em>". Sometimes I think that only those who <em>really know</em> someone with autism get<em> how little</em> others understand this.
19/04/2017 16:18 BST

The Guessing Game When Your Child Is Non-Verbal

But it's also oh so bittersweet, like so many things, because I think of how easy she has it compared to our five year old son, Brody, who struggles to tell us what he wants constantly because of a learning disability and autism.
16/03/2017 16:48 GMT

Reactions To My Son's Wheelchair

The wheelchair has been great. Pushing him in it is much easier than the buggy he was too big for. And sometimes it helps by providing a quick explanation to strangers when he has challenging behaviour. I suppose because with a wheelchair, disability is quickly visible. But it took a while to get used to having it...
02/03/2017 17:02 GMT

Sensory Processing Disorder Is Unpredictable

It was only as time moved on -- when we realised that Brody had various disabilities and I had the opportunity to meet more doctors, therapists and mums walking similar paths-- that I discovered sensory issues was a thing. And that it was known to many as sensory processing disorder (SPD).
15/02/2017 17:42 GMT

Stuck At Home Mum

The sad thing is I don't even feel confident anymore going to friends' houses with the two of them. I can't sit down and leave them to wander and I can't follow them both when they go in different directions. Most friends don't need stairgates anymore or don't have to worry about things like hot drinks being grabbed or breakables being within reach.
23/01/2017 16:11 GMT

Confessions Of A Frumpy Mum

I'm tired of being like this though and I'm determined to change. Even though I fully admit I am currently guiltily eating my way through Christmas all the way to New Year. I wish I could say its making me feel better. The reality is it's not. I am just greedy. And adding some extra pounds/rolls to my collection.
22/12/2016 14:04 GMT

Acceptance

Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.
09/12/2016 16:32 GMT