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The Ultimate Role Reversal

Posted: 25/02/2013 23:00

Sitting around the breakfast table, dad munching on his cornflakes, mum making toast, siblings arguing over the merits of muesli while you work your way through the bowl of porridge that is apparently 'good for you' - the only thing on your eight-year-old mind being what your school day has in store - is how many people spend their formative years.

Your parents become the soundtrack to your life, quick to reprimand your behaviour, ask you to eat things you dislike, and stop you going out when you want to or because you are wearing a skirt that they consider to be more like a belt. Imagine in little more than twenty years from that cosy breakfast scene that you could be censuring their behaviour, trying to stop them going out at all hours dressed in next to nothing, and only a few years later feeding them food that you have no idea if they will eat or spit out.

This is the ultimate role reversal, where you become the parent and your parent looks to you for the guidance they used to provide. It may sound like an extreme situation, but for hundreds of thousands of people this is becoming a reality, particularly as many couples are having their children later, and as those young people are busy growing up, the adults are heading towards health problems that could shatter their safe and secure family life.

In the most severe cases, this can mean early-onset dementia (defined as dementia in someone under 65). When dementia hits your family, the person with it develops that cocktail of vulnerability mixed with a need for independence that, in the early days at least, can be very similar to how that young person desperate to spread their wings might feel and behave.

It's often accompanied by denial on both sides, as the person with dementia tries to carry on 'life as normal' while their children are oblivious to the irreversible changes that are happening. I think most of us see our parents as frozen in time, a continuous rock in our lives, ignoring the ageing process and all its pitfalls.

We might leave home to go to university, hopefully then going on a career and maybe a relationship that keeps us many miles away from the parents we used to see every day. Meanwhile, if your mum or dad find that ageing brings with it mental or physical frailties that prevent life carrying on as it always has, you can be faced with the reality of putting your life on pause to parent your parent.

Nothing can really prepare you for that scenario. I was just 12 years old when my father began to exhibit the symptoms of what we discovered 10 years later was vascular dementia. My twenties weren't about university life, all-night parties and angst with boyfriends, they were about supporting my dad to have the best life he could, just as he had supported me as a child.

What surprised me is that rather than resenting my role, I actually grew into it. I learnt how to feed someone with a swallowing problem, knew all the words to the songs he loved, and became an expert at sewing name tapes into his clothes so they wouldn't go missing. I had become a parent and dad was, well, a 'new man' in every sense of the phrase!

Like every parent, I was told I was wrong on countless occasions, had to field numerous demands to know "Are we there yet?" and was asked for things I couldn't possibly provide. I would sign consent forms so that he could go on outings, was given paintings and crafts that he had created, and played endless guessing games when he was ill but couldn't tell us where it hurt. The difference between me and your average parent? 'He' was my dad.

From the ultimate role reversal, however, comes the ultimate lesson. Cherish every moment you have with your parents, however irritating, irrational or restrictive their parenting may seem. If you ever have to become their parent, you will understand where they were coming from. After all, the apple doesn't fall so very far from the tree.

Read more on dementia and ageing on Beth's D4Dementia blog: http://d4dementia.blogspot.co.uk/

 

Follow Beth Britton on Twitter: www.twitter.com/bethyb1886

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Sitting around the breakfast table, dad munching on his cornflakes, mum making toast, siblings arguing over the merits of muesli while you work your way through the bowl of porridge that is apparently...
Sitting around the breakfast table, dad munching on his cornflakes, mum making toast, siblings arguing over the merits of muesli while you work your way through the bowl of porridge that is apparently...
 
 
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Kraptonfactor
They're coming to take me away ha ha, hee hee, ho
00:00 on 28/02/2013
@ Beth Britton: Your article rang a cord with me, my father had vascular dementia too and I cared for him for 8 years until he died in tragic circumstances.
Nothing prepares you for this kind of role reversal whatever age you are. Trying to get him to do something he didn't particularly want to do was very hard, he was still a very strong man and I'm quite a small woman so it was a nighmare trying to get him to hospital appointments. He was also diabetic so we had to stop him from having money on him because he used to head straight to the pick and mix counter at Woolies. He thought everyone was stealing from him even though they weren't. He couldn't drive his car and wrecked his bike riding in front of a lorry, breaking his hip, ankle, ribs and sustaining head injuries. It was heartbreaking to tell him he would only be able to walk from then on even though that was difficult for him.
I promised him I would never put him in a nursing home and managed to keep that promise even though it put an enormous strain on my relationship with my husband who works abroad and expects me to be in attendance to him when he's at home.
If I had to do it again I would not hesitate, he was a good dad and I loved him, I miss him every day.
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Beth Britton
21:01 on 28/02/2013
Your story has many similarities to mine. My dad could be very strong-willed and was also very physically robust, while I'm quite petite. He too went through a stage of being suspicious of everyone around him, and couldn't accept when he could no longer drive (to the point that he had his car taken to the garage for repairs when really it needed to go for scrap). He was a wonderful man though, a great example to me throughout his life. He taught me so much, both before and during his dementia. Like you, I loved my dad very much, and miss him every day.
Kraptonfactor
They're coming to take me away ha ha, hee hee, ho
09:44 on 01/03/2013
Beth, in my dad's case it was medical negligence that caused him to have a stroke, he had a quadruple heart bypass and wasn't prescribed anti-coagulant therapy afterwards. To know it was totally avoidable made things worse. It left his with a frontal lobe infarct that changed his personality completely. I had to watch my dad turn into a helpless child. My dad, as I knew him, died the day he had the stroke, when he actually died I grieved for my child.
I think about him all the time. My sons and I have so many happy memories of the days when he was well, so that is something.
16:27 on 27/02/2013
What broke my heart and that of my sister was having to break a promise we made to our mum before dementia took such a hold as to make it unsafe for her to live independantly in her own home with our help and support, toward the end we had to admit defeat and place her in care something we had promised we would never do.Its not easy coming to these decisions but we could not have her live with one of us as we both work full time as do our partners and as you will know some dementia patients need constant care for their own safety.The saying which sums up dementia for me at least is once an adult twice a child.
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Beth Britton
21:22 on 27/02/2013
A lot of people, including myself and my family, end up in the same position as you and your sister - sometimes, even if you have the time and ability to care full-time for a loved one, your average domestic home makes it impossible to do so effectively, particularly in advanced dementia when a person's needs can be very great. However, care homes can be wonderful places and you can have many happy times as a family, we certainly did.
22:24 on 27/02/2013
Yes i agree, care homes are by and large good enviroments, i suppose in our case it was more guilt for placing mum in one other than any negative views we had regarding them. I would not intend to give the impression to anybody reading this that care homes for dementia patients should be something to fear.We gained peace of mind knowing she was in a safe and stimulating place.
Makalha
Opinions are not facts.
11:41 on 28/02/2013
It is such a shame that so many people feel that placing a parent with dementia in care, is admitting defeat . They often do need more care than family can provide and you are doing what is best for them . I helped care for my mother-in-law and it was becoming impossible to give her the 24 hour attention she needed . It wasn't an easy decision for my father-in-law but in the end he had to admit that he was becoming ill caring for her . He was dreading going to visit her but she was really unaware that she wasn't "at home" and when we took her out for lunch she went back quite "happily" and introduced us as new friends ! .
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Beth Britton
21:15 on 28/02/2013
Sadly the health of many carers can suffer hugely by looking after their loved one.

Like your mother-in-law, my dad also eventually settled very well into his nursing home and was always happy to return after we would take him out. In my dad's case, an amazing rapport he had with his key-worker and other long-term staff members played a big part in that. Good care staff can transform the care home experience for residents and relatives.
13:56 on 27/02/2013
Your final sentance put a shivver down my spine.

My own children are watching me dealing with the same problem with my mother ........

Chilling post but very very true.
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Beth Britton
14:13 on 27/02/2013
Your children will learn a huge amount from the compassion you are showing your mother - so important younger generations learn about dementia and how to make a loved one's journey with the disease the best it can be. I wish you well.
21:51 on 27/02/2013
I hope so but it does worry me that they are worrying if the circle will return for me. My grandmother suffered with dementia also but not to such a great degree.

Its also a little worrying for me to see how I may become.

Mother nature can be so stunningly beautiful but equally so chillingly evil can't it.
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Beth Britton
21:19 on 28/02/2013
A huge incentive to look after yourself, as I'm sure you are. Having something like dementia in your family, like other long-term or terminal illnesses, affects everyone who knows and loves that person, but it's important to try & keep positive about the future. At least knowing what dementia really means focuses the mind on trying to keep fit and healthy.
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Karen Edwards
14:14 on 26/02/2013
Thanks for the post, Beth - you have such strength. This is most definitely something we should all be more aware of and ready for.
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Beth Britton
17:05 on 26/02/2013
I really didn't start out on Dad's dementia journey with that strength - it is very much something that grew over time, which I hope will give others on their own journey with dementia some hope for the future. With an ageing population and the predicted numbers of people who are likely to develop dementia, it is definitely a huge challenge for our society and the many many families who are currently affected, or will be in the future.
13:38 on 26/02/2013
Great post Beth. The voices of the families of people living with dementia often go unheard, particularly if they are young voices. So glad you are speaking about this.
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Beth Britton
17:00 on 26/02/2013
Thank you. For me awareness, education and understanding of dementia is about making it personal - we need to break down stigma to achieve real progress in improving care and support. My aim is to contribute to that by talking about our story and the stories of the many amazing people I am lucky enough to know through my work.
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12:42 on 26/02/2013
heres to the army of unpaid carers : doing the best they can for loved ones who are sick and frail.
We should all do more to help these people as many many more of us will be faced with similar care issues in the years to come.............
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Beth Britton
12:56 on 26/02/2013
Absolutely, couldn't agree more. Unpaid carers are one of the greatest assets in any country. Without them so many vulnerable people would be left to cope, or rather not cope, alone. Being a carer is a huge responsibility that means putting your life on hold to prioritise someone you love. It is the ultimate selfless act.
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vividrick
I came, I saw...I had a cup of tea!
10:58 on 26/02/2013
Nice insight Beth, thanks.
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Beth Britton
12:31 on 26/02/2013
Thanks for your feedback, much appreciated. Issues relating to older people and health and social care, particularly dementia, are very close to my heart. I hope you will continue to enjoy my posts
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vividrick
I came, I saw...I had a cup of tea!
22:55 on 26/02/2013
I have an Aunt with dementia and a cousin with Huntingdon's disease, who lost her Mum & Sister to the same disease. So I know what you're talking about.
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PumpkinGirl
Karma WILL get you, make no mistake about it!
21:26 on 25/02/2013
Bless your heart. I had to care for my Mom for a year & I was working a full time job, trying to care for 2 young children & take care of myself, as well. I am ashamed to say that I didn't do as good a job of caring for Mom as I could have. I will live with that guilt all of my life. I'm glad you had a different take on it & that for you it was positive. Angel, unaware. I know your Dad knew every single thing you did - and loved you more for it.
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Beth Britton
07:55 on 26/02/2013
Thank you for your kind feedback. You must have been under immense pressure with a full-time job, 2 young children to care for and your Mum too. In my case Dad was my sole focus, work and relationships really took a back seat, but I have many friends who have had to juggle the needs of their children and their parents simultaneously, all while having to work to work to pay their rent/mortgage, and it is incredibly tough. Guilt is a very common emotion amongst carers, I will always feel I could have done more, so you are not alone in feeling that way. I'm sure your Mum was very proud of you - not everyone has a family who even want to care for them when they get older.
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PumpkinGirl
Karma WILL get you, make no mistake about it!
13:30 on 26/02/2013
Thank you so much for YOUR kind words. Make no mistake, there will be good things that come into your life because of the good you have done. I sincerely believe that!! Everything you do comes back to you!