If you have ever cared for a loved one toward the end of their fight against cancer, you may find it hard to understand why someone would choose to die from the disease if they had any other option. Yet in the UK, more than half of medical staff who care for those with cancer have known patients who reject treatment altogether because they lack support at home from family and friends.
Having cancer is a life-changing experience, and how people choose to deal with the disease is a deeply personal decision. Some may stand to gain only a few extra weeks from treatment and so decide not to go down that route. For others, it could offer the chance of a much longer life or even a cure. We should all be troubled to hear that some patients are accepting a potentially avoidable death from cancer simply because they have no-one in their personal lives to help them through treatment.
Cancer patients by no means have a monopoly on feeling isolated and alone. Far too many people in our society, many of them elderly, lack the practical and emotional support of family and friends that the rest of us often take for granted. In fact the government is currently trying to measure loneliness amid concerns it is having severe consequences on people's health. Cancer and its treatment, however, can inflict a particularly debilitating toll on the body and mind - one made worse by isolation.
Imagine only having your colon cancer diagnosed after you collapse in the street because no-one has nagged you to see the doctor about your recent weight loss and tiredness. You'd noticed some blood in your stools, but didn't feel close enough to anyone to confide your worries.
Now imagine you've been told that you've a decent chance of surviving the cancer but you'll need to have a major operation that will leave you with a colostomy bag, and several rounds of chemotherapy that will make you feel sick and exhausted. There are no family or friends at home or nearby to help you wash, cook, clean or shop, give you a lift home from your chemotherapy appointments, or raise your spirits when you're feeling down.
Sadly, and understandably it is possible to understand why some isolated cancer patients choose not to go through with it all. But does that mean we should simply shrug our shoulders and leave them to what is effectively a slow suicide? What if they would have chosen differently with just a bit more support at home?
Rejecting treatment is, of course, an extreme example of the effects of isolation on cancer patients. The wider picture, although less dramatic, is equally distressing. One in four people newly diagnosed with cancer in the UK will lack support from family or friends during their treatment and recovery - that's more than an estimated 70,000 people every year not getting help at a time when they need it more than ever. Of those, around a third - an estimated 20,000 people each year - will receive no support whatsoever, facing cancer completely alone.
More than half of those who are isolated have skipped meals or not eaten properly because of a lack of support at home. More than one in six have not been able to collect a prescription for their medication, and more than one in 10 have missed a hospital or GP appointment. The numbers, revealed by Macmillan's new Facing the Fight Alone report, show that isolation affects a significant proportion of cancer patients and has a real and negative impact on their lives.
Most people who lack support say it's because their family and friends are too busy to help or live too far away. More than two-thirds say they would have benefited from more support from their loved ones, which means that right now there could be as many as 50,000 people recently diagnosed with cancer across the UK who could do with help from someone close to them. Does someone you know have cancer? You might want to have a word, or offer a hand.
At Macmillan, we believe no-one should face cancer alone. Both healthcare professionals and society as a whole must recognise how serious isolation can be for cancer patients. We must make every effort possible to mitigate the effects. The government's plan to measure isolation nationally will keep momentum going on this issue, but we need them to do more than just measure for those with cancer. All patients must be given a care plan to capture their problems and highlight any extra support they may need during and after treatment.
The lives of those who are isolated are just as valuable as those with close family and friends, and we must give them just as much of a fighting chance. People may or may not choose to accept treatment for cancer for many reasons, but if someone who chooses not to would they have changed their mind if they simply had a bit more support, is that really a choice at all?
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There are highly trained and I'm sure, dedicated, people in the system. But there is a system that says do this this and this, and tick those boxes. And it's overseen by a regulatory system that's just a sick joke.
Even worse. The NHS is one of those institutions, like education, that politicians can't bear not to tinker with, for the sake of headlines/soundbites.
The author above mentions a person collapsing on the street due to colon cancer because nobody was around to notice weight loss or harass them about getting a colonoscopy. Where I live, by state law, following any general anesthesia, one must be signed out and driven home by a friend or family member. One cannot take public transit, hire a cab, or use a medical transit van. This has made it extremely hard for me to get a colonscopy. The doctor is available only on certain days. Scheduling must be done 6 weeks ahead. I have no remaining family, and no friends are willing to take a day off from work to shuttle me... even if I pay them their daily wage. They are afraid to sacrifice a personal day.
A couple of times we had him stay with us, but he wanted to be at home.
He should have had a full-time carer (he had a spare room), but the council was terribly slow off the mark - they didn't approve the benefit until he was in the hospital for the last time.
The problem is, there aren't enough carers, they are poorly paid and therefore many lack adequate training and motivation, and especially hard to find someone who can commit to round-the-clock.
As usual a measured and thought provoking piece.
As a Cancer Survivor myself, i have had all of those thoughts and have also been blessed with close family and friends who helped me get through it.
As i have said many, many times, there is no rule book with Cancer: you do what you think is right at that time. It is at times very hard to be logical or neutral in your thoughts you are clouded by confusion and at times extreme terror.
There are many conflicting issues: 1, The NHS have what they call Key Workers. These specialists are there to help and guide you through every facet of your journey - which includes emotional support. Trouble is, as every one is seeing, the NHS is in termoil and these specialists are either not there or are 'just a badge'. In principle, it should help this issue and i for one have been campaigning hard for these to be more effecive. 2, organisations such as Macmillan do do an incredible amount of work to help combat these issues, but sometimes 'at the coalface' no one is ever informing you or guideing you on these matters.
Cancer is incredibly complex as a disease and yet perhaps more so, is incredibly complex to deal with. each person has to be made aware of what help there is out there, where to get it and what it can do for you.
Its all a very tough call !
Not really sure, but am very much aware of Livestrong - in Austin and they do have some great care programs that you could link up with. They like many charities are always looking for advocates or helpers in many areas
Hope that helps and good luck - the Cancer World always needs people like you!
Peter
he devised a diet that was designed to cure cancer with special foods............
his latest scans show he is now clear of cancer.....although his oncologist told him there was nothing
that could be done to save him..........................
NOW YOU WOULD THINK THAT GROUPS LIKE MACMILLAN AND CANCER RESEARCH U.K.
WOULD ADVISE EVERY CANCER PATIENT TO TRY THIS DIET AS IT JUST MIGHT CURE
THEM......
MR ALAN TAYLORS DIET CONSISTED OF..................
organic apricot kernals
curcummin tablets
barley grass powder
selenium tablets
vitamin c tablets 24 per day
vitamin d3
you can google ALAN TAYLOR CANCER DIET FOR FULL DETAILS FOR HIS CURE FOR CANCER
NOW IT MIGHT NOT CURE EVERYONE BUT IF IT CURES 50% OF ALL CANCER PATIENTS
AROUND THE WORLD THEN THAT WOULD BE A GOOD THING...........
ITS HARD TO IMAGINE WHY ONCOLOGISTS AROUND THE WORLD ARE NOT INSISTING ALL
THIER CANCER PATIENTS TRY THIS DIET AS ITS NON TOXIC FOOD.
OH YES ITS A LOT CHEAPER THQAN THE EXTORTIONATE PRICES CHARGED FOR CANCER DRUGS BY BIG PHARMA.........
CRUK and Macmillan are guided by good clinical practice, EU regulations and HR conventions, and rightly so. All treatments should prove themselves safe and effective in controlled and repeatable clinical studies before being used on the general population.
If this man's scans show complete response, what other treatment did he have before opting to use supplements?
A cure is not the same as having a scan showing no tumours currently. Perhaps in 5 years if he is still clear, a cautious claim could be made.
That does not, however, mean that this will be effective for anyone else, let alone the 50% mentioned above.
Nor is there a conspiracy by drug companies to rip off and defraud. Pharmas are not the only institutions driving the development of new and existing treatments, and treatments don't consist exclusively of licensed on-patent drugs.
I would also suggest researching the effects of these supplements, especially large amounts of vitamin C. Don't assume they are benign just because they are not classified as drugs. There should also be caution due to the possibility of interactions with medications that cancer patients may be taking.
I wish anyone suffering with cancer and the effects of treatment the very best of luck and love.