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Ciaran Devane

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We Must not let the Welfare Reform Bill Penalise Cancer Patients

Posted: 13/09/2011 01:00

Raise the subject of benefits at a dinner party or amongst friends over a drink and lively debate will quickly ensue, with the conversation swiftly covering rioters, looters, and so-called benefit-cheats. And one could argue for hours with little resolution about the willingness of one council to withdraw support from its residents should they be proven to have broken the 'social contract' we all are party to.

People in the UK are rightly very protective of their welfare state; I have no doubt that it is this sense of ownership, that it is our welfare system that leads some to condemn those who they feel have broken this agreement between citizen and state. But what about when it is the state that breaks the agreement?

At the same dinner party there would be much less scope for disagreement on the subject of whether it is right for people recovering from cancer treatment to have their financial support curtailed irrespective of their medical condition or ability to work. True, such a serious discussion may not be suitable for the dinner table, but it is this very topic that members of the House of Lords will be debating today (Tuesday 13th September) as the Government's Welfare Reform Bill has its Second Reading in that chamber.

A key aspect of the reforms is a change to how the Employment and Support Allowance (ESA) operates, with the Government proposing to remove this benefit after one year. The allowance, a benefit given to people who are unable to work due to illness or disability, is a crucial means of financial support for many cancer patients. It helps them manage while they focus on getting better. But getting better can take much longer.

Returning back to work is a vital step for many people with cancer but it should not be the case that those who are unable to recover quickly enough - i.e. within 12 months - should have their benefits taken away. These are people who have paid into the system, who have often saved diligently; people who have done everything to fulfil their side of the social contract. And yet if a partner of a cancer patient unable to work because of their illness were to earn as little as £150 a week, they would lose support from the state after a year irrespective of whether they are well enough to return to work.

It concerns me greatly that the Government arrived at this proposal purely on the basis of financial calculations and explicitly not on an evidence-based estimate of what is a reasonable length of time for people with a disability or illness to be able to return to work. As if to highlight the unreasonableness of its own policy, the Government itself estimates that for 94% of those who will be affected by this change, 12 months will not be long enough to return to work.

All of this will be on the minds of delegates in Birmingham as Liberal Democrats gather for their autumn conference on Saturday, as they are given an opportunity to vote on whether it should be the Party's policy to oppose such an arbitrary limit on the length of time someone can receive such support from the state. I sincerely hope that Liberal Democrats do speak out on this issue, and that members of the Lords challenge the Government to amend its proposals, and make sure that the state delivers on its side of the social contract.

 
 
 
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12:55 PM on 09/13/2011
Its not just Cancer Paitents, There are other illnesses that can cause long term sickness, I have Heart Failure caused by a faulty gene, I will never be able to work full time, again, and finding work or an employer that will let me have numerous days off due to extreme pain and tiredness, My only hope of a normal life will be a transplant but thats another issue,
02:15 PM on 09/13/2011
That is very true Jayne. Successive governments have continually treated genuine people with long term illnesses with contempt. You pay your taxes - and there are a vast amount of them now, in the hope and belief that when you really need help, its there for you. Unfortunately, it is isnt. I wish you well with your condition and hope that you can at least find a positive route through all your difficulties
09:54 AM on 09/13/2011
I completely agree with Ciaran, having gone through Cancer myself and tried to get benefits its shameful and very disrespectful of politicians to be blinded by their own needs and not that of the Cancer Patient and their families.
You cannot shut off Cancer and return to work at a scheduled time - it just doesnt work like that. I had over 20 months of extensive treatments and took a long time to recocver both physically and emotionally. My Wife finished work to care for me too, so there was a financial impact at times. Thousands of Cancer Patients and their families will be severly affected by this bill and its just morally wrong!
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01:49 PM on 09/13/2011
Peter, as well as Macmillan Cancer support, you may have a local Carers` Group where you live (sorry if I`ve stated a path you`ve already tried). Caring is a full-time job in itself and carers don`t get the recognition they need (I tend to avoid using words like `deserve` these days as I don`t want to sound like IDS).

The worst thing about longer-term illness is that trying to get back to work is very hard once you`ve had time out for treatment (I sometimes get the feeling that most employers would be happy to replace their staff with robots (they don`t become ill or disabled, don`t need feeding or breaks or wages, and only a bit of maintenance from time to time).

This government specialises in kicking people when they`re down. :(
02:19 PM on 09/13/2011
Well, Carer's is another issue - and i totally agree, they are very much the forgotten people. Yes, getting back to work is very difficult and it takes sometimes almost as much energy and effort in fighting illnesses to get yourself ready to go back to work. Everyone is different, but at some point, people and their families need a lot of help when going through difficult times - thats why we pay an extortionate amount of taxes, but never see it!