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Ian Semmons

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There's Help Out There for People With Chronic Pain - Don't Suffer in Silence!

Posted: 21/01/2013 00:00

Having experienced chronic pain for the last 20 years I was concerned to see new research which suggested that people in Britain are suffering in silence and needlessly missing out on healthcare services.

The research commissioned by Lloydspharmacy* to find out how people manage their pain and the impact it has on their life found that despite over three quarters (77%) of people saying they have suffered from chronic pain for 'years', almost half (47%) said that they aren't accessing regular support from their GP and over two thirds have never used a pain clinic or a support group for help.

As one of around 10 million chronic pain sufferers in the UK, I have first-hand experience of the impact pain can have both physically and emotionally. Also many members of my charity regularly tell me that chronic pain is dominating their life, affecting not only their social life and family time, but even their ability to hold down a job.

Despite this it appears that many of Britain's chronic pain sufferers remain reluctant to seek support that is available to them and that they are putting up with their condition. The statistics seem to support this fact. Just under a fifth (18%) of respondents who had not sought support for their chronic pain cited 'not wanting to bother healthcare professionals' as the reason; while over half (59%) appear to have given up, saying they 'didn't feel anything could be done' so it was 'better to just put up with it'.

For me, changing my mindset and realising that I was going to suffer with chronic pain for the rest of my life was the first step towards proactively managing my pain and realising that there was help available.

At the time I didn't realise that pain was something that could be managed and that there were places I could go for help. It was only when I changed my GP that I realised this was the case. One of his first questions was "have you been to a pain clinic?" "A what?" I said. I had no idea what he was talking about only to find that in the very hospital I had spent nearly six months in was one of the best pain clinics in the NHS! Frustrated and angry I went to my first appointment 'all guns blazing' and met a very pleasant consultant who calmed me down and then casually said "you do realise that your pain will be with you for the rest of your life?" I didn't and it was probably the most frightening moment of my life and I had worked in several dangerous situations.

From this point forward I realised that I needed to be proactive about my pain so I sought help, started to use pain management techniques and made lifestyle changes to minimise the impact. I still get 'flare ups' which are annoying and frustrating and I often curse my limitations, yet I am alive and enjoy life.

I have also turned these experiences into a positive by setting up the charity Action on Pain. My intention was to help others who would no doubt follow with similar symptoms. What started as a humble idea mushroomed into a vibrant national organisation that provides help and support for people affected by chronic pain.

I actively encourage people to seek out help - you may feel that there is little hope but it shouldn't have to be like that. By asking for support and advice you will be making a positive step towards improving your life.

*All research carried out by Opinion Matters between 22 and 29 October of over 1000 adults with chronic pain. Chronic pain suffers have been defined as: people who suffer from continuous long term pain that lasts for three months or more and/or pain that extends beyond the expected period of healing e.g. after an operation.

 
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Having experienced chronic pain for the last 20 years I was concerned to see new research which suggested that people in Britain are suffering in silence and needlessly missing out on healthcare servi...
Having experienced chronic pain for the last 20 years I was concerned to see new research which suggested that people in Britain are suffering in silence and needlessly missing out on healthcare servi...
 
 
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12:33 PM on 01/22/2013
I have had chronic interstitial cystitis for 11 years, the only drug i can try costs a huge amount of money, which i can't afford. I have tried everything else. It gets me down.
10:48 AM on 01/24/2013
Have you tried putting ½ teaspoon of Sodium Bicarbonate (baking soda) in a glass of water and drinking it each day? The NHS are using baking soda tablets for lots of things these days, no side effects, and it works.
11:48 AM on 01/24/2013
Thank you very much for your kind reply. Yes i use bicarbonate of soda when i get a flair up of classical cystitis (which happens quite often with interstitial cystitis) but unfortunatey the bladder is too damaged to help. However, saying that i might just try it daily to see if it makes a difference. Thank you
09:15 PM on 01/21/2013
i have damage to my spine from l3 downwards from a heavy job i had for years, but still able to work(currently at college retraining) ,in great pain sometimes even with 200mg a day of oxycontin and oxynorm plus muscle relaxants,pills for sciatica etc but if you stick to exercises from physio best u can and take long acting painkillers on a continuous 12hr basis and btp meds when needed , it can be managed ,not cured but if u insist and persevere your gp will get u into a pain clinic who will decide best route ,my doc wouldnt do anything apart from tell me to swim more,until i gave in changed gp, who sent me for mri,then pain clinic and life has been much much more painless and happier in the 2 years since! persevere and if all else fails change gp, opiates are way underprescribed in uk but are harmless to the body unlike nsaids and paracetamol which are toxic to stomach and liver respectively
08:21 AM on 01/22/2013
good post......opiates are very under prescribed by gps....pain clinics are way forward
09:52 AM on 01/22/2013
also gabapentin/lyrica seems to help with neuropathic pain
09:07 PM on 01/21/2013
i too have inflamation of the arachnoid thanks to the Roya Free hosp, they will not admit to it so the condition goes untreated, just left with a life of pain
07:25 PM on 01/21/2013
close friend of mine was damaged in a disectomy procedure 2 years ago....it has taken ages to find the right pain consultant, nhs london....who has diagnosed arachnoiditis....exercise makes it worse, irritates the arachnoid layer of the spinal cord too much.....and dr has prescribed him a cocktail of drugs...including ketamine...which actually makes his life a little more bearable....and has a few bits of the day when pain free....much under diagnosed condition, as caused by medical intervention...needs to be more widely acknowledged...he is 42...
09:02 PM on 01/21/2013
Simonshi21 = wasnt the Ryal Free by any chance - they did the very same to me
07:06 PM on 01/21/2013
I suffer Cronic Pain have for several years, I have 3 months ago been put on Amatryptaline which is also used for depression and I have to say using this drug with Codine has made my life sooooooooooo much eaiser, so please do not have the mind set that antidepressents are for just depression this drug was given to me by a proffessor at a pain management clinic and I thank god he put me on it as I have been suffering for far to long.
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thomson9552
06:04 PM on 01/21/2013
I have suffered from chronic pain for most of my life. My suffering in silence and having to put up with the frequent ill health, migraines, constant headaches and stress has been partly due to my upbringing (you don't bother the doctor unless your arm is going green and falling off) and partly due to how long I have had it. You just think this is how life is and don't think it can get any better.

It was only when I got married that my wife got to really know what I had to put up with and forced me to seek help.

Now I have medication to control my previously every nine days, last for two days, migraines. I have other meds that reduce my other problems, I have been diagnosed with sleeping disorders, so I now get a longer sleep making me more able to cope with the pain, which is still here: but now I have just started physio and hopefully that will help some more too.

The NHS really has been a marvel to me.

The one thing that I was really shocked at is how many people don't keep their appointments. At my last physio appoint four people were called before me and not one of them were present and I see that often at the doctors too.

When we talk about waste in the NHS: missing appointments, that is a waste.
05:28 PM on 01/21/2013
Can't tolerate TENS machine as it upsets my immune system. Will look at the website. At the moment the cold is affecting the various forms of arthritis I have as well as fibromyalgia badlly. I agree, pain management is not good enough.
12:42 PM on 01/22/2013
I too have Fibromyalgia and can't tolerate a TENS machine, I've also tried various pain killers and amytriptyline none of which has worked for me. I'm currently taking Tramadol and paracetamol. I can't remember the last good nights sleep I've had. I was sent to a Pain Management Clinic and the advice I got was live with it...so that's what I'm doing! Maybe I've just had bad experiences with the medical help available when I was asked what the Consultant could do for me, I replied hopefully cure me, he said he didn't do magic!
02:48 PM on 01/21/2013
tens machines are marvellous....not a cure....but the pain subsides whist the electric current is going through your body...
10:17 AM on 01/21/2013
I find Tony & Cherie Blair a "chronic pain" - anything that can be prescribed to make them go away?
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duzntmatr
has coffee in it
07:04 AM on 01/21/2013
If Doctors would do diligence in diagnosing, less people would have to tolerate "chronic pain".
08:12 AM on 01/21/2013
If patients would be diligent in actually looking for an answer to their back pain then less people would have to tolerate chronic pain.

No doctor is perfect. It's up to the patient to find a doctor who can give them the proper diagnosis.
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straightuptalker
What ever happened to common sense?
11:00 AM on 01/27/2013
I?ve been doing that search for 5 years for chronic sciatica, compounded by an inflamed piriformis muscle, diagnosed by a neurosurgeon, who says it "isn't a disc issue". Problem is, nobody in my area knows how to treat or resolve it. Chropractic therapy, acupuncture, physical therapies, tens units, epidural injections, and specialized therapy at the local ?back clinic" have done nothing. I don't tolerate pain meds well, so I don't take them. I've fallen flat on my face recently when my leg gave out, and I think it's more than the sciatic nerve. I've done my part, so why can't anybody figure out what's going on?
02:14 PM on 01/21/2013
My late wife battled chronic pain for 8 years - constant, no respite - during which she was confined to bed. Her GP couldn't have done any more for her such was his level of proactivity. Having attended pain clinics, outpatiant appointments et al, all to no avail, we resigned ourselves reluctantly accepting the worst. Chronic pain is a completely different animal from other types of pain and, as such, that much more difficult to treat or manage. Some Medics do their utmost but, lest we forget, are limited by existing knowledge and practise.
02:29 PM on 01/21/2013
I am sorry to hear about your wife and do know how difficult it is to resolve chronic pain. One of the main treatments offered to me was an anti depressant; I am allergic to them so that became an issue for the clinic. There is still a questionable attitude towards woman with pain. Diagnosed with fibromyalgia, which is a cop out by the medical profession for undiagnosed pain, and just have to do the best I can. Am laying out £90 a month on osteopathy and acupuncture. Not sure how much they help in the scheme of things, but better than nothing. Pain killers don't touch it, too many side effects with anti inflammatories, TENS useless, etc. etc. I find exercises to be the best option frankly. No size fits all.
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talari
02:00 AM on 01/21/2013
I keep a 45 on the nightstand in case my pain becomes unbearable. It gives me strength and hope.
02:30 PM on 01/21/2013
I trust you live in the US ! Sounds like a good get out of jail option and believe me ending it all enters my mind almost every day.
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jgamble28
ya never know.
05:30 PM on 01/21/2013
I've never had chronic pain so I can't say I understand it. but to keep a gun on your nightstand if your pain becomes unbearable sounds gruesome. I'm so sorry that your in so much pain.
01:46 AM on 01/21/2013
I'm a chronic pain sufferer and I also encourage people to take charge of their lives and put their mental energy into figuring out how to have a life and manage this pain they are in. A doctor you see for a few minutes twice a year can't do it for you. You have to be willing to try what's available to you, and to keep trying. There is no one final answer to chronic pain management. It twists in the wind and so will you if you don't learn how to adapt. Your life can be better, but you'll have to take charge and make it so.
02:34 PM on 01/21/2013
I agree with you and this became clear when I attended a pain "class" at my local physiotherapy department. There were seven sessions and only one other person and I were still attending at the end. That said it all to me. The excuses people gave for not following the course of exercises were unbelievable. Of course there are days one can only do a little, but these people weren't even trying and I think they used their pain as some kind of crutch. Of course there are people with serious conditions that cause pain, but many of us it's just wear and tear, age, etc.