Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.
Some three and half years later when I had received an autism diagnosis for Joseph, I felt like my world was about to end and felt angry that once again, life wasn't as simple as it should be. It wasn't a case of me only just falling in love with my son and then falling out of love with him because he had a label.
During the EU referendum campaign I've spoken with a number of politicians and campaigners on both sides, particularly on the question of disability rights; as the chairman of the youth council at a national autism charity and an advocate for disability inclusion in the workplace, this is something I naturally care about.
This story touched me completely, as a mother of an autistic child. Why is this allowed to happen? Why are so many of our young people who are on the autistic spectrum placed under the Mental Health Act, sectioned and then put into psychiatric units were the individuals looking after them have very little training with regards to autism?
I look at ways in which to enable and help my son Tom, live his life to the best of his ability with the use of early interventions, sensory play activities and the use of visual timetables. I find the word 'cure' and the connotations of this that a person on the autistic spectrum can be made 'all better' and therefore fixed very unsettling.
Dr Tim Cadman, at Institute of Psychiatry, King's College London, explained to the uninitiated that while some understand autism as a disorder, others - particularly proponents of the social model and members of the 'autistic community' - understand it less as a condition to be treated than as a 'distinct cognitive style'.