Before Internet, e-mails, mobile phones, the technology we enjoy today, and now take for granted, it was far harder to find the latest information, meet with others in the same situation and impossible to correspond with fellow sufferers half way round the world. If there was a support group located near to one's home, then it was a stroke of luck.
Let's be brutally honest; becoming a caregiver is without doubt a job nobody in their right mind asks for, wants or expects. Suddenly a person can find themselves in the position of having to take care of an ageing parent or spouse. The hours are long; constant tiresome challenges, no vacation, it is a 24/7 job.
The growing number of young people being diagnosed every day with Young Onset Parkinson's is astonishing. I was diagnosed at age 44 and at the time I thought this was very young, but since then I've been in contact with many fellow sufferers, some of whom were diagnosed in their twenties! Suddenly 44 doesn't sound so young!
I write with stark raw honesty and humour about living with chronic disease and was astonished at the heart-warming reception my little book with its big message received. I quickly realised that fellow sufferers and caregivers related to my poems, knowing they are not alone in their daily struggles.