I got my other wishes. Today I dressed myself. Fed myself. Left my flat and walked. I never take those things for granted. They will remain a privilege, rather then a right, for the rest of my life. Not because I believe they will go away. But because they are part of a long list of things I am overwhelmingly thankful for every day.
The body takes a beating from constant symptoms, yet most patients I've come across, gallantly fight Parkinson's in silence each day, so it's no wonder our emotions are also affected. We feel bound by a code of honour to put on a brave face, smile when we can, and continue to sound positive to all those around us as this degenerative disease runs its course.
While my sense of lack of satisfaction is still very much there, and I find it hard to be proud of myself for going out or 'doing' something, I'm trying to take things one step at a time and realise that I'm working my arse off, and that's worth celebrating. And setting myself small, achievable challenges is definitely one way of helping me manage that.
As someone who has lived with chronic pain and associated conditions since my early adulthood, I have tried scores of aids, medications, complementary products and stimulation devices in order to try and reduce my pain and allow me to live a fuller life. I've had the pleasure of discovering the MediPen recently and I've never tried anything quite like it!
Endometriosis has been at my side for 20 years, chronic fatigue for a decade, and fibromyalgia has joined the party more recently. Rather than be held hostage by symptoms which can sometimes be crippling, I am aware that my business successes have my circumstances to thank, in part, for my ability to succeed.