Chronic Illness

Walking in Heels

Carrie Armstrong | Posted 27.10.2014 | UK Lifestyle
Carrie Armstrong

And I don't. Heels aren't vital for goodness sake. But freedom is. And being in denial that I'm making any aspect of my world smaller than it needs to be, out of fear is inexcusable. I know better than that. I can do better than that.

How to Create a Kick-Ass Food Diary

Natasha Lipman | Posted 22.10.2014 | UK Lifestyle
Natasha Lipman

There's a lot more to this journey than just what you put in your mouth, and understanding that your lifestyle, mental state and external stressors also play a huge role in your health is vitally important.

What Matters Most

Elaine Benton | Posted 25.09.2014 | UK Lifestyle
Elaine Benton

Most of us living with Parkinson's disease are on a cocktail of pills we ritually take each day. We can try to help maintain the dopamine levels to some degree by eating the right foods. A well balanced diet alone cannot of course replace Parkinson's medications, but ensures they work at an optimal level.

Acceptance of Chronic Illness

Hafsa Momin | Posted 12.09.2014 | UK Universities & Education
Hafsa Momin

It is known that acceptance of long-term chronic illness is seen as a substantial problem in patients with chronic illnesses. Absence of acceptance can lead to clinical improvements being delayed considerably. It can also lead to poorer adherence to the current and ongoing medical treatment. They may be branded and judged by others as being in denial.

Dear Instagram: I Love You... But You're Not a Doctor

Natasha Lipman | Posted 08.09.2014 | UK Tech
Natasha Lipman

For about five months, my 'writing about health' thing has moved over to Instagram. And while it is an amazing platform, it doesn't do justice to the complexity and importance of understanding the science and the why behind a lot of what I choose to do.

Parkinson's Is an Iceberg

Elaine Benton | Posted 27.10.2014 | UK Lifestyle
Elaine Benton

The on-line Parkinson's community is a great way of connecting through the Internet with others in the same boat. I was truly touched by a new contact I made with a fellow Parkinson's sufferer. My article this week is about an ordinary Joe, just like you and me, except his name is Kendall Lay and he is far from ordinary.

Spilling the Beans

Elaine Benton | Posted 13.10.2014 | UK Lifestyle
Elaine Benton

We have a special visitor from abroad with us at present, who is taking a much needed holiday. "Why is he special?" I hear you ask. Firstly we've know...

Herniated (Slipped) Disc

Elaine Benton | Posted 06.10.2014 | UK Lifestyle
Elaine Benton

I am typing this article in bed, on my laptop which has been precariously propped up, barely able to see the keys, I am determined to finish this piece. You may be wondering what on earth I've been up to. Sorry to disappoint you, but it doesn't take much to injure myself, and I wish I had an exciting fascinating tale to relate, but the truth of the matter is sadly quite pathetic.

The Diary of a Hermit: Chronic Fatigue Syndrome/ME

Sophie Eggleton | Posted 04.10.2014 | UK Lifestyle
Sophie Eggleton

The frequency of brain fog and general lethargy has made the task of writing this feature an arduous one, so on this occasion you will have to absorb my story from my video tale. Rather than a finely-tuned scripted speech, I decided to just press record and see what came out on the subject.

What Makes My Blood Boil?

Elaine Benton | Posted 07.09.2014 | UK Lifestyle
Elaine Benton

A person suffering a degenerative disease, no matter how well they cope, cannot in reality be upbeat and happy every single moment of each day. This would be impossible and an unrealistic expectation.

Looking Beyond Medicine: How I'm Fighting Chronic Illness With Diet

Natasha Lipman | Posted 09.08.2014 | UK Lifestyle
Natasha Lipman

I'm now on a plant based, gluten free, sugar free, high nutrient, anti-inflammatory, juice infused, smoothie obsessed, rotation diet. I very rarely eat anything out of a packet (even if it fulfils my diet criteria), and I spend most of my daily energy on preparing my food. I have slip ups (it's normal when you make such dramatic changes), but I know that what I'm doing is right for my body.

Atos to Leave WCA Contract Early

Stef Benstead | Posted 27.05.2014 | UK Politics
Stef Benstead

The government should take this opportunity to think very carefully about whether the WCA is the right assessment to continue with. At the very least they shouldn't bind the next government to lengthy contracts for delivering WCAs if that will hinder the opportunity to give the WCA the massive overhaul, even total replacement, that it very much needs.

Medical Cannabis

Elaine Benton | Posted 05.05.2014 | UK Lifestyle
Elaine Benton

I very much hope there will be a change in policy for the countries where medical cannabis is still illegal so that people suffering chronic illness can obtain the relief they rightly deserve. Why should chronically ill people suffer in silence, when there may be a solution at hand?

Rare Diseases Day: 16 Things You Know When Living With a Chronic Illness (or Three) In Your 20s

Natasha Lipman | Posted 28.04.2014 | UK Lifestyle
Natasha Lipman

So, today, on Rare Disease Day, I'd like to take the opportunity to share some quick things that millennials (ugh) living through their teens and twenties with chronic illnesses will know. I hope that this will serve to help people be more understanding and aware of what they can do to support their friends and loved ones who fight every day for their health.

Love Me, Love My Dog

Elaine Benton | Posted 14.04.2014 | UK Lifestyle
Elaine Benton

My dog has a face only a mother could love, she incessantly drools, snores loudly and smells (so I've been told). Due to Parkinson's I have no sense of smell, so it doesn't bother me! We have become inseparable and together 24/7 for over eight years; family and friends now know and accept, "Love me, love my dog"!

On Working With Chronic Illness(es)

Natasha Lipman | Posted 26.03.2014 | UK Lifestyle
Natasha Lipman

Three chronic illnesses that left me bed bound, feeling more ill than I had ever done in my life, and more and more depressed (which certainly didn't help the situation). I spent hours trawling the internet and asking people online how they were able to live 'normal' lives. That's all I wanted. I had had to give up jobs that I loved...

Parkinson's Keeps on Taking

Elaine Benton | Posted 24.03.2014 | UK Lifestyle
Elaine Benton

My worst nightmare is becoming a burden to my family, which I'm sure is in the back of many people's minds. No one wants to put loved ones through such difficulties and heartbreak. Why is it the people we love the most seem to be the ones who end up suffering? I am painfully aware my family, despite their smiles and good humour, encounter strains and difficulties due to my ill health.

How Are You?

Elaine Benton | Posted 17.03.2014 | UK Lifestyle
Elaine Benton

When people ask me "How are you?" I have to think twice, not because I don't know, but often am not sure what they want to hear. Some ask out of common courtesy, simply being polite, but would rather I answer "I'm fine thank you" than hear a long account; perish the thought of hearing the truth and understanding the full picture of living with chronic disease.

Falling on Deaf Ears

Elaine Benton | Posted 17.02.2014 | UK Lifestyle
Elaine Benton

I'm not sure how I've kept running at such a pace, being an advocate for both Gaucher disease and Parkinson's and it's hardly surprising my batteries are on an all time low. I am driven with unstoppable passion and commitment.

In the Midst of the Night

Elaine Benton | Posted 10.02.2014 | UK Lifestyle
Elaine Benton

Insomnia is most commonly thought of as both a medical sign and a symptom that can accompany many diverse illnesses, therefore the number of people suffering sleepless nights around the world is unimaginable. Insomnia is one of the annoying effects, those living with Parkinson's have to endure.

The Diary of a Hermit : IBS

Sophie Eggleton | Posted 10.02.2014 | UK Lifestyle
Sophie Eggleton

For the last ten years the structure of my day has been dictated by my busy bowels. I've always had a speedy metabolism, but these days my innards conduct themselves like an Olympic bobsleigh team. My daily schedule is controlled by my petulant paunch, and it's become necessary to assess every journey/task and appoint a risk factor.

Losing Confidence

Elaine Benton | Posted 03.02.2014 | UK Lifestyle
Elaine Benton

As Parkinson's (or any serious illness) progresses, it's easy to lose one's self confidence. When I was first diagnosed I immediately came across several people who had been living with Parkinson's for some years and therefore had already experienced many of the stages and symptoms that occur as the disease advances.

A Future for Health-Activism

Rupert Whitaker | Posted 30.01.2014 | UK Lifestyle
Rupert Whitaker

In the fray, be aware and protect your biggest assets, which are integrity, transparency, authenticity, courage, cohesion, creativity, an acting on social values, ethical independence, a willingness to learn, and a lack of shame.

Faith? Please Cure Us of This Myth

Mik Scarlet | Posted 23.01.2014 | UK Lifestyle
Mik Scarlet

One Sunday one of our merry band was having his regular bedside Mass with his priest and his Mum, when the priest asked us all to join with them. When we all refused the way the priest replied to us has stuck with me throughout my life. "Well if you don't believe then you deserve to be sick. God is punishing you all for your lack of faith".

Parkinson's Problems We Don't Talk About

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

The stereotypic symptom of someone with Parkinson's is they merely shake. With today's wide array of medications, the shaking can be brought under control to some degree, but there are many more rotten symptoms.