If you're unfamiliar with UC, it's a chronic and unpredictable bowel disease (often mistaken for IBS) which can vary in severity and symptoms from patient to patient. The symptoms are gross and painful, but the disease itself is almost invisible. Whilst I look remarkably well, I'm actually screaming on the inside (kind of like Rose at the beginning of Titanic).
Waking up and being in pain straight away is beyond depressing and demoralising, but I'd always pick this one over being woken up by the pain. Both options are so tough, lonely, and exhausting, though. They also feel indescribable. Words somehow just don't do being-in-constant-severe-pain justice at all.
There is an old saying that you can't pour from an empty cup, but I was shocked at how quickly my ability to support my son was compromised. Something as basic as not eating properly, or sleeping a full night, hell, even something as small as not having open access to hot drinks, add up fast; which I learned to my cost once we moved to the children's ward.
Alongside daily experiencing the debilitating symptoms of the condition, such as muscle pain, intense fatigue and cognitive impairments, those who suffer with ME also have to fight even to have it recognised. Here are four of the most common issues in the diagnosis, and treatment, of this life altering condition.