Chronic Illness

Please Don't Stop Inviting Your Friend With Anxiety

Anna Gaunt | Posted 25.04.2017 | UK Universities & Education
Anna Gaunt

Don't give up on your friend who cancels plans last minute. Don't confirm the overwhelming worries that may be preventing them from coming in the first place. I know how frustrating it is, but please don't stop inviting your friend with anxiety.

Transgender And Can't Transition - The Struggle Of Chronic Illness And Trans Identities

LJ Ferris | Posted 19.04.2017 | UK Lifestyle
LJ Ferris

Every man is a taunt of who I could be. Every "ladies" directed to me is a reminder of the body that betrays me. I feel the stab of jealousy for signs of masculinity that I won't have; well fitting suits and strong shoulders. I don't know what it is, I don't know if it is that I hate being feminised and viewed as a woman so much.

10 Things You Should Know if Your Other Half Has Inflammatory Bowel Disease

Anna Gaunt | Posted 18.04.2017 | UK Universities & Education
Anna Gaunt

There seems to be few people in this world who can deal with having a partner with a chronic illness. Thank you for making us feel like less of a burden. Thank you for making us feel like the amazing people that we actually are! Thank you for loving us. We will love you endlessly in return.

More Seizures And Epilepsy Awareness

Katy Mann | Posted 13.04.2017 | UK Lifestyle
Katy Mann

It's been a rather eventful couple of weeks here. I posted on Facebook that I made it to school without my wheelchair one day. Oh how the universe laughed at me. It's all been downhill ever since. My seizures have been terrible the past two weeks.

Please Don't Endo Our Friendship

Holly Leppard | Posted 29.03.2017 | UK Lifestyle
Holly Leppard

I am absolutely thrilled to see the recent media exposure of Endometriosis, a chronic condition that affects nearly two million women in the U.K. My...

Mother's Day With A Chronic Illness

Katy Mann | Posted 24.03.2017 | UK Lifestyle
Katy Mann

We went out for lunch on Sunday as an early Mother's Day treat and I almost face planted my lunch. A coat strategically placed on the table meant I could have a nap while eating. There's no choosing when I sleep, it's when my body allows me to stay awake. My social skills aren't great though!

Dealing With An Epilepsy Diagnosis

Katy Mann | Posted 17.03.2017 | UK Lifestyle
Katy Mann

So the purpose of this blog is to see the funny side of life. Life may be very difficult right now but I still have my sense of humour. I can only compare my life at the moment to one of a slug. I spend most of my time horizontal and moving slowly from room to room. The difference is I have arms so while I may feel as useless as a slug right now I still have the ability to type.

What People Say When They Realise I'm Not Going To Get Better, And What I Want To Say In Return (But Rarely Do)

Dave Meldrum | Posted 03.03.2017 | UK Lifestyle
Dave Meldrum

I live with the debilitating and incurable Ankylosing Spondylitis. It's a chronic disease which means it's not going anywhere, isn't going to kill me but does make life very, very hard. My pain can, on a very bad day, reach the level of childbirth without the obvious prospect of new life at the end of it

What Chronic Illness Looks Like Behind Closed Doors

Amani Omejer | Posted 16.02.2017 | UK Lifestyle
Amani Omejer

Living with chronic illness is lonely as fuck. I spend so much time on my own -- more time than I ever expected to spend on my own, or have ever wanted to. There is so, so, much of my life that people don't see.

Broken Not Rubbish: A Near Death Experience That Changed Us All

Daniel Singleton | Posted 15.02.2017 | UK Lifestyle
Daniel Singleton

My wife has suffered through many things- and I will be the first to admit some of that suffering must be as a result of being married to me! Nevertheless, she has been able to turn those trials into something good - in fact one has been turned into something quite beautiful.

Mind The Gap: How Descartes' Philosophy Is Hurting Healthcare

Laura Elliott | Posted 27.01.2017 | UK
Laura Elliott

It's fair to say that most of us don't consider René Descartes to play an important role in our day-to-day lives. Yes, he gave us 'I think therefore ...

Looking Up When Your Body Is Down

Swatee Jasoria | Posted 27.01.2017 | UK Lifestyle
Swatee Jasoria

Even when we do all the right things, like sleep eight hours a day, eat well and exercise regularly, sometimes we just get sick. We can't help it. When and how we get ill is not necessarily in our control, but how we deal with it is.

I Wish I Had Cancer

Dave Meldrum | Posted 18.01.2017 | UK Lifestyle
Dave Meldrum

A.S. is a chronic, incurable, probably degenerative disease in the arthritis family affecting my spine, neck and other joints. It leaves me with daily flu-like fatigue. I have had these symptoms sporadically from the age of 20. Every day since I was 27, my first year of marriage. I am 43 years old.

Living With Chronic Illness: Why The Holidays Are Hard

Amani Omejer | Posted 04.01.2017 | UK Lifestyle
Amani Omejer

There's something particularly challenging about Christmas time. It's a marker in the calendar that is unavoidable. I can dodge (well kind of dodge) other times of year that are particularly difficult.

Five Tips For Surviving A Chronic Illness Christmas

Louise Marie Smith | Posted 20.12.2016 | UK Lifestyle
Louise Marie Smith

I'm a hardcore Spoonie. In the Chronic Illness Community, a Spoonie is someone with a long term illness who has to really watch their energy expendit...

Five Ways You Can Help Someone Suffering With Ulcerative Colitis

Kate Crudgington | Posted 13.01.2017 | UK Lifestyle
Kate Crudgington

If you're unfamiliar with UC, it's a chronic and unpredictable bowel disease (often mistaken for IBS) which can vary in severity and symptoms from patient to patient. The symptoms are gross and painful, but the disease itself is almost invisible. Whilst I look remarkably well, I'm actually screaming on the inside (kind of like Rose at the beginning of Titanic).

Reimagining A Life

Laura Elliott | Posted 21.11.2016 | UK Lifestyle
Laura Elliott

There's an odd permeation of feeling that happens when illness creeps into a life. It's a strange feeling to understand, both from within the illness and outside of it, but it's an even stranger undertaking to try and articulate that change.

Living With Chronic Illness Is Relentless

Amani Omejer | Posted 14.11.2016 | UK Lifestyle
Amani Omejer

Waking up and being in pain straight away is beyond depressing and demoralising, but I'd always pick this one over being woken up by the pain. Both options are so tough, lonely, and exhausting, though. They also feel indescribable. Words somehow just don't do being-in-constant-severe-pain justice at all.

Living With Chronic Dizziness: Diagnosis And Treatment

Laura Elliott | Posted 26.10.2016 | UK Lifestyle
Laura Elliott

Since then I've suffered from dizziness every day, and I know first-hand the ways in which my horizons have suddenly grown smaller, as even simple tasks can leave me overwhelmed, or worse: clinging to a wall in an attempt to stop the room from spinning.

Invisible Illnesses - How Do We 'Visibilise' them?

Rebekah Wolkind | Posted 30.09.2016 | UK Lifestyle
Rebekah Wolkind

Having an invisible illness is at its most scary and lonely because of how unsafe it feels. Diabetics suffering a hypoglaecemic episode are often mistaken for being drunk (slurred words, dizziness, shakiness, irritability sweating). But untreated low blood sugars can kill you.

Superhuman and the Rest of Us: The Paralympics, Disability and Problems With the Media

Natasha Lipman | Posted 19.07.2016 | UK Sport
Natasha Lipman

As much as I am so happy to see disabled people portrayed in such a positive and innovative light (aka just like everyone else, doing the things that anyone would do...shock horror...) my heart also sunk.

Why the F**k Should I Have to 'Perform' My Disability to Be Believed? And Other Thoughts

Natasha Lipman | Posted 04.07.2016 | UK Lifestyle
Natasha Lipman

Because sometimes a sweary list is what's needed when living with a chronic illness gets too much... Why the fuck should I have to "perform" my disability for someone to believe me?

How I Overcame Paralysis And Hitting Rock Bottom

Charlotte Elizabeth | Posted 20.06.2016 | UK Universities & Education
Charlotte Elizabeth

Today I live to know the secret to what I wish I had known before, that we cannot stop our fears from happening, but we can learn to live beyond our fears, to use them as our greatest catalyst and to fight each day for our fears fear - our dreams.

Five Lessons on Having a Child in Hospital

Natasha Batsford | Posted 29.05.2016 | UK Parents
Natasha Batsford

There is an old saying that you can't pour from an empty cup, but I was shocked at how quickly my ability to support my son was compromised. Something as basic as not eating properly, or sleeping a full night, hell, even something as small as not having open access to hot drinks, add up fast; which I learned to my cost once we moved to the children's ward.

Lyme Disease - Just A Minor Bite Or A Major Epidemic?

Janice Haddon | Posted 27.05.2016 | UK Lifestyle
Janice Haddon

You can try to protect yourself by wearing long sleeves and trousers tucked into socks if you are out in nature. Use a good repellent and carry a tick remover with you. There is more advice on the Lyme Disease UK site.