Cystic Fibrosis

"I texted a close friend: 'Sammie is less than five years from 31.' And then I broke down."
My cystic fibrosis means, at 21, I feel pressure to achieve and experience everything I can while I have time. A year shielding indoors is the exact opposite of that.
I will never know or meet the person whose lungs I received, but I do know that they are the most significant and inspiring person in my life today
Most people couldn’t imagine their life hanging in the balance aged 27 but a little over 18 months ago this was my reality.
We have done everything we were supposed to as citizens and parents. And yet our child could die needlessly young because the NHS won't pay for lifesaving drugs freely available elsewhere
The drug could benefit thousands of people in the UK.
'Just because you can’t see it, or because I’m fine sometimes, doesn’t mean it isn’t real.'
'It’s not as shocking for you as it is for us cystic fibrosis mums and dads.'