We cannot rely on charities: this needs to be a top priority for our Government and we need to find ways of working together to address this issue. It's no good having policy in place if it is not put into practice. The system needs to be overhauled and fast, if we are to provide the care and support that all disabled children and their families deserve.
Every person with a long term condition should access the care they need when they need it - it is not acceptable for people with very serious conditions like MS to face a merry go-round of decision-making where no service will take responsibility for the care they need. Or for the assessments they receive to be used an opportunity to reduce their care, telling them that they are simply someone else's responsibility.
Home matters, it can be an expression of independence, important to our sense of wellbeing and critical to our health. Where we live should be a choice at every stage in our lives. But for those who have complex care and support needs that choice is all too often denied, confused with the package of care, and loss of control.
It's been a long nine months for the NHS since the Francis report was published. As if the terrible and unnecessary suffering at Mid-staffs wasn't enough, numerous other scandals have come to light all across the country, continuing to damage the reputation of what we like to think of as a national treasure.
The moral imperative to root out ageism in the NHS now has legal backing, following the recent expansion of the age-related provisions of the 2010 Equality Act to include services. All public sector organisations must eliminate unequal treatment on the grounds of age. But where do we start in cancer care?
What we're asking for is simple. Once budgets are set, we want local authorities to clearly spell out how much money they're planning to spend on mental health, and every other aspect of social are in their area. We want them to present this information in a way which ordinary people can understand, and we want them to make it easy for people to access.