Thankfully over the years great progress has been made regarding Gaucher disease, thanks to some very dedicated researchers, doctors and motivated members of the Gaucher community. No parent today has to face the dreadful isolation and hopeless situation my parents found themselves in.
A drone is the vessel of contemporary warfare that most effectively proliferates destruction. To take the ultimate unmanned weapon and find a way to use it to promote the human rights of women is radical.
For too long, the world has tolerated widespread violence against children that leaves millions of children unsafe in their homes, schools and communities, presenting a significant barrier towards reaching overall development aims. Chad, for example, has the third highest rate of child marriage in the world. Child marriage often compromises a girl's development by resulting in early pregnancy and social isolation, interrupting her schooling, limiting her opportunities for career and vocational advancement and placing her at increased risk of domestic violence... The future of countries like Chad depend on us ensuring that the promises we make to the world's children in September are upheld, and that we fulfil our commitment to ensure that no child is left behind, no matter their circumstance.
Please put yourself in the position of the disabled people who are losing their ILF support, understand how fearful they are about the future and join them to say no, that's enough. This is one cut we really do not need to carry out. Ask your MP to reinstate the ILF and give dignity back to those disabled people who require a high level of support. It's not too much to ask.
Had the corporation kept BBC3 on television - where the audience can easily access it - it would have a stronger fighting chance. There is so much content the BBC produces but not all of it gets an evening television slot. Imagine a TV channel that repurposes the videos from Radio 1's Live Lounge, the extensive archive of live festival coverage, and productions by independent writers and producers... But what do I know?
Now that the safety net of local welfare support has shrunk and we face many more ominous cuts, who knows what the current state of poverty looks like now or what these figures will be by 2020? All I can say for sure is so long as this constant level of need remains, we will continue to provide for those who need support most.
I thank everyone of you everyday for what you have all done for our little princess. It's been a long journey - but finally we are starting to look towards the future. And it's a future where Bethany can start to feel better and we can enjoy our time as a family together.
I'm currently writing my final thoughts from Poland. We're at Kasia's parents before returning to the UK. It's proving difficult to digest what we just did, what it meant for us, and the project. Here's my attempt nonetheless.
'You kick like a girl'... from unfounded insult to accolade in a matter of weeks. Why? Because thanks to the FIFA Women's World Cup and the BBC's coverage of it, more audiences have been able to watch or listen to, enjoy and celebrate women's football than ever before this summer. Steph Houghton and her England teammates have certainly been putting on a show in Canada...
This group has been invaluable in helping me come to terms with my post-surgery body. Being part of this community I know I am not "militant" as one of the hospital nurses described me, but just a woman who was absolute in her resolve to avoid any additional surgery. For me, getting back to normal life after cancer is not about getting a new breast but getting as healthy as possible, as quickly as possible. The truth is I have lost my breast to cancer and no surgery will replace it.
Today the Angry Birds are a little bit angrier. The characters that have become a worldwide gaming phenomenon are flapping even more furiously because 58million children are not in school and learning. Rovio Entertainment, the Finnish creator of Angry Birds, has added a huge boost to the #UpFor School campaign by launching a new tournament where players are asked to sign the petition going to global leaders. It demands that every child has the right to go to school and already has the support of seven million people worldwide.
I would like to suggest that when the coalition government came into power in May 2010, there was a major shift in the way many sick and disabled peop...
Channel 4 is a mainstream TV channel and I think overall it is good that they have a series that has helped to show positive stories of people with a disability. It is a shame if the BMA can not see this. However, it should not just be on dating shows, what we really need is to have more people with a learning disability in all types of shows.
If this happened in the UK there would be a national outrage but in Pakistan there is something of a twisted inevitability to this kind of disaster which is becoming almost an annual occurrence in recent times.
There is encouragement and gratitude born when looking back on a life shift to see the pieces that created the first steps. Sometimes it is one large event that forces a redirection and other times it is a subtle series of events that can often be overlooked when viewed on their own.
Instrumental quite rightly reminds us that no matter how offenders try to excuse their appalling behaviour it is never the child's fault - the survivor has absolutely nothing to apologise for. But the road to recovery is frequently bumpy, sometimes tortuous but always worth the journey, which is why we need far more investment in therapeutic and mental health services.