I do not want Theo and Oskar to die before me. No, I want them to live far beyond me, to experience all of life, its many facets and stages. What sustains us, Klara and I, is trying to realise this, to do all we can to ensure they, and other Duchenne boys, lead long and full lives...
On 30 June the Independent Living Fund will be abolished, pulling the rug from under the 18,000 people with particularly high needs who rely on it to remain in their own homes. This cruel cut will not only make it even more difficult for disabled people to participate in their communities and go to work, but could even force some into residential homes. Today the Green Party's Work and Pensions spokesperson Jonathan Bartley joins Disabled People Against Cuts to lobby parliament in a last-ditch attempt to save this vital fund. Perhaps meeting those who depend on this support face to face might persuade MPs to change their minds. But this is just one telling example of the government's attitude towards disabled people.
I do not doubt the motives of those who are pressing for legislation of this nature but I believe they are profoundly mistaken in believing that such practices can be controlled and vulnerable people protected from harm. We should wake up before it is too late.
I believe that the global apparel industry can lead change. If companies know how and where their products are made, they can take the steps needed to create fair and safe conditions for workers worldwide.
We must try to find sustainable long-term strategies which will address the underlying problems and help people to stay where in almost all cases they would rather be, namely their own home country. As the conflict continues in Syria, it should be acknowledged that the UK has committed £800million of support in response to the humanitarian crisis, including food, medical care and relief items to people in desperate need in Syria and in the region. But safe and properly organised routes to humanitarian protection, for those who really need it, should also be part of the response.
Busking at its heart is about democratic access to public space. A busker turns up on a public highway and performs for the passersby, and they can either show their appreciation or just walk on by. Busking has the capacity to create a sense of urban community and make public spaces more welcoming. I quickly understood that Liverpool's plans were a direct attack on all that was great about the busking tradition and so I set up my first petition on Change.org...
Clearly, promoters and venue owners who embrace accessibility are attracting a whole new audience, eager to join their friends and share their passion. In fact, these days, I hardly recognise anybody on the viewing platforms - which is perhaps the ultimate sign of progress.
When Change.org launched in the UK, we did so with the belief that by giving anyone the campaigning tools that big organisations have, people would win change on their own terms. But we've also learnt that when small campaigns come together they are greater than the sum of their parts.
Raising awareness and tackling this intersecting discrimination is at the heart of the Loomba Foundation and International Widows Day. Through our ongoing advocacy and programme work, we give women the skills they need to survive on their own and support their families.
With the prospect of Rob Marris MP's private members bill bringing the possibility of legislation to legalise 'Assisted Dying' back on the table, the question must be asked, does the general public really understand the implications of what this means for everyone involved?
A couple of weeks ago, I attended the Results UK, National Conference, where the theme was on the post-2015 agenda. Fittingly, with the proposed targe...
Together, we must fund relentlessly, collaborate profusely and campaign effectively until breast cancer ceases to take the lives of the women that we love. Our promise is to tackle the disease from all angles: to prevent it developing, to detect it earlier and to improve the quality of treatment and services for women living with it.
If customers better understood the differences in quality between cheap, low quality, throwaway items versus better quality and longer-lasting but higher-priced garments they may become more inclined to buy fewer but better clothes. And it may cost them no more.
Some parents, deciding they simply can't afford to keep their children, take them to the hospital and leave them there. Others are so broken by the stress of the financial crisis that they can no longer care for their sons and daughters.
Faced with 59.5 million forcibly displaced people also forces the world to reconsider how we position ourselves in creating a future that does not become a holding pattern for misery, but rather a movement where we make the best of what we have.
Leading campaign group NoToDogMeat have been actively trying to stop the horror of this summer's solstice of greed and barbarism. For a moment it looked like we were about to meet with success as it was hinted that it was to be banned this year. However it has already started.