Locked in Syndrome

You've Got Competition Ariana, I'll Keep Trying!

Kate Allatt | Posted 12.06.2017 | UK Lifestyle
Kate Allatt

We were invited to talk about the recovering brain to a sold out paying audience - that's a first for me! (Ok, so it was only £8 a ticket, but that was the closest I'd get to being like my new guilty pleasure, Ariana Grande!!)


Henning van der Hoeven | Posted 18.04.2017 | UK Lifestyle
Henning van der Hoeven

Although my situation (not being able to move and do things for myself), I still have people around me to do it all for me. I do not have to rely on the compassion of others to survive. Not everyone is so lucky.

How Helping Others Helps My Wellbeing

Kate Allatt | Posted 03.04.2017 | UK Lifestyle
Kate Allatt

I believe when we give kindness to others we can heal (or improve) our own mental illness. After my much-hyped 1.5km run, I hit rock bottom emotional...

I Woke Up From A Coma Locked-In My Own Body

Kate Allatt | Posted 22.02.2017 | UK
Kate Allatt

life less ordinary banner I over thought 24/7, seven days per week and felt horrific anxiety and fear. Fear that my husband may be encouraged to switch off my life support machine in the early days. I also suffered severe boredom, sleeplessness - because you slept out of boredom during the day - and experienced graphic hallucinations, that no one warned me or my family about. I was scared shitless of dying, then at other times, I wished I could physically pull the plug on my own life support machine.

Ice Cold, Heartwarming Wedding Day

Kati & Henning van der Hoeven | Posted 09.02.2017 | UK Lifestyle
Kati & Henning van der Hoeven

More than once I have been asked: what I have that normal healthy woman don't. Well, the answer is a positive attitude and a smile. It is as simple as that. I am also asked very often if I do hope on a miracle. To tell the truth, the miracle has already happened.

Who Is Kati?

Henning van der Hoeven | Posted 28.12.2016 | UK Lifestyle
Henning van der Hoeven

Kati is my wife. Kati is the young woman who suffered a stroke in 1995 and since that has been almost entirely paralyzed. Kati is a woman that has spent almost her entire adult life trapped inside her body. Kati is also the person that knows how to enjoy life at the moment to the fullest making the most of each and every day.

Coming Home

Henning van der Hoeven | Posted 01.11.2016 | UK Lifestyle
Henning van der Hoeven

my mother's birthday. The doctor called my parents in to break the news to them. "From the brain scans, we can see that your daughter's lower brain area is completely gray." "Our conclusion is that she had a stroke," "I am sorry to inform you this, but the brainstem is so severely damaged that she would not be able to move voluntarily at all for the remainder of her life."

Never Give In

Henning van der Hoeven | Posted 19.10.2016 | UK Lifestyle
Henning van der Hoeven

I've long told bemused friends that I'm not afraid of being haunted and that I actually think it would be quite cool if it happened. Whilst some say that they would rather die themselves than be visited by the dead I don't see what all the fuss is about.

Misery Is Not a Reality

Henning van der Hoeven | Posted 08.08.2017 | UK Lifestyle
Henning van der Hoeven

My name is Kati. I had a stroke in January 1995, and I have been almost entirely paralyzed with no meaningful movement or able to talk since. I have Locked-In Syndrome, I am trapped inside my body. Let me share a little secret with you;

misery is not a reality; it is a state of mind.

Man Who Was Trapped Inside His Own Body For 12 Years Tells His Story

The Huffington Post UK | Ryan Barrell | Posted 14.01.2015 | UK Lifestyle

A man who experienced Total Locked-in Syndrome for 12 years has given a devastating account of his painstaking desire to be noticed, to be heard, and ...

You Can Control Google Glass With Your Mind

The Huffington Post UK | Thomas Tamblyn | Posted 10.07.2014 | UK Tech

Google Glass can now be controlled with your thoughts thanks to a futuristic new accessory called MindRDR. The MindRDR allows you to take pictures,...

Locked-In Sufferers Take 'Right To Die' Case To Highest Court

The Huffington Post UK/PA | Posted 25.01.2014 | UK

Locked-in syndrome sufferer Tony Nicklinson's widow and a paralysed road accident victim take their "right-to-die" battle for a change in the law to t...

Things the Future Will Hate Us For: #1

Ben Gwalchmai | Posted 11.11.2013 | UK
Ben Gwalchmai

We know we're on the cusp. As a species, we almost always are. But in the beginning of the 21st century - as everyone's favourite ex-rocker scient...

"He Was Gutsy, Determined And A Fighter To The End"

The Huffington Post UK | Jessica Elgot | Posted 22.08.2012 | UK

Tributes have been paid to locked-in sufferer Tony Nicklinson, who died "peacefully at home" after contracting pneumonia. His daughter Laura tweete...

Crossing the Rubicon: Tony Nicklinson's Assisted Suicide

Clare Johns | Posted 18.08.2012 | UK
Clare Johns

I knew that Tony's was the first right-to-die hearing of its kind. Whereas previous cases have clarified the law on the assisted suicide, Tony's case goes further - it represents a fundamental challenge to the law on murder. "The court", says Mr Justice Charles, who allowed Tony's case to proceed, "is being invited to cross the Rubicon."

'Let Our Dad Die' - One Family's Fight for Assisted Dying

Sally Beck | Posted 17.08.2012 | UK Lifestyle
Sally Beck

'We're fighting for the right for Dad to die. Everything that we want we want to be regulated and to be strict, it shouldn't be easy. It should be really difficult to make sure that people aren't being coerced, that people are of sound mind and that it is what people want to do, but it should be possible.'

Doctor Who Saved Tony Nicklinson: 'It Was A Mistake Keeping Him Alive'

The Huffington Post UK | Posted 18.06.2012 | UK

A Greek doctor who saved the life of a British man in Athens has said he made a “mistake keeping him alive”. Tony Nicklinson suffered a stroke...

'Hello World!' Locked-In Syndrome Tweets For First Time

PA/The Huffington Post UK | Posted 14.06.2012 | UK Lifestyle

A locked-in syndrome patient has been captured on film tweeting for the first time. Tony Nicklinson, who seven years ago had a major stroke that le...

VIDEO: Locked-In Syndrome Patient Tweets For The First Time

PA/The Huffington Post UK | Posted 14.06.2012 | UK

A locked-in syndrome patient seeking permission for a doctor to end his life in the High Court has been captured on film tweeting for the first time. ...

'I Have No Privacy Or Dignity Left'

PA/Huffington Post UK | Posted 12.05.2012 | UK

Tony Nicklinson was a "very active and outgoing man" before tragedy struck when he suffered a stroke while on a business trip to Athens in 2005. It...

Right-To-Die Case To Be Heard, High Court Rules

PA/Huffington Post UK | Posted 12.03.2012 | UK

Legal action brought by locked-in syndrome sufferer Tony Nicklinson, who wants a doctor to be able to end his "intolerable" life lawfully, can go ahea...

Judge To Rule On Right-To-Die Case

PA/Huffington Post UK | Posted 12.03.2012 | UK

A High Court judge is to give his decision on whether a case brought by Tony Nicklinson, who suffers with "locked-in syndrome" and wants his "sufferin...

High Court To Hear 'Locked In' Man's Suicide Bid

PA | Posted 23.03.2012 | UK

The case of a severely-disabled 57-year-old man who wants a judge to allow a doctor to "lawfully" end his life reaches the High Court today. Lawyer...