rare diseases

When Rylae-Ann was three months old, we saw signs that all was not right.
"I hated every single thing about this insidious disease ... I would have given anything ― my home, my limbs, my life ― to banish it. But its tentacles were too strong."
'I just really want to know what I’m suffering from.'
'On her last day with us, Ella suddenly had this extraordinary burst of life.'
'He deserves a normal life just like any other kid'
Serena Jacques' suffers from short term memory loss.
'I don’t want to look perfect, just normal.'