Special Needs

Defending Parent Bloggers

Kelly Kemp | Posted 17.01.2017 | UK Parents
Kelly Kemp

I write to keep those that care about us updated about Tink's progress (or not, as the case may be!). I write to share the funny things she does, the little things that amaze me or worry me. She's awesome and I want the world to know!

Five Things Parents Of Autistic Kids Wish People Wouldn't Say!

Kelly Kemp | Posted 12.01.2017 | UK Parents
Kelly Kemp

Of course, the vast majority of people are well-meaning, but, unless they have personal experience, it can be difficult to know what to say, how to react to the news. There are several things that people will say to parents when they hear of their child's diagnosis - here are some examples and suggestions of things to try instead!

Special Needs And The 'C' Word...

Michala Dominey | Posted 15.12.2016 | UK Parents
Michala Dominey

When your bundles of joy enter the world, most people have a wonderful vision of what parenthood will be like -- how you'll capture every moment on camera, fill out every section of the baby's year book and spend Christmases savouring every beautiful moment.

Acceptance

Laura Rutherford | Posted 09.12.2016 | UK Parents
Laura Rutherford

Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.

What's In A Word?

Laura Rutherford | Posted 10.10.2016 | UK Parents
Laura Rutherford

Words can be powerful. They can bring joy. One word can change someone's day - life even. But in the same speed in which they can bring happiness, the...

Who Am I?

Vikki Hammond | Posted 12.09.2016 | UK Parents
Vikki Hammond

I am your voice, I do these things because I want the best for you. I want you here with me for as long as possible. Although what you have gone through is hard, and every day is a battle. I need you, here with me. Because without you I am nothing, I am no one. But with you I am your mum x

From The Heart, A Letter To My Children

Vikki Hammond | Posted 26.08.2016 | UK Parents
Vikki Hammond

Bailey summed it all up for me one day in the car.. "Mummy we are so lucky to have Kai, just think some people never get to experience someone like him. We are very lucky." With that sentence I felt my job was done, Kai has brought more joy into your life's than I could ever imagine.

Comparison Is the Thief of Joy

Laura Rutherford | Posted 27.07.2016 | UK Parents
Laura Rutherford

A child who is mentally 12-14 months old in a four-year-old's body is normal to us. But it's difficult for others to understand when his disabilities are - at first - invisible. Because he appears to them to be a typical four-year-old boy. I suppose, apart from the occasional what ifs, this is the hardest part. When other people get it, it's truly a real tonic.

Shake It Off (Or Alternatively Fetch the Imaginary Voodoo Doll)

Laura Rutherford | Posted 11.07.2016 | UK Parents
Laura Rutherford

When it comes to pass-remarkable comments to do with my parenting, I've tended to let them go in the past (okay, I'll admit I may have fetched my imaginary voodoo doll once or twice...). Let's be honest, pretty much all parents encounter them every so often, be it for giving in to a tantrum "too easily" or co-sleeping on a bad night.

Simple Things That Help SEND Parents

Laura Rutherford | Posted 07.07.2016 | UK Parents
Laura Rutherford

There are many things I could list that make life for me that little bit easier as a SEND parent - from Firefly shopping trolley seats and adequate Ch...

Why We Need Supermarkets to Sell Bigger Nappies

Laura Rutherford | Posted 28.06.2016 | UK Parents
Laura Rutherford

When you have a baby one of the many things you don't expect to use indefinitely is nappies. You look in to the not so distance future and envisage *the joys of* potty training and eventually a nappy-free life.

Why I Value My Son's Multinational Carers

Suzanne Askham | Posted 28.06.2016 | UK Lifestyle
Suzanne Askham

My 20-year-old son has multiple health issues, and learning difficulties. He therefore needs 24/7 care. He lives, term-time, at an outstanding specialist college. He is looked after by a fantastic team of carers, or facilitators, who come from a whole range of different places, including England, South Africa... and, of course, Eastern Europe. Poland is high on that list.

Hello Epilepsy

Laura Rutherford | Posted 21.06.2016 | UK Parents
Laura Rutherford

When your child has epilepsy, it is a constant weight on your mind. Without fail, the moment that weight eases off, a seizure will happen - just to make sure you know it's still there. It's thoughtful like that.

What If Your Child Had a Rare Chromosome Disorder?

Arti Patel | Posted 13.06.2016 | UK Parents
Arti Patel

Imagine a scenario where that tiny little human life you created receives an earth shattering diagnosis. The doctors have no information about what it means or how it will affect your little one. Your family is left at the crossroads. You don't know where to go or who to turn to. What help will my child need? How can I get it? Where do I get information? Who can help me and my family? Why me, why us?

Six Life Lessons From the NICU

Alison Bloomer | Posted 26.05.2016 | UK Parents
Alison Bloomer

For every nine families that walk out of the door of the maternity wing elated yet flagging, one will spend time in the neonatal unit. And within each unit is this room. A room that if it could talk would tell you such tragic tales. That has witnessed the deepest depths of despair.

This Is What I Learned, Living in an Intensive Care Unit

Suzanne Askham | Posted 22.05.2016 | UK Lifestyle
Suzanne Askham

Recently I had the rare and shocking privilege of living in an Intensive Care Unit, or ICU, for three months. I was not a patient, nor a member of sta...

Eight Things I've Learnt About Life With an Undiagnosed Child

Alison Bloomer | Posted 28.04.2016 | UK Parents
Alison Bloomer

The 4th Undiagnosed Children's Awareness Day takes place on Friday April 29th. The aim is to raise awareness of undiagnosed genetic conditions and SWAN UK (syndromes without a name), the charity that offers support and information to families of children affected by these conditions.

Isn't it About Time We Stopped Treating Disability Issues as an Afterthought?

Stephanie Nimmo | Posted 28.03.2016 | UK
Stephanie Nimmo

Despite all the good words of the act and policies the reality of life is so different. Reasonable adjustments are not being made and all too often people with disabilities are being seen as a cost burden.

ADHD Is a Real Disability Not Just Childhood Immaturity

Alison Thompson | Posted 22.03.2016 | UK Parents
Alison Thompson

Some parts of the media generally pounce on any opportunity to declaim ADHD as made up, or bad parenting, or a money-making invention of pharma companies. And every time a story like this breaks, it makes life for parents like me - parents of a child with ADHD - that little bit more difficult.

To My Son: You Will Always Be You, Aspergers Is Just a Label

Stephanie Nimmo | Posted 16.08.2016 | UK Parents
Stephanie Nimmo

I remember when you were born, our first child, our boy, our son. We were filled with hopes and dreams for you, Daddy wanted you to be an Arsenal striker, fighter pilot and doctor all rolled into one (it's OK, he wasn't serious, well maybe not about the fighter pilot bit...). But what we wanted most for you was to be yourself.

Learning Disability? I Prefer to Call It Learning Ability

Stephanie Nimmo | Posted 22.07.2016 | UK Parents
Stephanie Nimmo

Learning Disability - ten years ago I had no idea what this actually meant. I could have probably quoted some textbook, meaningless phrase but the reality of life for someone with a Learning Disability - that was foreign territory for me.

To the Mother of the Baby With Special Needs - I Need You to Know These Things

Stephanie Nimmo | Posted 13.07.2016 | UK Parents
Stephanie Nimmo

For the mums who are starting out their journey, parenting a child with special needs, incase we don't bump into each other in the parent's kitchen here are the things I need you to know, from a mum who once was feeling the same as you...

Special Needs Mums Are Miserable Moaners With Greasy Hair

Alison Bloomer | Posted 29.06.2016 | UK Parents
Alison Bloomer

Obviously, I don't think that parents of children with special needs are miserable moaners with greasy hair. Well not always. As for the greasy hair, I mean it in the metaphorical sense. In the way that, because of our offspring, we are sometimes viewed to be a bit downtrodden, frumpy, burdened, the underdog, the one (gasp) who is not much fun to be around.

Mum Thanks TK Maxx Employee Who Didn't 'See Any Difference' In Her Son Who Has Down's Syndrome

The Huffington Post UK | Ellen Wallwork | Posted 06.07.2015 | UK Parents

A mum's message of thanks to a TK Maxx employee who made her shopping trip "less stressful" with a kind gesture to her son who has Down's syndrome, ha...

Are You Boarding the Special Needs Parent Train? Here, I've Kept You a Seat

Kate Shippey | Posted 03.06.2016 | UK Parents
Kate Shippey

Allow yourself time to grieve. Some people say that they feel like they've lost their child, that they have to get to know this other child who lives with them, and the changes that will occur in their lives.