Gaucher Disease

No Bucket List for Me

Elaine Benton | Posted 16.05.2013 | UK Lifestyle
Elaine Benton

So although like most people, I have a "bucket list" I decided being optimistic at heart, I would need to call my wish list something else that was more appropriate, and so I have a "Pink List". Why a "Pink List" you may well ask? Well if you are sitting comfortably then I'll tell you why pink became significant to me.

Tips & Ideas to Assist Disabled Persons

Elaine Benton | Posted 09.05.2013 | UK Lifestyle
Elaine Benton

There are many simple ideas and tips that I have picked up along the way from fellow sufferers, or have discovered by trial and error at home, and I'd like to share some of these with you. Anything that can improve your quality of life and maintain your independence to some degree has to be a good thing.

Sexuality and Disability

Elaine Benton | Posted 03.05.2013 | UK Lifestyle
Elaine Benton

A person suffering from a chronic disease or some form of disability, needs intimacy with their spouse or partner as much as anyone else. Being intimate brings a closeness to a couple and is a necessary part of a healthy relationship. Many patients, too embarrassed to talk about these matters, can end up suffering from a lack of affection and tenderness which is essential to us all.

Financial Burden of Ill Health

Elaine Benton | Posted 25.04.2013 | UK Lifestyle
Elaine Benton

Only disabled and chronically ill persons along with their families, know and understand first hand, how difficult life can be. Financial burden is an issue not often mentioned, since no one wants to admit openly the hardship that frequently goes hand in hand when a person is unable to work due to health reasons.

Parkinson's Awareness Month

Elaine Benton | Posted 18.04.2013 | UK Lifestyle
Elaine Benton

Parkinson's can affect anyone - it's not fussy, and doesn't discriminate, no matter whether you're old or young. I was diagnosed with Parkinson's at age 44, which at the time, I thought was very young. However since then I have met many other sufferers, some of whom have been diagnosed shockingly at a much younger age.

Shades of Parkinson's Continued

Elaine Benton | Posted 12.04.2013 | UK Lifestyle
Elaine Benton

Knowing when to offer help, lending a hand, and realising when to step back and allow a disabled person the dignity of managing by themselves is a fine line and not easy to judge. It is also difficult for the sufferer, as I'm a classic case of someone who hates asking for help, but in my present condition, many times I cannot perform a task, which is frustrating beyond belief.

Fifty Shades of Parkinson's

Elaine Benton | Posted 04.04.2013 | UK Lifestyle
Elaine Benton

If I could possibly colour code all the symptoms and side effects of Parkinson's, I think there would be far more than fifty shades! The symptoms are many; vary to such a degree, each patient is unique.

Speak Out

Elaine Benton | Posted 20.05.2013 | UK Lifestyle
Elaine Benton

Having two chronic diseases makes life quite difficult (and that's a British understatement if ever there was one!) Trying to keep both disease under ...

Disabled Friendly Home

Elaine Benton | Posted 06.05.2013 | UK Lifestyle
Elaine Benton

Being diagnosed with young on-set Parkinson's, trying to plan ahead, we realised our apartment overflowing with "character and potential" was in fact highly unsuitable for anyone with a disability.

Don't Let a Disease Define You

Elaine Benton | Posted 29.04.2013 | UK Lifestyle
Elaine Benton

When diagnosed with a disease such as Parkinson's that literally takes over your life and changes everything you could possibly think of, it's hard not to be enveloped by the enormity of the situation. However, don't lose your identity and let a disease define who you are.

What Triggers Parkinson's Disease?

Elaine Benton | Posted 23.04.2013 | UK Lifestyle
Elaine Benton

What causes Parkinson's? A frequently asked question, to which there is not yet a definitive answer. It is clear however, that some forms are hereditary, such as my case. I have my own theory - call it a gut feeling or an inner voice, but invariably I follow my instincts.

Frequent Hospitalisation

Elaine Benton | Posted 15.04.2013 | UK Lifestyle
Elaine Benton

Anyone living with chronic disease like myself, probably experiences frequent hospitalisation. I often wonder if there should be a special club, as with airline companies who have a frequent flyer card, hospitals could create a "frequent hospitalisation club".

Assistance & Companion Dogs

Elaine Benton | Posted 08.04.2013 | UK Lifestyle
Elaine Benton

Assistance and companion (therapy) dogs can provide a great deal of comfort to someone who is disabled or suffering a long-term illness. The positive benefits are tremendous, and a dog can be trained to perform many varied duties to help a person at home who is incapacitated.

Take a Glimpse Into My World

Elaine Benton | Posted 02.04.2013 | UK Lifestyle
Elaine Benton

I'd like to share with you a glimpse into the world of living with Parkinson's from a patient's perspective. Being diagnosed with any chronic degenerative disease can be a shock to the system. Accepting and digesting such news is very individual, and a process that covers a gamut of emotions.

Wheelchair Friendly Car

Elaine Benton | Posted 11.03.2013 | UK Lifestyle
Elaine Benton

We ended up visiting several different car showrooms (whose names I shall discreetly refrain from mentioning) but size and shape can be highly deceiving, and many cars we saw, at first glance appeared spacious, until we tried to fit my wheelchair in the boot.

The Happy Gene

Elaine Benton | Posted 03.03.2013 | UK Lifestyle
Elaine Benton

It would be very easy to slip into depression and wallow in self pity, bringing everyone down, but I absolutely refuse to let Parkinson's get the upper hand. I find it far more worthwhile to remain cheery, which keeps me going; boosting my family's morale and all those around me.

Appearances Are Deceiving

Elaine Benton | Posted 18.02.2013 | UK Lifestyle
Elaine Benton

Sitting in my wheelchair, my husband has been asked "how is she?", whilst I'm right next to him. This is highly insulting and hurtful to be talked about in the third party. "HELLO!" can they not see I'm right here, and have the decency to ask me directly how I'm feeling?

Inspiration

Elaine Benton | Posted 27.01.2013 | UK Lifestyle
Elaine Benton

The growing number of young people being diagnosed every day with Young Onset Parkinson's is astonishing. I was diagnosed at age 44 and at the time I thought this was very young, but since then I've been in contact with many fellow sufferers, some of whom were diagnosed in their twenties! Suddenly 44 doesn't sound so young!