29/11/2013 06:06 GMT | Updated 22/05/2015 06:12 BST

'My Son Was Smiling And Waving In The Scan'. Mum Declined Abortion To Spend Nine 'Magical' Hours With Disabled Newborn Son

Mum declined abortion at 24 weeks to spend nine magical hours with baby son

Jeremy Durkin

A young mum has told how a 3D scan of her disabled baby convinced her not to abort him.

Katyia Rowe, 26, had been told by medics that her little boy, Lucian, was severely disabled and would never walk or talk, but when she saw him blowing bubbles and waving his arms during a 3d diagnostic scan, she made the decision to continue with her pregnancy.

A scan showed the abnormalities at 20 weeks, and revealed that Lucian's brain had not developed properly. Katyia describes her previous scan, at 12 weeks, as 'wonderful' and says that she and her partner Shane Johnson had assumed everything was fine and that the pregnancy was progressing normally.

When further tests were carried our via a real-time 3d scanner after the devastating 20 week results, the couple were amazed to see their son 'smiling' and active in the womb, and made the decision to continue with the pregnancy.

"Despite all the awful things I was being told, while he was inside me his quality of life looked to be wonderful and no different to any other baby's, he was a joy to watch," Katyia told the Daily Mail.

"I was told he would never walk or talk yet the scans showed him constantly wriggling and moving. As I watched I knew that while I was carrying him he still had a quality of life and it was my duty as a mother to protect that no matter how long he had left, he deserved to live."

Deciding that as long as Lucian was pain free, Katyia said she 'vowed to let him enjoy his life both while inside me and outside, no matter how long that be'.

"Not knowing how long he would live meant we were determined to enjoy him for as long as we could. We learned he loved the shower and would kick when I sprayed the water on my tummy," she explained.

"As he grew bigger I could see his little feet and hands prodding through my bump when he wriggled. He may not have been born but he was already our son and I took each movement as a sign we had done the right thing."

Baby Lucian could not swallow the amniotic fluid surrounding him because of his disabilities, so Katyia endured painful draining procedures in the last nine weeks of her pregnancy - something people questioned.

"It was agony and I knew some people questioned if it was worth putting myself through all this for a severely disabled baby that may not live for long," she admits.

"As a mother you will do anything for your child and for me I became a mother as soon as I fell pregnant, that job had started already."

Lucian was born on October 23rd last year at the Royal Shrewsbury hospital. He was assessed in the special baby care unit, but staff soon warned his parents that he did not have long to live.

"I was prepared not to be taking our baby straight home like all the other new parents, but beyond that I didn't know what the future held," Katyia said.

"I was shocked but we had already decided that after his birth we would let Lucian lead the way. I didn't want him given any unnecessary treatment if ultimately it wouldn't help him."

Katyia was able to cuddle her little boy, and introduce him to his grandparents before he passed away.

"He had already given me the greatest honour of being his mummy for the last nine months. It was up to him now if he was ready to go," she said. "It was without doubt the happiest moment of my life. Lucian could have died at any time in my womb but he held on long enough for us to meet properly."

The family are now raising funds for the Sands charity in Lucian's memory.