14/08/2014 16:56 BST | Updated 22/05/2015 10:12 BST

Rare Condition Means 6ft 10in Teenager May Never Stop Growing

Rare condition means 6ft 10in teenager might never stop growing

A teenager is the first person in the world to be diagnosed with a condition that means he might never stop growing.

Josh Gott, 18, from Stockton-on-Tees, is already 6ft 10in and suffers from a rare condition which causes dramatic and sudden spurts of growth.

His mum Sharon Elston, 44, is mystified by her son's condition, especially given the fact that she is just 5ft tall and his dad is only 5ft 4in. She has spent years trying to find out what's wrong with Josh and has now been told by scientists he has a chromosomal disorder.

It causes Josh, of Stockton-on-Tees, to have rapid spurts of growth - which normally last around two weeks and can see his height rise by as much as two inches.

And sadly, it is so rare that little is known about it and it has no cure.

Sharon said: "It is a nightmare. I can't get clothes to fit him. I am having to look online and am thinking about ordering trousers from America.

"I don't know where it will stop. Josh is forever banging his head on door frames and has trouble going down the stairs.

"Josh is not going to stop growing. He once grew two inches in two weeks. It does not sound like a lot but it is."

Scientists at Newcastle's Centre for Life discovered that Josh has a small deletion on one of his chromosomes which involves three genes.

One of these genes is the main antagonist to the growth hormone. It is different disorder from Gigantism, whose sufferers over produce the hormone.

But his condition - as well as various other health problems Josh suffers from such as epilepsy, autism, and scoliosis - means he needs full time care.

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