Once upon a time a little boy used to struggle mightily when going on family holidays
Sandra Butcher (@SB_FASD) is chief executive of the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org). NOFAS-UK supports people with Foetal Alcohol Spectrum Disorders (FASD), their families, communities and the professionals who support them. It promotes education for practitioners and raises public awareness about the risks of alcohol consumption during pregnancy. NOFAS-UK is part of the FASD UK Alliance, which runs the UK’s most vibrant online FASD support group: https://www.facebook.com/groups/FASDUK/. Sandy is also a parent advocate. Her 13-year old son has Foetal Alcohol Syndrome. Her family spent many years after his adoption and prior to his diagnosis at the age of 10 trying to understand his needs. She and her husband are co-founders of the E. Hertfordshire and Area FASD Support Network (https://ehertsfasd.wordpress.com). They are active in local media, social media and through a widely read blog, FASDLearningWithHope.wordpress.com, which was chosen by Healthline as one of the “Best FASD Blogs-2017.”
A joke about her son George W. Bush showed it's still sadly okay to laugh at people with learning disabilities
23/04/2018 17:12 BST
I could lay out the reasons – how after hours and hours of our son teetering on dysregulation my own tensions had ratcheted up to the point where I lost my filter. I think you’d understand.
09/04/2018 09:01 BST
We look back at those young besotted lovebirds and we want to whisper in their ears, “You have no idea what you are getting into.
26/03/2018 11:10 BST
Let me tell you why this is urgent
07/02/2018 11:38 GMT
I realised we have not removed our son from his community. We have given him one
19/12/2017 17:10 GMT
Once in a while you encounter a being so pure that you simply have to believe. Four years ago, our youngest son was struggling
27/11/2017 17:36 GMT
It's fairly rare when a government report uses stronger words than I might in condemning the lack of attention to students with special needs. This must-read report is damning of the system. It's also frustrating beyond words to read it as a parent of a child with SEND and as someone engaged in efforts to support other families.
19/10/2017 15:43 BST
To anyone who has adopted or is close to networks supporting those with adopted children, there is sadly no surprise at these figures. Adoptive families across the UK are feeling relieved that their struggles are being noticed.
26/09/2017 13:33 BST
How many cigarettes have been proven to cause damage to a fetus? Do we know? And yet we have all collectively decided we will take the advice that it's just not on to smoke during pregnancy. Do we know exactly how much soft cheese contains listeria? And yet, as a rule we avoid it just in case.
12/09/2017 16:55 BST