Sonya Chowdhury

Chief Executive of UK charity Action for M.E., working with children, families and adults affected by the neurological condition M.E.

When I took up the position of Chief Executive of Action for M.E. in 2012, I walked into a world that left me in despair. I was stunned by the suffering that I saw, and I was determined that the charity be an effective force for change.

Even in its mildest form, myalgic encephalomyelitis (M.E.) - which affects 250,000 people in the UK - can have a significant impact on an individual’s life, and not just on their health. A lack of understanding and awareness about M.E. means men, women and children experience disbelief, and even discrimination, from friends, family, health and social care professionals, teachers and employers.

Action for M.E.'s takes action to change this, aiming to end the ignorance, injustice and neglect experienced by children, families and adults with M.E. My team I and work to meet need now, and take action to secure change for the future, by improving the lives of people with M.E., inspiring action at all levels, and investing in change.

Giving M.E. A Place In The World

<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" /> My son Danny has given up. He finds it too hard and hates being seen as 'different' because he is not in school full-time, often attending for part of a day. You can imagine how broken-hearted I was to hear my little boy, aged just 11, say to me, "I don't feel my life is worth living. I don't have a place in the world anymore."
06/07/2017 13:58 BST