Harrison sobbing uncontrollably for the best part of an hour, I had climbed on to his bed and hugged him, stroked his hair, rubbed his tummy, held him close, doing my best to console him... him repeating over and over again how much he hates his life and how weak he is.
Now I don't totally agree with my friend that said this to me, perhaps though I just haven't yet been beaten up enough by Duchenne, had it rip me open and grab hold of my heart yet. Squeeze the life out of it yet. Chip away at and break my will to hope enough yet.
The wheelchair is a constant reminder, more and more often it is in the car and not gathering dust in the garage, any trip that involves a now short walk requires the wheelchair to come with us.
Finally, Kris Hallenga turned 30 yesterday so, technically, I can still refer to her as an older person (sorry, Kris). It's
The parent of a disabled child, you are suddenly forced to look with a hard and discerning eye at the society your children live in. Will it nurture them, in spite of their condition, or will it neglect them?
Last year when the Manchester dog's home went up in flames I was watching the television and my first thought was how proud I felt that the UK was such a generous nation of animal lovers. However this was swiftly followed by my second, which was, how can we possibly justify raising of £2million for animals when there are children like my eight-year-old son, Harrison, dying every day from fatal illnesses. Harrison has Duchenne, a disease that means he probably won't live to see his 20th birthday. In 2011 I founded Harrison's Fund to raise money to fund research to develop a cure.
The Chiefs have started the season as one of the best teams in the league and are sitting on a 6-0 record that only one other team in the league can boast... But things haven't always been so rosy for Kansas City. In fact it was only last season that they finished with a 2-14 record which was the worst in the league.
Ed Miliband is to accuse George Osborne of "letting down British business" days after the chancellor accused the Labour party