Cancer Drugs Fund
A cancer diagnosis is one of those moments in life when everything changes in an instant. Your whole world collapses around you. You are no longer the master of your own destiny. Instead your future rests in the hands of a bunch of medical experts, armed with an array of treatments designed to kill your cancer without killing too much of you at the same time.
High profit margins are not a new thing either - the pharmaceutical industry is the most profitable in the world and profit
When we look back at this time in history, we will not be proud that we made record profits from cancer drugs while one person died of cancer every four seconds, but we can all play a part in changing this for future generations. Public pressure played a huge part in broadening access to AIDS/HIV drugs in the 1990's - the same can happen for cancer if enough of us speak up to let those in power know this is an issue we care about.
The Cancer Drugs Fund "reform" is happening. We have a new approach that puts NICE back in the driving seat. The hoped for result is no more surprises, no unexpected calls on a fund for a new drug that will change someone's outcome.
We're not asking Roche to give Kadcyla away for free; we are simply asking them to offer the NHS a price that is affordable until a long-term solution can be found, and give clinicians the tools they need to help secondary breast cancer patients.
My apolitical view review of the budget is that thanks to Mr Osborne and Mr Cameron, the people of this country are more likely in future to die of cancer prematurely but at least when they die they are more likely to die in their own home unless of course the paucity of their disability benefit has forced them out of their home ownership.
This week, the Fund cut a number of drugs from its list because it could not afford to continue paying for all of them. The cuts included three drugs used to treat secondary breast cancer. As you can imagine, there's been a huge uproar about this in my breast cancer community.
Over 400,000 People Signed the #Clarkson Petition in One Day. Yet Only 5000 Signed a Patient Petition Fighting Cancer Cuts
50% of us will be diagnosed with cancer during our lifetime so we all have a vested interest in how cancer patients are being treated now and in the future.
I have met David Cameron and I liked him. That in itself is strange as I have a natural dislike of politicians mainly due to the way they speak. Mr Cameron however came across well and I believed every word he said. I also truly believe he meant every word of them.
Unfortunately, in this case a process which is of huge public interest has gone on behind closed doors rather than adopting the transparent and inclusive approach that was promised by politicians and civil servants alike. It fuels suspicion that the decision was made on a muddle of flawed criteria.