I am proud to be part of our #MyHeartStory campaign and the positive change to help others like me who had their world turned upside down overnight. Our youth panel wants to get more young people talking about cardiomyopathy to build a community of support and resources to make a difference for young people who can cope with the condition together.
Scientists have successfully edited a human embryo to completely remove a genetic mutation that causes deadly cardiac disease
The singer was found dead on Christmas Day last year.