CFS

Our society labels the disabled community as either superheroes or scroungers. The truth is most of us are living somewhere in the middle, writes Pippa Stacey.
My entire body feels like it’s on fire and my head feels like it's ready to explode on a continuous basis and I feel permanently poisoned
Jennifer Brea's powerful film Unrest exposes the reality of Myalgic Encephalopathy or ME. This condition leaves people utterly
everybody banner My son Danny has given up. He finds it too hard and hates being seen as 'different' because he is not in school full-time, often attending for part of a day. You can imagine how broken-hearted I was to hear my little boy, aged just 11, say to me, "I don't feel my life is worth living. I don't have a place in the world anymore."
It's Vanessa's opinion that using sustainability as a sales tool and part of the brand message, has an upside and a downside. The upside is the point of differentiation which can attract consumers, while the downside is that it puts the brand in a different niche for other consumers.
Danny says the one thing that has really added to his severe exhaustion and frustration is having to continually explain how M.E. is not just feeling tired. By sharing his story, I hope that others affected by M.E. have to do this a little less.
When you're recovering from a chronic illness, you're rarely thinking about how it might be a 'meaningful experience', a 'learning curve' or a 'very important time in your life'. You're mainly thinking about how sh*t everything is.
Without a diagnosis, I was ashamed to live in my own sickly body. In a state of perpetual conflict, I'd psychologically disown it, wishing it belonged to someone else. I started lying to it, "You're fine - the problem is in your head".
In true British fashion usually 'I don't like to make a fuss'. Nothing kills a conversation quicker than when you respond to 'how are you' with 'physically and emotionally drained due to my chronic illness'.
My friends had known about my struggle to have independence and had sympathised when I was turned down for Disability Living Allowance (wrongly turned down: I've since, thank goodness, been accepted). But they went further than just supporting me on the internet. They did something about it.