Only disabled and chronically ill persons along with their families, know and understand first hand, how difficult life can be. Financial burden is an issue not often mentioned, since no one wants to admit openly the hardship that frequently goes hand in hand when a person is unable to work due to health reasons.
Knowing when to offer help, lending a hand, and realising when to step back and allow a disabled person the dignity of managing by themselves is a fine line and not easy to judge. It is also difficult for the sufferer, as I'm a classic case of someone who hates asking for help, but in my present condition, many times I cannot perform a task, which is frustrating beyond belief.
If I could possibly colour code all the symptoms and side effects of Parkinson's, I think there would be far more than fifty shades! The symptoms are many; vary to such a degree, each patient is unique.
Have you ever looked in the mirror and wondered who on earth is staring back at you? Parkinson's is slowly stealing away my smile and expression. If I were a poker player, this would give me a distinct advantage, but other than that, it's very difficult for others to know what I am thinking.
Having two chronic diseases makes life quite difficult (and that's a British understatement if ever there was one!) Trying
A young child who is chronically ill or disabled in some way, weak and fragile, may easily fall victim to sexual abuse. Unfortunately a child whether physically or mentally handicapped can be at high risk; not understanding and often unable to communicate what is actually happening to them.
Being diagnosed with young on-set Parkinson's, trying to plan ahead, we realised our apartment overflowing with "character and potential" was in fact highly unsuitable for anyone with a disability.
When diagnosed with a disease such as Parkinson's that literally takes over your life and changes everything you could possibly think of, it's hard not to be enveloped by the enormity of the situation. However, don't lose your identity and let a disease define who you are.
Anyone living with chronic disease like myself, probably experiences frequent hospitalisation. I often wonder if there should be a special club, as with airline companies who have a frequent flyer card, hospitals could create a "frequent hospitalisation club".
Assistance and companion (therapy) dogs can provide a great deal of comfort to someone who is disabled or suffering a long-term illness. The positive benefits are tremendous, and a dog can be trained to perform many varied duties to help a person at home who is incapacitated.