Beyond the costs, the amount of time and energy that families take to plan these special breaks with their children cannot be underestimated. Ensuring that the break meets the needs of a disabled child, as well as those of other family members can be tricky to say the least.
Today I said goodbye to my wedding dress. I didn't, as I perhaps liked to imagine on the day that I wore it, give it to my
So yesterday I was dismayed, like almost every other day since the U.S Presidential Election, by yet another story of Donald Trump disrespecting someone and acting like a high school bully via that least appropriate of presidential platforms, Twitter.
So it was recently Tube Feeding Awareness Week and in the malaise of awareness weeks that the double-edged sword of social media has brought to us, this is one I could most definitely get behind. When I was pregnant I thought the only feeding choices for my baby were breast or bottle.
As the mother of a severely disabled child, I know first hand how parents of sick and disabled children can be bullied and pressurized by health professionals, and are often vilified and criminalised, just by virtue of having what is known to the system as a "vulnerable child".