hypermobility syndrome

The wheelchair has been great. Pushing him in it is much easier than the buggy he was too big for. And sometimes it helps by providing a quick explanation to strangers when he has challenging behaviour. I suppose because with a wheelchair, disability is quickly visible. But it took a while to get used to having it...
Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.
A young woman has been dubbed the 'Human Jigsaw' because of a rare condition which means she's dislocated her joints - more
Discovering you have a chronic health condition can be scary, but it's like finally having the light switched on after wandering around in the dark for years. I no longer felt like a crazy person, I had a reason to be tired all the time, I wasn't imagining more joint pain.