locked in syndrome
Rejection - one of the harshest parts of life. If there is one experience that all we humans have faced in our life that
We were invited to talk about the recovering brain to a sold out paying audience - that's a first for me! (Ok, so it was only £8 a ticket, but that was the closest I'd get to being like my new guilty pleasure, Ariana Grande!!)
Although my situation (not being able to move and do things for myself), I still have people around me to do it all for me. I do not have to rely on the compassion of others to survive. Not everyone is so lucky.
Image: Kate Allatt. But I was gob smacked to receive this picture on Facebook in November 2015! I believe when we give kindness
I over thought 24/7, seven days per week and felt horrific anxiety and fear. Fear that my husband may be encouraged to switch off my life support machine in the early days. I also suffered severe boredom, sleeplessness - because you slept out of boredom during the day - and experienced graphic hallucinations, that no one warned me or my family about. I was scared shitless of dying, then at other times, I wished I could physically pull the plug on my own life support machine.
More than once I have been asked: what I have that normal healthy woman don't. Well, the answer is a positive attitude and a smile. It is as simple as that. I am also asked very often if I do hope on a miracle. To tell the truth, the miracle has already happened.
Kati is my wife. Kati is the young woman who suffered a stroke in 1995 and since that has been almost entirely paralyzed. Kati is a woman that has spent almost her entire adult life trapped inside her body. Kati is also the person that knows how to enjoy life at the moment to the fullest making the most of each and every day.
my mother's birthday. The doctor called my parents in to break the news to them. "From the brain scans, we can see that your daughter's lower brain area is completely gray." "Our conclusion is that she had a stroke," "I am sorry to inform you this, but the brainstem is so severely damaged that she would not be able to move voluntarily at all for the remainder of her life."
I've long told bemused friends that I'm not afraid of being haunted and that I actually think it would be quite cool if it happened. Whilst some say that they would rather die themselves than be visited by the dead I don't see what all the fuss is about.
My name is Kati. I had a stroke in January 1995, and I have been almost entirely paralyzed with no meaningful movement or able to talk since. I have Locked-In Syndrome, I am trapped inside my body. Let me share a little secret with you;
misery is not a reality; it is a state of mind.