rare condition
Giovanni has Schwartz–Jampel syndrome (SJS).
'Googling Chloe’s condition was terrifying.'
In 2015 Noah's brain function increased dramatically.
'People stop me in the street and ask: what have you done to her?'
'In a moment we realised that our lives had changed forever.'
Serena Jacques' suffers from short term memory loss.
'Any father would have done what I did.'
'So proud of this family they are all so amazing.'
'I want Evan to be somebody that people can look up to.'