Hairy Werewolf Syndrome Sangli Sisters All Affected By Hypertricosis Universalis (PICTURES)

First Posted: 08/02/2012 09:32 Updated: 07/06/2012 18:21

Meet the incredible Sangli sisters, three siblings whose lives have been blighted by one of the rarest conditions in the world - werewolf sydrome.

Savita, 23, Monisha, 18, and 16-year-old Savitri are just like any other young women except their bodies have been covered from head to foot in thick hair.

Werewolf syndrome - or hypertricosis universalis - affects just one in a BILLION people but in an incredible quirk of fate all THREE sisters have the condition.

Hyperthrichosis is a genetic mutation where cells, that normally switch off hair growth in unusual areas, like the eyelids and forehead, are left switched on.

It means the girls have had abnormal hair growth on their bodies and even their faces, affecting their eyebrows, nose and giving them appearance of having a beard.

Every day is a battle for the siblings who are now just beginning to bring the condition under control using a special hair removal cream.

Compared to these pictures taken just last year the sisters, from southern India, have changed remarkably, and two of the sisters have managed to remove much of the hair growth from their faces.


The sisters use hair remover cream every day, but to little avail

But every day is still a constant battle and not using the cream will see the hair quickly return, with the youngest sister Savitri still virtually covered.

The girl's mother Anita Sambhaji Raut has six daughters in total with only three having werewolf syndrome.

The condition was passed down by the girl's father who Anita was forced to marry aged 12 not knowing he had the condition as she had never seen him till their wedding day.

Anita and her daughters are now desperate to fund laser surgery that will help to finally remove the curse of excess hair and allow the girls to lead normal lives.

In their small village near Pune, central India, the girls have little prospects for marriage and the eldest Savita sometimes gets sent home from work when her hair begins to show.

Laser surgery would cost 350,000 Indian rupees or £4,500 per girl but the family are not wealthy enough to be able to afford it.

Now documentary filmmaker Sneh Gupta is planning make a film of the girls in a bid to help their dream of becoming almost hair free - with the eventual aim finding marriage.

The sisters are keen to marry - but want to achieve their dream of becoming hair-free, first


Mum Anita, 40, said her husband - who died in 2007 and whose portrait hangs in the family home - also suffered from werewolf syndrome.

Anita was being looked after by her uncle and auntie as her parents had passed away and they told her if she didn't marry this man they would kill her off.

She said: "It was only on the day of my marriage that I discovered what he was, (he) was hairy on his face, ears and body, that's when I found out.

"I was very young, I didn't know what kind of boy he was, he scared the hell out of me when he arrived at the altar. He's the groom, I am the bride, I had no idea what all that meant.

"I was only 12 when they forced me into marriage, and if you don't agree to marriage as a girl they will kill you off.

"I asked my mother-in-law why my daughters were born like this and she told me because their father is like this, at the time (as a baby) my daughter had little hairs all over her face.

"When I used to take her (Savita) out as a child, they used to shout here comes the beast, the witch, that's what they said.

"They keep her at work now for 10 to 15 days, and then after that they ask her to leave as soon as the hair starts showing through, that's what they do.

"I tell people this is the type of girl she is, hair grows on her face, she has to apply medicine, we must be honest with everybody."

In the village society a woman does not have much prospects if she is not married and mum Anita explained she was still trying to get her daughters a man.

She said: "If a good proposal comes in, I'll get her married. If nothing comes in she'll have to work and survive. As long as I am living I have to keep trying."

Eldest daughter Savita, who now using a cream to try and combat her hair growth, said: "When I used to go to school the boys and the girls would shout, 'hairy face', 'horrible looking', 'don't sit next to her', that's how they behaved.

"Marriage is not an option for us, it's not likely to happen, who is going to marry us when hair keeps growing on our faces."



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HUFFPOST SUPER USER
debtrev
dreams can come true
12:43 PM on 02/11/2012
if only i had the money to help them.....
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theawesomejamie
this comment was brought to you by reason.
09:14 AM on 02/11/2012
What a hair raising ordeal!
09:59 PM on 02/10/2012
Depilatory creams are rubbish. Even if these girls can't afford laser treatment at a clinic, Huff could buy them each a flipping home laser kit off ebay or amazon for less that £200. At least that'll get them started towards permanent hair removal. Having said that, judging by the Mum's cultural experience of forced marriage and refusal being followed by death threats, I think (and I know this is going to be a controversial statement) having the hair issue protects the daughters to some degree from the same fate as, in that culture, male interest sounds a little potentially perilous for a young woman.
HUFFPOST SUPER USER
Vondrazy Priest
John 19:30 It is finished
04:55 PM on 02/10/2012
Since some of us love fake hair so much, they can make a killing selling it in the United States.
HUFFPOST SUPER USER
californiananc
My kittens do my typing.
04:51 PM on 02/10/2012
Just when you think that you have it bad. Get rid of their hair so they can find husbands? Sounds like there will also be that 50/50 chance that if they have children, they will also inherit this condition. If they have suffered so much, which I believe they have, why pass that on to another? Even the three sisters who don't have the condition could also carry this gene. Sure, get rid of the excess hair, but also don't keep passing the condition on. Ask mama, getting married is not the answer to everything. Hope they get the help they need and find happiness. As bad as we think we have it sometimes, all it takes is a little look-around and you can find others who are suffereing with no means of help.
05:40 PM on 02/10/2012
sure this easy easy for u to say u don't live in this culture. When you're in this part of the world life is very different. How easy it is to forgot how bad it is in the rest of the world when YOU don't live there. They do not have available to them all that we have at our hand. we forget that!
HUFFPOST SUPER USER
californiananc
My kittens do my typing.
02:22 AM on 02/11/2012
Guess you didn't read my first sentence? Or the other sentences where I stated how bad they had it? The article also states they keep getting fired from jobs when their hair grows out. So they are apparently working, without husbands. And I stand by my statement, why would you want to pass on a genetic disorder that caused you so much suffering? "Mama" lives there and admits that her arranged marriage was either do it or be killed. And look what happened.
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HUFFPOST SUPER USER
klavezo
11:14 PM on 02/09/2012
Missing links? Try Gillette Mach 3 shavers.
09:07 PM on 02/09/2012
Extraordinary. A unique beauty and equal courage.
08:13 PM on 02/10/2012
Once,at the Chrysler Museum, there was a room of women's portrraits on display and included was one of a woman with the same condition. Her face was completely covered in thick hair that was beautifully groomed. Oddly beautiful and captivating.
07:47 PM on 02/09/2012
I wonder how much (or shall I say little) did they pay these poor girls just to exploit them?
HUFFPOST SUPER USER
Vondrazy Priest
John 19:30 It is finished
04:56 PM on 02/10/2012
ya know
05:22 PM on 02/09/2012
I had been sitting here wondering how I was going to pay a few bills, a little stressed, thinking about a few financial issues. After seeing this article I don't have any problems - not one. Thank you Lord and i'll be praying for this family.
04:40 PM on 02/09/2012
Really HuffPo? "Werewolf Syndrome?" Who wrote this? And no, it is not an "incredible quirk of fate" that three daughters of a father living with the rare genetic condition hypertrycosis universalis inherited it - that's what "genetic" implies - heritability. GROW UP - PLEASE REVISE THIS SENSATIONALIST AND OFFENSIVE CONTENT.
11:53 PM on 02/09/2012
That was my first reaction to the story ..."incredible quirk of fate" is pretty ridiculous. But I have heard it referred to as "werewolf syndrome" before, there was a documentary segment on two young brothers who have it.
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HUFFPOST SUPER USER
Dennis Tucker
03:12 AM on 02/10/2012
You're right. I saw that doc.
04:03 PM on 02/09/2012
In a world where people are judged by their looks it must be hard for these women to live their lives in peace. We come in all shapes and sizes and colors. I just hope that people treat these women with respect. Something we all deserve.
02:50 PM on 02/09/2012
Who needs a 3-ring circus when we have the HuffPost????? This is totally without taste.
04:01 PM on 02/09/2012
It really is. There are no boundaries anymore. It has turned into a real rag.
07:17 AM on 02/09/2012
Sangli sisters are not some kind of freaks but face of an average citizen in India. These people are given the status of deities and sometime in the future they will be given the status of God and you shall find millions praying to them and seeking their looks for their offspring.
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06:36 AM on 02/09/2012
You do understand, don't you, that these are human beings you're talking about? Cutting the sensationalist headlines would be nice.
07:12 AM on 02/09/2012
I totally agree with you.
07:55 AM on 02/09/2012
Agreed.