Real-Life Rapunzel: Treatment For Rare Illness Causes Girl's Hair To Grow Long

14/08/2014 16:59 | Updated 20 May 2015

Sophie Fieldhouse who has congenital hyperinsulinism

A six-year-old with a potentially fatal illness has been dubbed the real-life Rapunzel because her hair grows so quickly.

Sophie Fieldhouse's fairytale golden locks almost reach to the ground because of the drugs she takes for a very rare and potentially deadly disease called congenital hyperinsulinism.

It causes low blood sugar and one of the only treatments is a drug called Diazoxide, which makes her hair grow much quicker than normal.

Her mum Amanda Turner, 37, said: "The condition is scary because when Sophie's blood sugar is low she we see a complete change in her.

"It's like looking at a completely different child. She gets very hungry and gets the shakes. She has to take extra snacks to school and her hair is also very long because of the treatment.

"Children have said things to her about her hair without realising it and it isn't a nice thing to have, but the school have been very good."

Now Sophie, from Failsworth, Manchester, has taken part in a new trial using fish oils which has been so successful she no longer needs to take Diazoxide.

Amanda said: "This new trial has been brilliant and we have now been able to stop the Diazoxide, which is fantastic. We just hope that this treatment will soon be available to all children with congenital hyperinsulinism."

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