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Avoiding the Triple Whammy: Empowering People to Live and Work After Cancer

Posted: 11/12/2012 00:00

More and more people are now living well with cancer, but society is struggling to keep pace with medical progress. In the UK, someone is diagnosed with cancer every two minutes, but with earlier diagnosis, more advanced treatments and better targeted drugs, more people are living well with cancer for longer - with survival rates doubling in the last 40 years.

At Maggie's, we want to empower people to live through and beyond cancer. But whilst there is now better support for those dealing with diagnosis, there is less understanding and support in place for life during and beyond treatment. If people are to get the support they need and deserve to live well with cancer, perceptions of cancer must change, particularly in the workplace.

Work can be incredibly important to people with cancer. Research has told us it can give a sense of normality and purpose, rebuild self-esteem and provide a focus outside of cancer. That's why Maggie's are working with Unum, an insurer and workplace rehabilitation specialist, to explore the issues surrounding cancer in the workplace, give a voice to those who experience them and provide the right support to address them.

Together, we have collaborated on a report that shows that there are over half a million people with cancer in the workforce, contributing £16billion each year to the economy. By 2030, with rising prevalence and survival rates, this will rise to a million people, contributing £29billion.

However the report also reveals that as many as 63,000 people living with cancer today want to work, but are encountering barriers because the right support isn't in place for them or their employers. They describe it as the triple whammy effect: diagnosis, followed by job loss or a negative experience at work, leading to a collapse in confidence and self-esteem.

The reasons behind these barriers are complex. Despite employers' initial efforts to support people returning to work, relationships can quickly, and unintentionally, break down. It's vital that employers provide the right support for an employee returning to work with cancer, which includes ongoing, meaningful communication, better understanding and a carefully managed return to work. But employers also need support - they are looking to the person with cancer to set the tone and need more guidance from them on what they need, as everyone's experiences are different.

The report gives a number of recommendations to help both overcome these barriers. People with cancer need support to acknowledge that their everyday needs in the workplace may change and to ask their employer for the flexibility or guidance they need. At an already emotional time, they often won't know themselves what this is, so it's also important that they look for advice and support from third parties like Maggie's or their occupational health consultant.

Employers should implement a staged return to work programme, maintain open and meaningful communication and use third parties to provide education and training at all levels about what to expect from someone returning to work after cancer. The role of the line manager is especially important. They often have the biggest impact on someone's experience of working with cancer and therefore need the right guidance and support to manage their return to work.

That's why Maggie's and Unum are pooling our expertise and launching a partnership to provide support for people with cancer and their employers. The partnership will begin with free education events at Maggie's centres across the UK throughout 2013 and resources aimed at employers.

It's vital that we act now. By putting the right solutions in place, by 2030 an extra 136,000 people with cancer who choose to work could be helped back into the workplace, helping them to rebuild their lives and contributing £3.5billion to the UK economy.

That's the vision behind our partnership with Unum: we want both employees and employers to receive the support they need and deserve to live well with cancer - and we've shown why they deserve society to respond.

For more information on the events and resources, please visit www.maggiescentres.org/workingaftercancer

 
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More and more people are now living well with cancer, but society is struggling to keep pace with medical progress. In the UK, someone is diagnosed with cancer every two minutes, but with earlier diag...
More and more people are now living well with cancer, but society is struggling to keep pace with medical progress. In the UK, someone is diagnosed with cancer every two minutes, but with earlier diag...
 
 
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09:06 PM on 12/20/2012
This seems to me like a very short sighted and extremely misguided partnership.
10:00 PM on 12/14/2012
Hi all , just found out on Tuesday morning that my mother has terminal Cancer , I went back to work in May this year after some encouragement by the Dundee Maggies team , and the triage back to work team.Yes it was probably the best thing for me after my Prostate cancer treatment . What can I say about maggies dundee without them Iwould dout if I have would have got through this emotional roller coaster Now my mother has been given months to live , its just so Fxxxxxg cruel .
Alan Anderson Dundee xxx
10:36 AM on 12/12/2012
Why should people with cancer be found fit for work, when 1 person with morning sickness is found unfit for work
11:18 AM on 12/12/2012
You must be honoured!! I stated the same! and was banned!
11:49 AM on 12/12/2012
great minds think alike
08:52 AM on 12/12/2012
If this is genuinely about helping people with illness who WANT to work ( the wordused above is 'choose' ) then that is very different from suggesting that 'all people with cancer should work'. I agree that there need to be more support and understanding in the workplace for those with illness and disability who choose/want to work but find themselves unwelcome or not catered for. I don't agree ( and I don't think ths article is saying ) that people with cancer should HAVE to work. People, their illnesses, treatments, effects, disabilities are individual. That is how they should be treated.
12:34 AM on 12/12/2012
I have terminal cancer and there is no cure or treatment at this time that can cure it and after chemo therapys and radiation therapy as well as a stem cell transpalnt and surgery I am left almost completely housebound and with various disabilitys as well as being unable to do anything more than the simpelest of tasks for myself and even then if I do something I am wiped out for the rest of the day I however know and understand there are those who do have cancer who are able to work and good for them but many are not and as such each individual case needs to be looked at and considered and not lump all cases together and judge everyone the same as every cancer effects everyone diffrently
12:51 AM on 12/12/2012
I am with you this researcher needs to go back to the drawing board, my neighbour is much like you and barely as the stamina to wash and dress himself yet alone do a job of work.
12:10 AM on 12/12/2012
Unum has done so much to harm the sick and disabled over the last twenty years, as detailed by disability Debbie Jolly and many other disability campaigners, that any organisation working with them should at least acknowledge these problems. I guess money talks.
11:03 PM on 12/11/2012
That what sickens me about the leaders who insist the sick work. If there are 100s of 1.000s able bodied out of work why on earth should the sick be made work???
10:57 PM on 12/11/2012
I was diagnosed with breast cancer about this time last year. I moved house, changed jobs and managed to work right through chemo up to about 3 weeks before my mastectomy then I just had to stop. I couldn't go on working. I signed off sick, had the op, recovered a bit and then had radiotherapy. The radiotherapy left me in agony with severe burns which took a while to heal. I was paid 5 months full pay and told in a very curt and badly written letter that I was only getting 5 months (should have been six) but they'd taken into account the days I'd been off having chemo and all the sick days from the previous 12 months so I only got 5 months. I cannot now be off work sick as that day goes right down to half pay. And apparently I have it good! I needed to work...I chose to go in and sometimes it was a damn struggle. I wish I'd known more about my rights when I was going through it.
08:47 PM on 12/11/2012
I know when I had cancer I could not work.....the chemotherepy has left me with peripheral neuropathy and several other issues affecting balance, walking and distorted sensations in feet and hands. I suppose if you can sit up you can work.
07:45 PM on 12/11/2012
I'd like to see some terminal cancer patients who are undergoing chemo going to work. These people are a joke.
05:27 PM on 12/11/2012
It all depends on what the cancer is, how it affects the individual and what treatment regime they have. I was lucky. Within a couple of weeks of surgery I could start doing a bit, which then led to fully working again, and as I am self-employed that was very good news indeed.

Some poor souls cannot do this, and the Government MUST listen to what they say.
02:11 PM on 12/11/2012
I'm sure this article will be quoted time and time again by the Tories...just what they want to hear!
"Empowering people" is a joke...if a cancer sufferer feels strong enough to work then all support should be given BUT maybe think about the patients being found fit for work when they are not..by a corrupt system driven by the DWP and ATOS.
Shamelessly this government are kicking people off ESA onto JSA via an injust and unfair "welfare reform" that has been proved "unfir for purpose" and is actually costing the tax payer more!!
04:03 PM on 12/11/2012
Amen! You're absolutely spot on. My father was declared fit to work a few weeks before he died of bone and liver cancer. It's a nonsense and corrupt system that does nothing to weedle out false claims and causes undue stress on people who are genuinely sick or injured.
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Barbara Longstaff
10:09 PM on 12/11/2012
We have to make our people work whatever they are suffering from to support the immigrants flooding into our country thinking this is the land of milk and honey and the pavements paved with gold, which they are to them. It;s about time our Government considered it's own people rather than support the aliens that have decended on us.
07:34 PM on 12/11/2012
to true,,,, there are many forms cancer and most people cannot get back to work, its alright trying to empower people with disability's to work, but most people were probably Manuel workers, who are used to heavy labour and finding something light that they could do is next to impossible, but this wont put off the Torys they dont care.
01:24 PM on 12/11/2012
They should be allowed to but not made to.
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redsquad
Shootin' from the lip
11:39 AM on 12/11/2012
Utter and complete bo**o*ks.
The whole scheme has NOTHING to do with "empowering" anybody.. its about kicking people off ESA, getting them on workfare and rich businessmen making even more money through slave labour.
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03:48 PM on 12/11/2012
Working and being paid the legal minimum wage isn't great but it isn't slave labour
07:37 PM on 12/11/2012
how many people have full time jobs nowadays, most part-time jobs are 16hrs a week on minimum wage , THATS SLAVE LABOUR.
09:18 AM on 12/12/2012
it becomes slave labour when it is forced!
11:31 AM on 12/11/2012
In 1995 I was diagnosed with Nasopharangeal Cancer. My bosses were very supportive towards me and accepted my decision to work throughout my treatment which was of 38 radiotherapy and 4 chemos. This also included time off for hospital visits etc etc. I told them the reason I was working was that it was part of my way of beating cancer as it would not dictate to me what I would do. They were fantastic. I took a month off after I concluded my treatment and returned to work after that.
12:30 PM on 12/11/2012
Its good you survived but you are one of a small percentage as my dad worked all his life 7 days a week paying huge taxes on his £3,500 average wage for being a professional master craftsmen until one day in 1996 and the first day he see a doctor about being sick he was sent to Maidstone hospital and told that he had suspected gallstones and 2 weeks after said I'm sorry but you have terminal cancer as we have found traces on the liver which is the last place cancer usually spreads too! he was told 3 weeks on sick note by his GP that he was better off back at work and stopped his certificates just before the hospital found out what he had and he died 4 weeks later at the ripe old age of 48 in 1996 - so as you see this is one of many occasions that are wrong and my father was a strong minded man that only went to a doctor once in his life and worked everyday up to he fell ill. Everyone said sue the doctor this and social that but what was the point only to claim blood money from a country that is failing so we chose to just cherish the good memories of what we had of our father,our friend,our hero. RIP BARRY WILLIAM JOSEPH NURSE born 1948 died 1996 48 years :(
01:23 PM on 12/11/2012
Hello Isloft,

Im really sorry about your dad. A great number of cancers show no signs until they at at final stages. I only harassed docs into doing something as had already got it noted in my hospital records that I had this lump in my neck that hadnt disappeared after antibiotics, chest x ray as I was a smoker ( and the tumour did NOT show up on xray ) and blood tests. My tumours were at T4 and M4 stages so I was very lucky. I could have claimed malpractice as the doc I saw at the hospital was an SHO and the type I had is very rare and he had never seen a case- so rare was my cancer I have never met anyone who had it. Good luck to Maggies sites as they were starting up at The Beatson on Glasgow in 95 when I was being treated.

Again sorry bout your dad
04:02 PM on 12/11/2012
A very similar story to that of my father, although he was slightly older than your dad. They only "diagnosed" cancer at his post-mortem and only a few weeks before, he was declared fit to work by the DWP / ATOS. People with cancer should be supported to work if they feel able but not forced or "empowered".