"If I'd asked my customers what they wanted, they'd have said a faster horse." Henry Ford
To enable people with mental health problems to lead full and productive lives, we need a revolution in care and treatment.
Today is World Mental Health Day. Looking at mental health practice right now it feels sadly devoid of the revolutionary, imaginative and creative thinking that we take for granted in so many other areas of our lives. In a very real sense the outcomes for patients with long term mental illnesses like schizophrenia are getting worse, not better.
This is a tragedy; mental illness is painful and distressing. It is hard to imagine the torment that someone with schizophrenia experiences when they hear voices telling them that they are evil and deserve to die. To understand the pain of these symptoms we have to recognise that this is their reality and it is absolutely terrifying. These are symptoms of an illness, an illness where there is dysfunction in the patient's brain.
Medicines are essential to alleviate the distress and torment of psychotic symptoms. Reducing the intensity of the delusion or pushing the voices into the background antipsychotic drugs rarely completely eliminate symptoms and are certainly no cure.
In many respects, the medicines we have now are little different to those like chlorpromazine, that we used in the 1950s. The new generation of antipsychotic drugs are more refined and cause fewer side effects, but fundamentally they work in the same way. Metaphorically drug researchers have bred slightly faster horses, there has been no great jump forward.
Where will new treatment advances come from?
There is a sense that investment, both intellectually and financially, in the development of new drug treatments has faded and shifted; in part because of the negative public perception drugs for mental illness have, and an increase in demand for talking treatments as an alternative to pills.
Sensational media stories of antidepressants making patients suicidal are ill informed but attention grabbing and have contributed to our negative image. Even among mental health professionals there is widespread "anti medication" sentiment. A senior and influential clinical psychologist suggested to me recently that pharmaceutical industry research was "little more than propaganda".
Do psychological (talking) treatments represent the paradigm shift from horse to car that we need? I want to argue that our current obsession with improving access to psychological treatments reflects society's Freudian belief that mental illness is located in the mind and not the brain and can be sorted out by talking.
Cognitive behavioural therapy (CBT) is probably the most popular talking treatment.
Researchers have demonstrated that when delivered by a skilled therapist, CBT is as effective as antidepressant medication in the treatment of depression. Against schizophrenia and bipolar disorder, CBT also seems to be effective for example in helping patients cope with voices. But, and it is an important but, CBT only works (in schizophrenia and bipolar disorder), if patients are already on medication.
CBT, like all talking treatments, are complex interventions that need to be provided by skilled therapists. The problem; there simply aren't enough to meet demand and there never will be. A major initiative to improve access to psychological therapies (IAPT) consumed £170 million of new money.
Three and a half thousand new therapists have been trained and over 600,000 patients have entered the programme. Impressive; but rather than receiving the 20 sessions of CBT necessary for the treatment to work patients on average get just 3. unless patients get 20 sessions the therapy can't work; this is what the research tells us. So whilst CBT is effective it is not the mental health equivalent of the Henry Ford's Model-T providing effective psychological treatment for everyone.
Mental health practice is littered with countless examples of effective but complex interventions that work in theory but not in practice. The reason that they don't work is that they are too complex. Perhaps rather than focusing on ever more complex intervention we should consider simple intervention that can be reliably provided to all patients with mental illness. In a time of austerity making sure that everything we do really counts makes a lot of sense.
Back to medication. Mental illnesses such as schizophrenia, bipolar disorder and quite often depression, are long term conditions that require patients to stick with their medication, often indefinitely.
Whilst we need new treatments we could get much more out of the medicines we already have. Virtually every patient with schizophrenia or bipolar disorder misses doses of medication; this increases the risk of relapse and the return of painful and distressing psychotic symptoms. In fact the single biggest cause of relapse is that patients stop taking medication. There are many simple things that we can do to enhance adherence to treatment. I passionately believe we should be more positive about promoting the benefits of medication to our patients and their families.
For many patients, those with schizophrenia and bipolar disorder particularly, medication is a foundation to effective treatment and we should do everything to make sure that they stick with treatment. This is perhaps one of the most important things we do as mental health professionals.
There are other things we can do to help patients manage their medication; help them make choices about which drug will suit them best; closely monitor the effects and side effects of medicines, offer long acting injections rather than daily pills, use mobile phone text prompts to remind patients to take pills, prescribing a tablet that can be taken once once rather than four times a day. Simple things that work and help patients stick with treatment.
Ever more complex treatments that can never be scaled up to meet the need within the population seems to me like flogging, if it's not extending a metaphor to far, dead horse.
Our customers (patients) want greater access to talking treatments. I am far from convinced that the investment in psychological therapies has reaped the rewards that were promised when the IAPT programme was launched.
We need new medications and this requires intellectual as well as financial investment. When Henry Ford launched the Model-T, when Apple launched the iPad, these were leaps of imagination.
I want to argue for a simple revolution; we stop doing the complex badly and focus of doing simple things exceptionally well. But my real plea on World Mental Health Day is to stop listening quite so much and start imagining.
Now more than ever we need real invention in mental health care and treatment.
Marvin Ross: Mental Health Commission Dabbles in Dysfunction
you say that "Against schizophrenia and bipolar disorder, CBT also seems to be effective for example in helping patients cope with voices."
None of the published meta-analyses of CBT in schizophrenia show that CBT is useful specifically for helping patients 'cope with voices' .
It is interesting to use the phrase 'cope with voices' - if there is some convincing studies (of which I may be unaware) - then you are saying it helps with what? coping with voices - not reducing voice frequency or voice intensity or whatever - what is coping here?
• In response to your concerns, I suggest that at least one revolutionary move in public mental health should be inspired by Professor Sir Michael Marmot’s work on inequality and ‘the causes of the causes’. We all know that research demonstrates the role of inequalities in general health and mental health. If mental ‘illnesses’ are all brain and no mind, how exactly do we explain this? How do we explain evidence such as the greater likelihood of a schizophrenia diagnosis for second generation immigrants compared with the general population when data is adjusted for other risk factors? Is schizophrenia something that just happens in the brain? No. it happens in embodied actors within a social context. Like all kinds of problems with mental health (which are not necessarily true medical illnesses, but the product of subjective, ‘expert’ opinion).
• We do need a truly revolutionary approach to mental health. We need to tackle inequality, injustice, poverty, stigma, discrimination. Stop what you are doing for a moment and think of what we could do and what changes we would see if all that money was redirected to these aims.
• You state that ‘the reason that they [complex interventions like talking therapies] don't work is that they are too complex’. Mental health is part of human experience, which I’m afraid IS complex. We need to be up to the job of making sense of complexity, not trying to medicate ourselves into simplicity.
I have so many comments in response to your article. I will try to be as brief as possible, but will inevitably have to divide this into a few posts to fit the space.
• I was concerned about your appraisal of service users’ perspectives and dismissal of their wishes as lack of imagination, just wishing for a faster horse rather than an advanced technology like a car. I thought it was out of touch with service user movements in mental health to suggest that mental health professionals should stop listening and follow their own imaginations. It implies that professionals know better than patients and the public about what is needed. I don’t agree.
• You dismiss movements to increase access to psychological therapies as ‘obsessive’ and give an unsympathetic and incorrect analysis of this current direction as ‘Freudian’. This employs the rhetoric of pathology and out-datedness to discredit something that you disagree with, because you appear to believe in an equally outdated Cartesian split between mind and body. As we know from recent research evidence, the body (brain) changes along with subjective experience (mind). The brain is not a fixed, non-elastic entity that determines how we experience the world. Rather, it exists within a complex web of interactions that science still does not fully grasp. Is this truly just a physical illness? No.
I completely agree that lovely and sensible approaches like exercise, diet, and vitamins, etc. can probably alleviate most symptoms of mild mental illness such as mild depression and mild anxiety.
But there is nothing mild about schizophrenia and bipolar. My daughters life literally crumbled in the 2 years after her first psychotic break. She lost friends, jobs, family members turned away from her, she ended up addicted to booze and drugs (this is common with schizophrenia and bipolar) . The local police knew her by name because she started breaking the law and finally she lost her apratment and ended up living ion the streets.
This is not a mild case of "oh well, that person is just a wee bit different, so leave them alone". This is a catastrophic illness. In the many months since my daughter has been on Risperidal she has gained her life back. She now maintains her own apartment and she is now able to participate in a CBT group - this would not have been possible without the medication.
Thanks so much, Charlotte Fantelli
As professionals, we need to revisit own attitudes and beliefs, critically examine our knowledge base, and reflect on the use of medication for mental health problems. As I say to friends who struggle with the decision to take anti-depressants: 'if you were diabetic, would you take insulin?' 'of course' they respond, 'so, what's different about anti-depressants?'
Medications can make a significant difference, many say 'life changing'. So why does society continue with the resistance against medication? Why do many individuals just put up with debilitating and distressing symptoms? At a personal level, I take medication for depression and consider myself to be a very healthy and happy person....now. So what if I have to take medication for the rest of my life?
Informed consent and choice is crucial, but does everyone understand their choices ? I fear not. Do professionals truly engage individuals with the knowledge needed to make informed decisions? I will leave that for you to decide. Medications have a prominent place in mental health, and as Professor Gray states, there are creative ways that adherence can be promoted.
To drive forward accessibility to treatments, the pharmaceutical industry needs to invest in research. I am not dismissing talking therapies, but these are useful only to those who can access them in the first place!
Bring on the revolution!
Some people were born 'different', they didn't get a full box of Chee-tos. Yet, with some help here and there, they can live a good life, too. But, diagnosing people left and right as 'crazy' and feeding them heavy-duty pill-dope? Maybe not such a hot idea. Lucrative, perhaps, sounds/looks professional, but....?