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Let Me Eat Cake! What It's Like to Be Suddenly Diagnosed as Coeliac

Posted: 14/11/2011 23:00

I was recently standing in Marks and Spencers, glaring at a chocolate éclair.

I have to admit, in the back of my brain, I knew that the éclair hadn't actually done anything wrong. It's only problem was that a month ago I would have bought it and eaten it, and now I can't. And frankly, I resent that.

What right do chocolate éclairs have to be unavailable to me? How dare my body acquire a non-éclair-eating disease? What are M&S thinking, selling éclairs with wheat flour in? Don't they know that stuff is poisonous? Should I complain to someone?

I had been gluten free for about a week at this point, and the reality of it was starting to sink in.

At first I didn't mind being diagnosed with coeliac disease. It was nice having a proper diagnosis rather than just unidentified stomach pains (like a UFO, but with fewer aliens, unless you're very unlucky).

People were sympathetic. And it's a controllable disease; you don't suffer from it, provided you can manage never to eat gluten again. Any of it. Ever.

So gluten and I were through, like a partner you think is tasty and delicious, but then it turns out they were secretly poisoning you all along. It's not literally a case of never eating bread, cereal, pasta, pizza, cakes or pastry again, because you can get gluten-free equivalents of all of those.

But you can't walk into most shops and get them. Those cupcake cafes around London have become forbidden fruit. (Though luckily, fruit itself is not forbidden. But if you're craving the squishy fluffiness of a cupcake, apples just don't satisfy. I suppose I could coat them in bright pink butter icing.)

But the thing I hadn't quite realised is how wheat gets into everything. Like chips.

I had friends who were openly sceptical about this. "Chips are potato", they pointed out, and potato is fine. But I'd joined the Coeliac Society and read up on this, and I knew that some chips were fine and some weren't - for example if they'd been fried in the same fryer as onion rings. So now I have to be someone who goes up to the bar in a pub and says, "excuse me, are your chips gluten free?"

I hate the idea of being that person.

In fact, I hate it so much that I haven't actually done it yet, I've just eaten the chips and hoped.

But I'll have to get over that hurdle, because if I eat gluten-contaminated things I will damage my intestines and increase my risk of getting various cancers, all of which seem to have terrifyingly high mortality rates.

I will do a lot of things to avoid dying of bowel cancer, and if one of those things is going to have to be sounding like a fussy eater in public, then so be it. Picky wins over dead.

I do wonder how it's going to be, never eating a Double Decker again, or a bowl of Ricicles, or a Terry's Chocolate Orange. (For those who are worrying about my appalling diet, don't worry - it also features food that is not composed mainly of sugar.)

On the other hand, there are always Twirls.

And as I discovered the other day, I live in a world where Tesco will sell me a gluten-free, raspberry-jam-doughnut-flavoured milkshake.

Frankly, that's a world I'm okay with.

 
 
 

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I was recently standing in Marks and Spencers, glaring at a chocolate éclair. I have to admit, in the back of my brain, I knew that the éclair hadn't actually done anything wrong. It's only problem...
I was recently standing in Marks and Spencers, glaring at a chocolate éclair. I have to admit, in the back of my brain, I knew that the éclair hadn't actually done anything wrong. It's only problem...
 
 
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HUFFPOST SUPER USER
salmonellae
08:03 PM on 11/16/2011
Here in the US, gluten literally gets into EVERYTHING!! A whole family of 4 gluten free for 6 years now, and not one single month of the full 6 years did we go without getting 'glutenized' as we call it. Trace amounts of gluten are still in and allowed to be in labeled 'Gluten Free' packaged foods too. Because of this, we are now off of all grains and doing Dr. McBrides GAP diet to heal and seal our intestines and then transition in the Specific Carbohydrate Diet, which has a 50 year track record for keeping Celiac's healthy. Welcome to this new, challenging but healthier lifestyle!
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HUFFPOST BLOGGER
Kate Harrad
07:58 AM on 11/17/2011
Thank you! I can see there are going to be some challenges!
11:57 PM on 11/15/2011
I've been gluten free for almost nine years. It's really not that hard. I eat healthier than I did before and I'm in better shape than I've been since university.
Get over it, you'll be thankful you can't eat that eclair or cupcake. Celiacs rule.
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HUFFPOST BLOGGER
Kate Harrad
07:59 AM on 11/17/2011
Oh, I'm sure it'll be fine, yes. Thanks :)
03:01 PM on 11/15/2011
Sometimes I see a dessert or cake that looks really nice, and I am about to buy it, and then I see it's gluten-free and I put it back down guiltily, as if I'd inadvertently stumbled into an illicit subculture. Yes, I know.
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HUFFPOST BLOGGER
Kate Harrad
10:55 PM on 11/15/2011
I always used to look at gluten-free things and vaguely assume they were dull and healthy in some way, or Not For Me in some way. It's been interesting to actually try them - some are quite dry and crumbly and weird-textured, some are exactly like gluten-containing equivalents. Currently a big fan of Waitrose's chocolate muffins.
02:53 PM on 11/15/2011
I still eat Terry's chocolate oranges. I'm not hyper-sensitive so food made in the same place doesn't seem to cause problems. Also, to be honest, food can be contaminated quite easily. I don't solely eat things that have the GF logo on because I would go both mad and broke. If I can't see wheat/barley/rye/oats/gluten on the ingredients it's fair game.

What does bug me is food that ought to be GF that has wheat in. M&S has just introduced a box of macaroons to its cake aisle. Macaroons. The nice, trendy ones. Meringue and buttercream. And wheat. WHY?

I don't miss Double Deckers. Or Ricicles. But digestives? My colleagues now pass me the biscuit plate at meetings so I can at least inhale that toasty, wheaty aroma. My name is Linz and I sniff biscuits.
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HUFFPOST BLOGGER
Kate Harrad
10:56 PM on 11/15/2011
It's true, it's so much more complicated than I thought it would be - some things say they're GF but the small print contradicts it, some don't say but are, some things should be fine but somehow aren't... it does make life difficult.

I can completely understand the biscuit sniffing!
11:10 AM on 11/15/2011
My boyfriend is a coeliac and it really is easy once you get used to it! You can eat healthier and you don't have to miss out on cake! I make gluten free cakes often, funnily enough I even made one to bring into my office today and everyone loves it.
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HUFFPOST BLOGGER
Kate Harrad
10:57 PM on 11/15/2011
One lovely side effect of the diagnosis has been friends making me gf cakes or cooking me gf dinners. I have had some gorgeous gf cakes, which is reassuring. :)