I have recently become aware of a brave 13 year old, young man called Joe Ellis. He has a form of cancer called primary mediastinum large B cell lymphoma, which he was diagnosed with in 2013. Joe's family along with doctors have been looking at the best options for treatment and have found a new drug from the US called 'Brintuximab'.
I am staying positive on the whole - it's actually not that bad, you just learn how to get on with it. I have had pretty bad luck; I appear to have had every side effect going to date. I won't go into the gory details but had a week of staring at hospital walls, barely recognising myself, unable to do anything being hooked up to a drip 24/7 and getting more and more down but even now I look back and think if that's the worst, I can deal with it.
I think I have come to terms with it all, having cancer, I think anyway. I'm now on my way to recovery, I hope. Now the challenge is getting through treatment and overcoming the day to day practicalities. Living day by day is the only way and it's a learning curve really. People talk about listening to your body and that is what I am starting to do.