Caters
Little Harvey Webb will never know the colours of a rainbow, or the way the leaves change in autumn.
Because three-year-old Harvey can only see the world in black and white.
The youngster, from Tonbridge, Kent, has a rare condition that means he's blinded by light.
His parents Louise and Andy have to keep their curtains closed and Harvey has to wear special heavy-duty sunglasses to help him see.
Their son's condition, known as Achromatopsia – the rarest and most severe form of colour blindness - means he may never see a sunrise or sunset because his eyes cannot handle the light.
Andy, 34, a recruitment consultant, said: "Normal daylight to him is like the glare you get when you are driving on a wet day and sunlight reflects off the rainwater on the road.
"We have to make everything as dark as possible for him to be able to see."
Louise, 35, added: "When we first moved into our house we were worried the neighbours would just think we were really unfriendly, as we always had the curtains shut.
"But we have to keep them closed to keep out as much sunlight as possible."
The condition means Harvey struggles to play outside on bright days and he has to take cover from the rays.
He won't be able to drive when he grows up but will attend mainstream school.
Harvey's baby sister Megan, three months old, has also been diagnosed although she doesn't need special glasses yet, and can wear normal ones in bright light.
Louise said: "We were distraught when we first found out and it felt like we were going through a kind of grieving process because we knew they wouldn't be able to see the world how we see it.
"They'll never know though as they were born with the condition and we certainly won't let it stop them doing what they want to do."
Harvey now goes to Dorton House nursery run by the Royal London Society for the Blind, but there is currently no treatment for the condition.
He and Megan are taking part in research for a cure, partly funded by the charity Fight for Sight.
• Visit www.littleheroesappeal.com for more information on their appeal to help expand Dorton House specialist nursery for blind and partially sighted babies and toddlers