A fiercely independent disabled children's book illustrator and a promoter of positivity and enthusiasm for life
My name is Tori, I’m fiercely independent and I was diagnosed with Spinal Muscular Atrophy type 2 at 18 months old. I’m now living my life, exactly as I choose to. Having a neuromuscular condition doesn’t control my life; I’ve just found different ways of climbing over those hurdles. I’m a children’s book illustrator with my second book published in June 2014. In May 2014 I am taking the chance of a lifetime, and driving a 4000 mile round trip around Europe with my adapted vehicle and electric wheelchair, visiting 15 countries in 3 and a half weeks. This is a feat for anyone, but being disabled gives me extra challenges in doing so too.
I, myself, am a self confessed social networking addict. My thumb will always gravitate to the Facebook App without a moments pause and I really don't always realise that I'm browsing the feed. Is it really an awful habit? I'm not convinced either way just yet, but I did believe that 48 hours without it might be torture. I'm happy to report, I was wrong.
Obviously, being surrounded by water and accessible via boat and water taxis, Venice never struck me as being particularly wheelchair accessible and so David and I would never have planned a quick 'city break' to fly there for just two days.
My name is Tori, I'm fiercely independent and I was diagnosed with Spinal Muscular Atrophy type 2 at 18 months old. I'm now living my life, exactly as I choose to. Having a neuromuscular condition doesn't control my life; I've just found different ways of climbing over those hurdles.
07/02/2014 13:54 GMT
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