Diagnosis

I Became Chief Executive Of A UK M.E. Charity - And Then My Son Was Diagnosed With M.E. Too

Sonya Chowdhury | Posted 22.05.2017 | UK Parents
Sonya Chowdhury

Danny says the one thing that has really added to his severe exhaustion and frustration is having to continually explain how M.E. is not just feeling tired. By sharing his story, I hope that others affected by M.E. have to do this a little less.

What To Expect When You're Expecting (A Baby With A Cleft Lip And Palate)

Anna Martindale | Posted 08.05.2017 | UK Parents
Anna Martindale

Candy and Alex's experiences are far from unique. In the UK alone, 1,200 babies will be born with a cleft in 2017. It's a lifelong condition, but the journey starts at diagnosis. Many parents describe this moment as one they'll never forget, the instant when everything changed and this condition they may never have heard of before suddenly became a central part of their lives.

Living With Tourettes Syndrome

Katy Mann | Posted 21.03.2017 | UK Lifestyle
Katy Mann

Last year I spent a lovely couple of weeks in France with friends. Thankfully friends who understand that I shout at them and their children. My current shout-ism is "c**k", which we've managed to pretend is "cake", "cot" and "cod" amongst many others.

Dealing With An Epilepsy Diagnosis

Katy Mann | Posted 17.03.2017 | UK Lifestyle
Katy Mann

So the purpose of this blog is to see the funny side of life. Life may be very difficult right now but I still have my sense of humour. I can only compare my life at the moment to one of a slug. I spend most of my time horizontal and moving slowly from room to room. The difference is I have arms so while I may feel as useless as a slug right now I still have the ability to type.

Testimonial Injustice And Borderline Personality Disorder

Dr Jay Watts | Posted 14.02.2017 | UK
Dr Jay Watts

Mental health services are supposed to help. But sometimes psychiatric professionals cause damage by denting the credibility of individuals, a legacy ...

In The Beginning....

Tina Medlock | Posted 16.11.2016 | UK Parents
Tina Medlock

So now, here I go again and I suppose ultimately and selfishly I wanted to feel I have gained something from my ramblings but equally if I can help others in similar situations that would be fantastic. Some of what has already been written was done with tears and some with laughter and hopefully you will see the rollercoaster life that we lead in living with autism.

A Review Of 'Uniquely Human, A Different Way Of Seeing Autism' By Dr. Barry M Prizant

Matt Davis | Posted 12.10.2016 | UK Parents
Matt Davis

This book appeared at an apposite time. After the vagaries of a vacation - "parents dread school vacations," the author, Dr. Barry M. Prizant, confirms at one point - it's a little like a refresher course for parents like me who are feeling drained by autism.

CDKL5 - Could This Be the Diagnosis You Seek?

Jonnie Temple | Posted 06.06.2016 | UK Parents
Jonnie Temple

It might be that your child has severe epilepsy and disabilities, but no diagnosis. Keep pushing, keep exploring the different options, and rarer conditions like Dravet and CDKL5. But more and more children are being diagnosed with CDKL5 as awareness spreads. We can all do something to share and make others aware of these condtions

Dementia Is Not a Death Sentence

Jeremy Hughes | Posted 21.05.2017 | UK
Jeremy Hughes

Great progress has been made on dementia, but that these misunderstandings still put people off addressing their fears shows that we have a long way to go. Now is the time for all of us to tackle dementia by confronting it head on - in Dementia Awareness Week, and beyond it.

Read This Story and Have the Courage to Back Yourself

Jojo Furnival | Posted 17.05.2017 | UK Lifestyle
Jojo Furnival

How things have changed. How was I so sure of myself when I was two, and 28 years later it's the hardest thing in the world for me to 'back myself'? You know, assert my beliefs, my view, to have the courage of my convictions.

Asthma Inhalers - Why the Life-Saver in Your Pocket Is Not, and Never Will Be, a Fashion Accessory

Sonia Munde | Posted 26.04.2017 | UK Lifestyle
Sonia Munde

Did you know that three people will die today because of asthma attacks? Preventable asthma attacks. We all know someone who has asthma, 1 in 11 people have the condition, but because of this there is a common misconception that as an illness it is sorted; 'you just take a puff on your inhaler and you'll be fine'. But many people are not fine.

The One With the A Word

Georgy Jamieson | Posted 19.03.2017 | UK Parents
Georgy Jamieson

The boy has been diagnosed with high functioning autism. High functioning means he's the lower end of the autistic spectrum and more able to function in everyday society.

Why Being Diagnosed With CFS Changed My Life for the Better

Sarah Brook | Posted 23.12.2016 | UK Lifestyle
Sarah Brook

Without a diagnosis, I was ashamed to live in my own sickly body. In a state of perpetual conflict, I'd psychologically disown it, wishing it belonged to someone else. I started lying to it, "You're fine - the problem is in your head".

Time to End the Autism Diagnosis Crisis

Mark Lever | Posted 18.11.2016 | UK
Mark Lever

I've been at The National Autistic Society (NAS) for over eight years now and I'm still taken aback when I hear just how difficult it is to get a diagnosis - the days, months and years of pain and distress families have to go through just to understand who they are and to have a chance of getting support.

Breathing Away: Bringing Down Child Deaths From Pneumonia

Ilya Jones | Posted 10.11.2016 | UK
Ilya Jones

A girl in Cambodia is assessed for pneumonia. Copyright Malaria Consortium/Peter Caton Today is World Pneumonia Day - a time to recognise the fact th...

Is Mental Suffering Really 'Just Like Any Other Illness'?

Dr Jay Watts | Posted 03.11.2016 | UK Lifestyle
Dr Jay Watts

Alastair Campbell, Ruby Wax, Bob Geldof are amongst the signatories of a powerful open letter published this week. The letter argues that mental healt...

What My Son's Dyspraxia Taught Me About His Autism

Matt Davis | Posted 18.09.2016 | UK Parents
Matt Davis

The impacts on everyday tasks are huge. Picking up cutlery on a laid, full table and eating a meal is terrifically tortuous for him such are the fine spatial and visual skills needed. He sees everything, all seemingly separate unconnected objects; this photographic memory is a handicap as well as something incredible.

A breath Test to Diagnose Parkinson's - Hard Science or Hot Air?

Steve Ford | Posted 12.04.2015 | UK
Steve Ford

We've been struggling for decades to find the answer - a definitive diagnostic test for Parkinson's. So far brain scans, blood tests and urine samples haven't come up with the goods. As a result there's often doubt, and even error, in Parkinson's diagnosis, particularly in the early stages.

It's Every Mother's Fear That She Will Leave Behind Her Children

Jean Gross | Posted 20.03.2015 | UK Lifestyle
Jean Gross

It's every mother's greatest fear that she will have to leave her children. My daughter Kate Gross lived with that fear for more than two years, before she died of colon cancer a few weeks ago. I wish she was here now so I could tell her that the boys are getting on just fine. Oscar and Isaac were three when Kate was first diagnosed. Twins, but very different little beings. Oscar dark-haired, violet-eyed, solid - and with an astonishing ability (in Kate's words) to 'focus on things, to know them utterly'. Isaac, blond and agile and restless. 'Each of them,' she says, 'carved out his own space in my heart, a space which fits him exactly.'

Diagnosis: Infertility

Jane Newman | Posted 14.03.2015 | UK Lifestyle
Jane Newman

More needs to be done to educate people in fertility matters. By this I mean that when trying for a baby it is not as simple as making the decision, doing the deed, and nine months later your baby arrives.

Labels - For Jars or People?

Fiona Kennedy | Posted 13.02.2015 | UK Lifestyle
Fiona Kennedy

I don't like my labels. I didn't ask for them, and I would certainly rather I didn't have them. But I do. They don't define me, and they're not all I am, not by a long shot. But accepting them, rather than fighting them, has brought me just that bit closer to being able to manage them. So go ahead, label me, it helps. Just don't judge me.

Screening Our Bodies...or Screening Our Thoughts?

Tony Lobl | Posted 30.12.2014 | UK Lifestyle
Tony Lobl

That's certainly the case for prostate cancer screening in men, according to researchers in Canada who last week recommended scrapping PSA (prostate-specific antigen) testing, even for those considered high risk.

The Dementia Crisis- It Wont Be Improved By Biasing Doctors' Advice

John Watson | Posted 29.12.2014 | UK Lifestyle
John Watson

Right at the beginning of Jerome K Jerome's masterpiece "Three men in a boat," the hero picks up a medical dictionary and discovers that he has the symptoms of every disease mentioned with the exception of housemaid's knee. The prescription he is given surprises him. After beer, steak, exercise and early bedtimes, it ends with the words "and don't stuff up your head with things you don't understand."

Life After Cancer...

Jayne Molyneux | Posted 01.12.2014 | UK Lifestyle
Jayne Molyneux

For many, these fears don't evaporate when they finish treatment. We spoke to post-cancer patients and found that nearly a third (30%*) felt under pressure to 'bounce back' more quickly that they would have liked after treatment. For more than a quarter (28%) the expected 'euphoria' of being given the 'all clear' was actually replaced by the fact they simply felt 'emotionally drained'.

On Jellyfish and Listening to the Futures

Green Futures | Posted 16.09.2014 | UK
Green Futures

As atmospheric carbon levels reach seemingly implacable heights, the degree to which sustainable solutions must be implemented follows suit. And yet, little headway has been made on this critical issue, at least according to recent forecasts from the Intergovernmental Panel on Climate Change, which released its Fifth Assessment Report earlier this year.