Whether in terms of regulation, research or public expectation, there appear to be differences in the way commercial, research and clinical sectors are operating with health data...if researchers, health professionals and technology companies continue to work in silos, then application of big data to healthcare will remain as potential rather than reality.
Our generation will not be the first to have a difficult conversation about emerging scientific technologies; just ask your parents about test-tube babies. But in my opinion, there has been no conversation as difficult as the one surrounding Synthetic Biology. Despite being a student of science, I am firmly of the belief that every one of us needs to be involved.
Imagine a scenario where that tiny little human life you created receives an earth shattering diagnosis. The doctors have no information about what it means or how it will affect your little one. Your family is left at the crossroads. You don't know where to go or who to turn to. What help will my child need? How can I get it? Where do I get information? Who can help me and my family? Why me, why us?