14/12/2009 16:58 GMT | Updated 22/05/2015 10:12 BST

Fatally Fragile: A Bump Or Bruise Could Kill This Baby Boy

For most kids falling over and bumping themselves is all part of growing up, but for eight-month-old Kyler Musgrove even a minor injury could prove fatal.

Kyler has Wiskott-Aldrich syndrome (WAS), a rare genetic disorder, which affects platelets, making the victim more vulnerable to infection.

It also interferes with blood clotting, which means mum Jill has to keep a special eye on her little boy.

The time when a baby begins to take their first steps can be nerve-wracking for most parents, but for Kyler's mum and dad, the consequences of a bump or fall could be devastating.

When he was only a few days old Kyler was diagnosed with the disorder when he hadn't stopped bleeding days after his circumcision.

So rare is the disease, only four to ten in a million children inherit the disorder, which almost always affects boys.

Until recently, many children with WAS were only expected to live for a few years. Now there are more options for treatment, although they remain extremely risky.

Kyler's parents have decided that a bone marrow transplant will give their son the best chance for a normal healthy life. The surgery provides the only possibility of a cure but it is particularly risky for such a young child.

Like all children diagnosed with Wiskott-Aldrich syndrome, little Kyler has to be treated very differently from other children. He has a protective plastic shield around his pram and he cannot play with other kids for fear of picking up an infection.

With Kyler's surgery only a few weeks away, the family hope the cord blood he is about to receive turns out to be the greatest Christmas present ever.

"I am so excited that it's Christmas," says mum Jill, "but for the first time in my life, I am dreading it because we are about to go into the hospital. And we don't say this around the house but I know that this could be his only Christmas."

Let's hope that the New Year sees Kyler get the chance to be a normal, happy, healthy little boy.