When it comes to my great passion, dementia, the UK's major charities - Alzheimer's Society, Alzheimer's Research UK and Dementia UK - are all becoming household names. Interestingly though, when my story of my dad's life with dementia was unknown, it was a charity hardly anyone in the dementia world talks about who showed most interest in me.
Progress is urgently needed in understanding Alzheimer's disease and in finding effective treatments. Available drugs can help stabilise memory loss and confusion for a few months in about half of patients, but no preventative treatments exist and none that slow the inexorable development of the disease.
Dementia Awareness Week, organised by the Alzheimer's Society, is this week. It is an annual event designed to shed some light on a condition that is all too often often misunderstood, and to encourage anyone who feels as if they, or someone they are close to, might be suffering with symptoms to take some action.
Carol Rogers, the executive director for Education and Communities at National Museums Liverpool, came up with a project that is having a powerful imp...
There are concerns: fears about inauthentic relationships, particularly with respect to end of life care. Our acceptance of introducing human-like but not actually human helpers might qualify as an infringement on personal dignity. So, the next step should be targeted attention on specialized 'bots that will be able to assist and care for older adults.
In a visit marked mainly by quietness and enquiring looks, I spent part of the Easter weekend with an older relative who struggles to connect the adult I've become with the child she'd always known. In her mind, I'm still away at university - fixed forever in a time which, in her mind, defines me.
Too often I meet people who have been too afraid to seek medical advice because they fear the diagnosis of dementia. We must reinforce the reality that people can live a good life with dementia, so that people may receive a timely diagnosis without the fear of being stigmatised.
We're shifting our attention to how exercise in your earlier years may impact your thinking skills later in life. The evidence so far suggests that exercise may have a role to play at every stage of mental development and preservation - from young adulthood through to your elderly years.
It's no secret that better collaboration between scientists can lead to new insights and faster discoveries, and the world's richest countries are now using this idea globally to push for a dementia cure.
What makes music so important to the aspiration of living well with dementia? To put it simply, music transcends dementia. Living with most forms of dementia, even in the latter stages, doesn't affect a person's ability to enjoy music, follow it and contribute to its creation.
It's that time of year again. We've overindulged and now feel slightly guilty about it. Well I do anyway. So our thoughts turn to healthy eating - something we're constantly told is good for us and can help lower our risk of a whole range of diseases. Is it true? Can what we eat affect our chances of developing dementia?
Dementia, in common with many terminal diseases, polarises opinion when it comes to the priorities different individuals and groups have. For me, finding merit in every argument isn't difficult. Take for example families who have a loved one currently living with dementia; their priority is generally for improved care and support now. Who wouldn't agree with that?
We will be looking for policies for working carers as well as decent standards in the design of work, lifelong learning / job training, flexible working, and benefits which generally support the health and financial security of employees.
Alzheimer's is not the only dementia. Alcohol dementia, is also known as alcohol-related brain damage (ARBD) and alcohol-related brain injury (ARBI), and is linked with Wernicke's encephalopathy and Korsakoff's syndrome. With all these complex names, it's perhaps not surprising that the direct link between alcohol consumption and dementia isn't clear.
While we do not have the disease, our own lives can become overshadowed and change. We may lose part of ourselves (hopes, aspirations, freedom, love and support) and a level of being care-free: without having to worry, without having to care for another.
If you haven't been personally touched by dementia you may be wondering why it deserves this platform. Why aren't other diseases afforded the same global attention you may ask? But that's just it, they have been.