End of Life Care

Planning For The End Of My Life, Aged Just 17, Made Me Ensure I Wasn't Forgotten

Lucy Watts MBE | Posted 26.09.2017 | UK
Lucy Watts MBE

life less ordinary banner As my mum, my hospice nurse and I sat going through the plan and documenting my wishes, I suddenly blurted out that I was scared I'd die and be forgotten, that nothing would be different or better because of me and my life wouldn't have meant anything. It even surprised me, what I'd said, as I'd not consciously ever really thought about that. That sudden exclamation would change my life.

We Need To Open Up Hospice Care To More People

Jonathan Ellis | Posted 10.07.2017 | UK
Jonathan Ellis

It is important that more people are aware about the benefits of hospice care. This will become ever more urgent in the future as our ageing population increases, with more people living for longer, often with complex health conditions. In addition, more children and young people with life-shortening conditions are living for longer due to advances in medical care.

Lessons From The Hospice

Holly Matthews | Posted 04.07.2017 | UK Lifestyle
Holly Matthews

Before making the decision to move Ross into a hospice, I was caring for him at home and feeling pretty useless. Being able to allow Ross to be given the care he deserves has allowed me to have some much needed quality time and be free to be his wife, not his carer.

To Achieve Radical Change End-Of-Life Providers Need To Address Some Home Truths

Lloyd Riley | Posted 24.05.2017 | UK
Lloyd Riley

When doctors argue against assisted dying they are ignoring evidence that shows that greater patient choice is key to improving end-of-life care. Dyin...

A Long Goodbye: When Dementia Takes Someone You Love

Jessica Hanson | Posted 14.05.2017 | UK Lifestyle
Jessica Hanson

Slowly, painfully slowly, the good days were fewer and fewer, and our visits mainly consisted of us trying to make conversation with someone who barely knew we were there. My grandma would dutifully feed him biscuits when we visited. A woman in the corner of the day room, with white hair that stood on end, screamed periodically like a crowing rooster. The nurses seemed kind.

Improving End-Of-Life Care Needs To Become A Much Greater Local Priority

Jonathan Ellis | Posted 03.03.2017 | UK
Jonathan Ellis

This week saw the launch of new research showing stark variation in palliative care provision across different services and between different regions ...

We Bring As Much Warmth And Light To Those Spending Christmas At The Hospice As We Can

Polly Woodford | Posted 13.12.2016 | UK Lifestyle
Polly Woodford

giving back.jpg Christmas in Britain comes at a cold, dark time of year. At the hospice, as elsewhere, we dress the wards up to keep the cold and dark at bay, and bring as much warmth and light to those spending Christmas with us as we can.

It's An Immense Privilege Spending Time With People At The End Of Their Lives

Kate Ward | Posted 06.12.2016 | UK
Kate Ward

giving back.jpg It is easy in our work to forget the impact we can have on those we care for, as it is something we all love doing. It is an immense privilege spending time with people towards the end of their lives and such rewarding work. Sometimes though, there are extra special moments and that Christmas day was one of them.

End Of Life Care – Charities Are Filling Government Gaps

Catherine McKinnell | Posted 05.12.2016 | UK Politics
Catherine McKinnell

I was reminded of the valued contribution of the charity sector and its volunteers to end of life care when I recently met with a local Marie Curie Helper volunteer, who was providing incredible support and companionship to a constituent affected by a terminal illness.

Why A Person's Death Should Never Be Painful

Clare Periton | Posted 14.10.2017 | UK
Clare Periton

Last Saturday 8th October marked World Hospice and Palliative Care Day, and this year the theme is 'living and dying in pain: it doesn't have to happen' - an important message on an even more important day. It has now been statistically proven that people who receive palliative care can live for longer.

It Is Time To Have A Conversation About End Of Life Care

Shaun Bailey | Posted 24.08.2017 | UK Politics
Shaun Bailey

Many people will struggle to get the care that they need as they approach the end of their life. According to Marie Curie, between now and 2020, approximately 250,000 people will die in London. We need to ensure that everyone who needs end of life care can expect to receive a high level of care that is personalised, coordinated, and sensitive to the needs of those around the patient as they enter their final months, weeks and days.

What will the Government's new national commitment on end of life care mean for hospices?

Jonathan Ellis | Posted 19.08.2017 | UK Politics
Jonathan Ellis

Hospices also have an important part to play in raising awareness of the new national commitment to end of life care. Their longstanding expertise in providing quality, compassionate care and their widespread links with organisations across their local communities, means their role will be crucial to help deliver the transformation in care for dying people that the Government desires and which is so urgently needed.

Our Commitment Is That Every Person Nearing the End of Their Life Should Expect a Good Death

Ben Gummer | Posted 07.07.2017 | UK Politics
Ben Gummer

A good death - peaceful, dignified, reflective, compassionate, in the loving embrace of those closest to the dying person - is already a happy end for hundreds of thousands of people across our nation. In making this commitment, we make that promise universal, so that every dying person in England can live in anticipation of a good death.

Needs of Dying People 'Not a Priority' for Many Local Health and Care Leaders

Jonathan Ellis | Posted 18.06.2017 | UK
Jonathan Ellis

In recent years there has been a string of national reports highlighting persistent failings in care for dying people, whether in terms of the quality of care provided or problems getting the right support.

We're All Responsible for Supporting People Through Dying, Death and Bereavement

Andrew Grey | Posted 22.04.2017 | UK
Andrew Grey

By taking time to provide support, we help people when they most need it; we can help improve the health and wellbeing of carers and bereaved people; and we can build compassionate communities which show that - in the words of the Dying Well Community Charter - caring for one another at times of crisis and loss is everybody's responsibility.

Faith, Care and End of Life - Rubbing Along Together

Daniel Singleton | Posted 10.03.2017 | UK
Daniel Singleton

My Granddad's final words to me came after I had prayed with him, - I thought he wasn't really conscious but then my mum and I heard him say 'Thank you' - it was the same gruff thanks I remember whenever I gave him presents at Christmas time as a child. I have to confess it was a moment to shed and happy sad tear. He had been aware, had appreciated my small action, and was resting again.

Quality End-Of-Life Care Must Be Universal

Clare Periton | Posted 12.02.2017 | UK
Clare Periton

People die all the time, much as babies are born all the time. What lies at the centre of good palliative care is the ability to listen and shape treatment and care around the individual, thinking about their needs, not just their symptoms.

Why Is Choice in End of Life Care So Elusive?

Jonathan Ellis | Posted 10.02.2017 | UK
Jonathan Ellis

Choice has become the mantra and the mode of modern daily life. When it comes to personal preferences, whether it concerns Starbucks or schools, the...

Dementia Awareness, Transparency and Better Pay: What 2015 Has Meant for Care

Davina Ludlow | Posted 23.12.2016 | UK
Davina Ludlow

While the care sector often receives less attention than the sound bite-ready NHS, we mustn't forget about the significant progress that has been made...

Dying to Be at Home - Why We Need to Get Serious About End of Life Care

Andrew Grey | Posted 11.12.2016 | UK
Andrew Grey

Kate's story shows just how important it is for commissioners and service-providers to do their best to help people who are approaching the end of life to stay out of hospital. They can save on costs and beds in a severely over-stretched NHS - and most importantly, they can help make it possible for dying people to be cared for in the place they want to be.

Improvements in End of Life Care Must Be Funded, And 20,000 People Agree With Us

Nikki Hill | Posted 27.10.2016 | UK
Nikki Hill

At the height of the summer, Marie and I wrote an open letter to the Chancellor George Osborne urging him to include funding for improvements in end o...

The First Days of Grief

Naomi Barrow | Posted 28.10.2016 | UK Universities & Education
Naomi Barrow

Mum died on Friday. She had a 'good death'. Those in palliative medicine define a 'good death' as one where the dying person is symptom free, in the place they want to be, with the people they want to be with. Mum died symptom free, in our lounge, with Dad by her side. Saying 'Mum died' might seem blunt to some, but that's what happened. Mum worked in palliative medicine all of her life and as a family we've always spoken about death and end of life care openly and honestly, so it seems only appropriate that we continue that when discussing Mum's death.

The Last Days of Life

Naomi Barrow | Posted 20.10.2016 | UK Universities & Education
Naomi Barrow

I can't imagine how it must feel to wonder which part of your body might fail on you next, to know that you might not live to the weekend and will never feel the sun on your skin again. Yet, she faces it with a dignity and grace that most of us can't muster when faced with the prospect of a half-hour trip on a weird smelling bus, never mind much else.

Making End of Life Care Excellent Across the Country

Ben Gummer | Posted 20.10.2016 | UK Politics
Ben Gummer

Already there is excellent end of life care all over the country, so excellence is not exceptional. It is why we do so well in the international comparisons. But excellence is a long, long way from universal...

Open Letter to Chancellor George Osborne Calling for Better Choice at the End of Life for People Affected By Cancer

Nikki Hill | Posted 13.08.2016 | UK Politics
Nikki Hill

We know you recognise the importance of improving end of life care and committed to this in your manifesto. We want you to keep that promise and ensure that people who are nearing the end of their life are supported to die in the place and manner of their choosing.