Five Things People (Katie Hopkins Included) Need To Know About Dementia

Katie Hopkins, Here's 5 Things You Need To Know About Dementia
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Dementia finally got the recognition it deserved following the Oscar-winning success of Still Alice starring Julianne Moore, a story about a professor who suffers from Alzheimer's Disease.

But despite the debilitating health condition being at the forefront of conversation, there's still an air of uncertainty among some people as to what it actually is.

Recently, Katie Hopkins branded dementia sufferers as "bed blockers" in hospitals. She tweeted: “Dementia sufferers should not be blocking beds. What is the point of life when you no longer know you are living it? Bang me over the head.”

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Her controversial tweet was met with disgust and she has since been accused of making "disgraceful" and "ill-informed" remarks about dementia patients by leading charity, Alzheimer's Society.

So what's the deal with dementia?

Simply put, dementia is a term used to describe a set of symptoms which usually include memory loss and difficulties with thinking, problem-solving or speaking. Sufferers may also experience changes in their mood or behaviour.

Scratch beneath the surface, and it's quite a complex condition with varying degrees of severity depending upon the patient.

Here are five other things you need to know about it:

1) Sufferers have no true understanding of their situation

Dementia is caused when the brain is damaged by diseases such as Alzheimer's disease or a series of strokes, says the Alzheimer's Society.

Blogging for HuffPost UK, Paul Marshall writes about his mother: "She, in common with many fellow sufferers, has no idea of her plight. I'm not sure she's ever genuinely known.

"From the very first noticeable stages when she kept on phoning to insist that someone had broken into her home and replaced the knobs on the washing machine to the Christmas shortly afterwards when she spent the whole day playing with invisible cats (quite an Actors Studio performance as it turned out), her grasp on reality quickly loosened, leaving her to live in some kind of permanent fog which never cleared."

2) It takes away the person you love in every aspect

"They don't tell you how to deal with your previously kind, gentle mother swearing at you and hitting you in the head as you desperately coax her into the shower to try and get rid of the ever-present smell of urine.

"They don't tell you what sort of nappies to buy when she becomes incontinent; let alone how you're supposed to persuade her to wear one, or how to stop her taking it off and stashing it in a pillow case.

"They don't tell you how to persuade her to take her medication when she's screaming that she's going to call the police because you're clearly a member of the Gestapo who's trying to poison her."

3) It is utterly exhausting for friends and family

As Kathy Ritchie, blogger on My Demented Mom puts it: "When you’re in the thick of caregiving, you are the one who is often sidelined. You become a prisoner to your loved one and your home. You don’t have time to reach out, check in and let friends and family know that you’re okay.

"Caregiving is about survival. It’s about getting through the day (and, sometimes, the night). It’s exhausting work."

"Think about it, if your child was sick would you CHOOSE to take care of them? It's the same basic fact. They are our loved ones. It doesn't matter what the relationship is the fact remains that they need our love, help and most importantly our support."

4) As a carer, you must and should ask for help

Blogging on the Huffington Post, author Marie Marley writes: "The decision to place a loved one in a care facility can be agonising, but caregivers need to consider the following: 1) Long-term care placement can sometimes be the most loving choice for their loved one and 2) Caring for the loved one is probably seriously affecting their own physical and mental health and well-being.

"People can't be good caregivers if they are exhausted and burned out all the time."

5) People with dementia still deserve a quality of life

"The last two years of my mother's life, I wasn't sure she knew I was her daughter," says Martha Stettinius in a blog post on end of life planning. "She could not speak more than an occasional 'yes' or 'no'. She could not walk, or feed herself. She wore Depends.

"But her smile was stunning; she loved people. And I could tell that she loved me. She seemed to know that I was someone very special to her. If my mother had written an advance directive about withholding nourishment when her quality of life declined to a certain level, how could I have honored her wishes?

"Quality of life is slippery. What would never suffice one day, one year, is more than enough the next. And even a person living with advanced dementia is still 'in there' sometimes, in some moments."

She adds: "A person with dementia can still enjoy simple pleasures--and even share affection with loved ones. Yes, they are no longer the competent person they once were, but does that mean they would really want to leave the earth, to be denied sustenance?"

Early Symptoms of Dementia
No Initiative (01 of10)
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At times everyone can become tired of housework, business activities, or social obligations. However a person with dementia may become very passive, sitting in front of the television for hours, sleeping more than usual, or appear to lose interest in hobbies. (credit:John Rensten via Getty Images)
Changes in Personality (02 of10)
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A person with dementia may seem different from his or her usual self in ways that are difficult to pinpoint. A person may become suspicious, irritable, depressed, apathetic or anxious and agitated especially in situations where memory problems are causing difficulties. (credit:fStop Images - Carl Smith via Getty Images)
Mood Changes(03 of10)
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Everyone can become sad or moody from time to time. A person with dementia may become unusually emotional and experience rapid mood swings for no apparent reason. Alternatively a person with dementia may show less emotion than was usual previously. (credit:Mike Chick via Getty Images)
Misplace Things (04 of10)
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Anyone can temporarily misplace his or her wallet or keys. A person with dementia may put things in unusual places such as an iron in the fridge or a wristwatch in the sugar bowl. (credit:Oli Kellett via Getty Images)
Problems With Keeping Track of Things (05 of10)
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A person with dementia may find it difficult to follow a conversation or keep up with paying their bills. (credit:Chris Red via Getty Images)
Increasingly poor Judgement(06 of10)
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People with dementia may dress inappropriately, wearing several layers of clothes on a warm day or very few on a cold day. (credit:Jessica Peterson via Getty Images)
Distortion of Time and Place (07 of10)
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We sometimes forget the day of the week or where we are going but people with dementia can become lost in familiar places such as the road they live in, forget where they are or how they got there, and not know how to get back home. A person with dementia may also confuse night and day. (credit:Jupiterimages via Getty Images)
Problems With Language(08 of10)
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Occasionally everyone has trouble finding the right word but a person with dementia often forgets simple words or substitutes unusual words, making speech or writing hard to understand. (credit:Jupiterimages via Getty Images)
Difficulty Performing Familiar Tasks(09 of10)
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People with dementia often find it hard to complete everyday tasks that are so familiar we usually do not think about how to do them. A person with dementia may not know in what order to put clothes on or the steps for preparing a meal. (credit:Anthony Harvie via Getty Images)
Memory Loss(10 of10)
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Declining memory, especially short-term memory, is the most common early symptom of dementia. People with ordinary forgetfulness can still remember other facts associated with the thing they have forgotten. For example, they may briefly forget their next-door neighbour's name but they still know the person they are talking to is their next-door neighbour. A person with dementia will not only forget their neighbour's name but also the context. (credit:Compassionate Eye Foundation via Getty Images)