Woman Shares Shocking Photos Of How Endometriosis Affects Her Body To Show Reality Of Illness

'Endo is no joke.'
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A 27-year-old has shared photos revealing how endometriosis affects her body to prove the condition is “no joke”.

Thessy Kouzoukas, who is the co-owner of the fashion brand Sabo Skirt, has been diagnosed with the painful condition, which occurs when tissue that behaves like the lining of the womb is found outside of the womb.

These pieces of tissue can then be found in many different areas of the body, such as ovaries, on the lining of the pelvis behind the uterus and covering the top of the vagina, says the NHS Choices site. They can lead to the production of cysts. 

Kouzoukas shared images showing a ruptured cyst due to the condition.

 “This is quite shocking to people. This is me. This is endometriosis. I never intended to share these photos hence why I’m naked, but my God, I can’t believe the amount of DMs I’ve received from girls who have endo too and feel alone,“ she captioned the images.

“The left is my stomach three weeks after a ruptured cyst (five weeks ago). The right is me now, on a drug called ‘synarel’ that has stopped all my hormones and sent me into menopause at the age of 27.”

Symptoms of endometriosis include painful periods or heavy periods; pain in the lower abdomen, pelvis or lower back; pain during and after sex; bleeding between periods and difficulty getting pregnant.

Kouzoukas added that she hopes the drug will help her get “prepped in the best condition” for an operation she’s receiving in late August.

“Endo is no joke. I’ll be operated on for 7+ hours and hospitalised for a week,” she said.

“Please, spread the word about endo. And If you know anyone with bad period pain, please tell them to get checked for this. And to my girls with endo, you’re not alone.” 

More than 7,000 people have liked Kouzoukas’ post, with many women with endometriosis sending their love for the businesswoman.

“I feel your pain. I go through this every day. Inspiring you have shown this,” one user said.

Another added: “Thank you so much for posting this. I’ve had endo diagnosed since I was 17 and it’s been such an incredible struggle. Hoping all goes well for you.”  

Commenting on the images, Aly Dilks, sexual health expert and clinical director at The Women’s Health Clinic, said “cysts can be a very common side effect of endometriosis”.

“But they are difficult to identify without medical diagnosis, such as an ultrasound,” she told HuffPost UK.

“A cyst can grow inside the ovary but mimic the symptoms of endometriosis in general e.g. painful periods, pain during sex or bloating.

 “Around menstruation time certainly we would always advise an anti-inflammatory such as ibuprofen but with prolonged bleeding, bloating or menstrual-type pain at other times of the month, it is always best to get checked out by a health professional.”

She added that cysts can cause pain and inflammation around the reproductive organs “which in turn can produce pain and menstrual cramps throughout the monthly cycle, but occasionally they can grow in size, creating further problems including infertility as they stop our eggs from releasing”.

“I would always say it’s safer to get it checked out and please don’t be embarrassed by such a common condition,” she said.

“Chances are you will know someone who has the condition already, as one in 10 women in the UK are affected and 10% worldwide. So please, if you are worried, always consult a health professional.”

8 Celebrities With Endometriosis
Padma Lakshmi, TV Personality(01 of08)
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Padma Lakshmi, host of US TV show 'Top Chef', recently opened up about a lesser-known symptom of endometriosis: migraines.

She shared an Instagram photo of herself partially covering her face, with the caption: "Day 3 of endo induced migraine from clenching teeth due to cramps... even my ear hurts."

It's not the first time she's spoken out about living with endometriosis. The TV personality, who is also co-founder of the Endometriosis Foundation of America, previously revealed it took 23 years for her to get diagnosed.
(credit:Axelle/Bauer-Griffin via Getty Images)
Kate Ford, Actress(02 of08)
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Soap star Kate Ford said living with endometriosis is "not easy". She later told the Mirror: "Endometriosis is a chronic condition that has affected me for many years and every month is a struggle.

“As well as pain, there are also psychological symptoms. I’m working alongside a fabulous gynaecologist now to try to manage the condition.

"I’m pleased my tweet has raised awareness for a condition that is not fully understood.”
(credit:Ian West/PA Archive)
Daisy Ridley, Actress(03 of08)
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Star Wars actress Daisy Ridley took to Instagram to reveal that she had been battling endometriosis since her teens.

She said she was diagnosed with the illness aged 15 and her self-esteem suffered as a result. “Eight years down the line, pain was back (more mild this time!) and my skin was the worst,” she wrote.

Ridley asked others to speak to their doctor if they noticed something wasn't quite right. “My point is, to any of you who are suffering with anything, go to a doctor; pay for a specialist; get your hormones tested, get allergy testing; keep on top of how your body is feeling and don’t worry about sounding like a hypochondriac," she said.

"From your head to the tips of your toes we only have one body, let us all make sure ours our working in tip top condition, and take help if it’s needed."
(credit:Ian West/PA Wire)
Lena Dunham, Actress(04 of08)
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Lena Dunham is perhaps currently the most vocal celebrity when it comes to endometriosis. The 'Girls' star revealed last year that she was going to take time out from filming because of the condition.

"I am currently going through a rough patch with the illness and my body (along with my amazing doctors) let me know, in no uncertain terms, that it's time to rest," she wrote on Instagram.

"So many women with this disease literally don't have the option of time off and I won't take it for granted."

She has since shared a photo of herself in a bikini, with her endometriosis scars on show, which once again kickstarted conversations around what it's like to live with the condition.
(credit:Steve Granitz via Getty Images)
Emma Bunton, Singer(05 of08)
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Emma Bunton revealed that she was diagnosed with the "painful" condition in 2004 and shared fertility concerns.

"My doctors seem to think it is easing off, which would make it hopeful for me to have children," she said.

In 2012, Bunton revealed she was pregnant with her first child. She now has two sons, Beau and Tate.
(credit:Stuart C. Wilson via Getty Images)
Whoopi Goldberg, Actress(06 of08)
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Whoopi Goldberg spoke about the condition back in 2009 and was surprised to hear that many other women didn't know about it. After asking her daughter whether she'd heard of endometriosis, Goldberg knew she had to use her voice to get the message out.

Speaking at the Endo Foundation’s Blossom Ball, she said: "I thought we all knew about endometriosis. I thought we all knew that it was there and existed, why it happens."

"It occurred to me...that there are hundreds of thousands [of] girls out there that don’t know."
(credit:Ben Gabbe via Getty Images)
Susan Sarandon, Actress(07 of08)
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Susan Sarandon, who suffered from irregular bleeding and fainting, was first made aware of her condition back in 1983. She has since spoken at numerous events to raise awareness of endometriosis.

Despite doctors telling her she may struggle to have children due to the condition, she went on to have three.

She has since asked men to support the women in their lives who suffer with endometriosis.

"Help [the woman in your life] to remove the taboos and the loneliness surrounding this disease," she said at the Blossom Ball in 2011.

"Be understanding, show empathy, and don’t accuse her of being sensitive, delicate, or overly dramatic – this is a big opportunity for you guys to show that you care and to be a real man."
(credit:Jason LaVeris via Getty Images)
Dolly Parton, Singer(08 of08)
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Dolly Parton underwent a partial hysterectomy in 1984, aged 36. The surgery was reportedly related to endometriosis.

Years later, the singer opened up about how she had sunk into a deep depression during that time because she was no longer able to have children.
(credit:Gary Miller via Getty Images)