William needs 24/7 care, but he loves being with people, whether they are children or 'grown-ups'. If you're (not) expecting a child with cerebral palsy you won't be expecting the feelings of relief, comfort and happiness when you see them build relationships with adults who want to help them as much as you do.
<img alt="everybody banner" src="http://i.huffpost.com/gen/5399116/original.jpg" width="300" height="35" />
It is not easy to cater for all disabilities individually, I agree, however what if we start to cater for the most physically disabled instead of the least? If we are doing that then by default we will be including everyone won't we?
Imagine how they must feel to know that their brothers and sisters don't have to wear a nappy, or that their friends know they are wearing one. Imagine their embarrassment when they have to relieve themselves in a nappy, it must be so degrading.
I am one of the people who didn't find that news shocking at all. In fact, in an odd way I was pleased that it had happened to someone in the public eye, someone who was brave enough to come forward and tell the media about it so that finally our voices have a chance of being heard.
You may never have realised but most disabled toilets are not suitable for a lot of disabled people. The are simply a larger room with the addition of some grab rails, maybe an emergency pull cord and of course a wheelchair logo on the door.
Last nights BBC2 documentary 'A World Without Down's Syndrome?' has already raised a lot of questions before it was even aired and although my son doesn't have Downs syndrome it is still something which affected me during my pregnancy and the issues surrounding it continue to affect me today.
I saw a post on Twitter today that really angered me. One of our Gold medal winning Paralympians, Sophie Christiansen OBE, had been stranded on a train because Great Western had not ensured there was a ramp for her when she arrived at Paddington Station.
One of the most awkward things about having a disabled child is doing the weekly food shop which is why I seem to be in Tesco's every other day (my husband probably thinks I work there I'm there so regularly) So here are my top five things that supermarkets could easily change to make it way easier for us all..
There's one thing us Brits love to do isn't there... moan about the weather. So it may come as no surprise to you that 49% of us fly abroad at least once a year. But when you are disabled or have a loved one with a disability that is often not as appealing as it sounds and means that far fewer disabled people go on holiday than you may think.
If it is based on walking, talking or being potty trained then you could class my son as a baby because he can't do any of those things. He has quadriplegic cerebral palsy and can't sit or stand let alone walk, he also can't speak. He can use a toilet but he isn't toilet trained and still has to wear a nappy because he can't always let us know when he needs to go.
What I haven't seen are any posts about how to stop yourself becoming housebound during these long 6 weeks. Because sadly that is already the case for lots of families I know, and will continue to be until the schools reopen in September.
In 2016 I would have liked to have thought that the Equality Act 2010 would have ensured there are more adjustments being made nationally to ensure that families like mine are no longer being excluded.
You wouldn't tell someone they cant get up the stairs as you have no lift but direct them to another store that does have one! But this is what our high street household names are effectively doing by expecting someone else to provide a facility they could easily provide for customers that are asking for better facilities. It's time to stop passing the buck and take responsibility.
22/07/2016 12:17 BST
SUBSCRIBE AND FOLLOW
Get top stories and blog posts emailed to me each day. Newsletters may offer personalized content or advertisements.