Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.
And today, as conflicts and crises rage around the world, it's disabled children in affected areas who are among those most at risk. Often the first to be left behind and the last to have their needs met in chaotic emergency situations, children with disabilities face unprecedented adversity in conflicts.
Since qualifying, I have always had one eye to the future, worried about what will happen to my career and my relationships, and how my disability could make a hard career even tougher. While this victory with HEE is not going to improve everything, I now know that I will not struggle alone, isolated from my loved ones, while fighting a body that never learnt the rules. We still have a way to go, but I'm going to savour this win for a long while.
A child who is mentally 12-14 months old in a four-year-old's body is normal to us. But it's difficult for others to understand when his disabilities are - at first - invisible. Because he appears to them to be a typical four-year-old boy. I suppose, apart from the occasional what ifs, this is the hardest part. When other people get it, it's truly a real tonic.
Deaf women in Uganda were missing out on so much in life that I was inspired to set up the United Deaf Women's Organisation (UDEWO), in 2002. As executive director, I've been working to support and empower women ever since - I want to see a society where we are treated as equals. There were more than 126,000 deaf people in Uganda in 2002, and many of those are women.