A child who is mentally 12-14 months old in a four-year-old's body is normal to us. But it's difficult for others to understand when his disabilities are - at first - invisible. Because he appears to them to be a typical four-year-old boy. I suppose, apart from the occasional what ifs, this is the hardest part. When other people get it, it's truly a real tonic.
Deaf women in Uganda were missing out on so much in life that I was inspired to set up the United Deaf Women's Organisation (UDEWO), in 2002. As executive director, I've been working to support and empower women ever since - I want to see a society where we are treated as equals. There were more than 126,000 deaf people in Uganda in 2002, and many of those are women.
My body is a balancing act, in a number of ways. I want to be independent, but I need to accept help when I can't be. I want to stay upright, but can allow myself to sit down when I'm at risk of hurting myself. I want to keep mobile, but can use Ruby the Chair for this sometimes. And I'll probably keep throwing myself on the floor randomly. You'd all get bored otherwise.
Whenever filling out job applications, you are asked "Do you consider yourself to have a disability?". I've always said no. It turns out I did not of realised what a disability is. Perhaps it is a stigma or just the more obvious public image but when I say disability, my mind immediately goes to the logo on the disabled parking bays or people with special educational needs...
If David Cameron and George Osborne had been born to single parents living in social housing, perhaps they would look at life differently. Fate saw them born to privilege, but instead of softening their hearts, their good fortune has hardened them and fostered a belief that victimising the less fortunate is a viable social and economic policy.