Epilepsy

Women Unaware Of Risks Of Epilepsy Drug To Unborn Baby, Here's What Steps They Should Take

The Huffington Post | Amy Packham | Posted 22.09.2017 | UK Parents

Women with epilepsy who are pregnant or are planning to start a family may be worried about their treatment options, as a study has brought attention ...

I Have Epilepsy And I Just Walked Across Spain

Francesca Turauskis | Posted 06.09.2017 | UK Lifestyle
Francesca Turauskis

everybody banner A few hundred years ago, people would have thought I was touched by God or the Devil. I probably would have been burnt as a witch. Luckily for me, I was born in this century so I was diagnosed with epilepsy instead.

Why Mental Health Professionals Need To Know About Epilepsy, ADHD, ASD And Other Neurological Conditions

Sharon Ross | Posted 24.08.2017 | UK Lifestyle
Sharon Ross

I still have a significant journey to go on. Epilepsy is not an easy or straight forward condition to treat. But I am convinced now that I need to find an effective treatment plan for my epilepsy and if I find that then my mood will improve

Thinking About School Transport When Your Disabled Child Starts School

Laura Rutherford | Posted 21.08.2017 | UK Parents
Laura Rutherford

everybody banner Although, I wish so much Brody that we could have walked that path to your local school together, I know that your new school will take great care of you. I know that you'll meet lots of other boys and girls just as special as you are. And I know that you will continue to develop and amaze us - taking everything at your own pace, surrounded by love from people who care.

Bringing Epilepsy To The Forefront

Torie Robinson | Posted 01.08.2017 | UK Lifestyle
Torie Robinson

everybody banner I was delighted to see the video go live. At the time of writing, we've had over 248,000 views of the video - which is brilliant. It was such fun filming and it was great to be able to help educate viewers. Hopefully this media coverage will continue help to reduce the irrational fear of epilepsy and consequently, the discrimination and awkwardness that some people with the condition still face.

Is Disability A 'Dirty' Word?

Cece Alex Noel | Posted 31.07.2017 | UK Lifestyle
Cece Alex Noel

The response to the article was phenomenal. In fact, I'm still trying to respond to all of the comments! I never expected such a huge response, I just wanted to give a voice to Epilepsy. The original article I discussed in that post ruffled quite a few feathers within the disabled community, incredibly so...

I Have Epilepsy, But I'm NOT Invisible

Cece Alex Noel | Posted 25.07.2017 | UK Lifestyle
Cece Alex Noel

I'm disabled. Although, you wouldn't know from looking at me... The best thing about having epilepsy is having so many near-death experiences that teach you not to take life for granted.

I'm Not Ashamed To Sometimes Ask For Help

Laura Rutherford | Posted 09.08.2017 | UK Parents
Laura Rutherford

everybody banner Unfortunately, parents also have to battle and beg local services for help and equipment and, although personally to date, we've been very fortunate with our local services, I am well aware from friends and social media how the services you receive are somewhat a postcode lottery.

Living With Epilepsy

Katy Mann | Posted 06.07.2017 | UK Parents
Katy Mann

everybody banner My kids have devised several ways to help me. James walks behind me with a duvet so he can catch me when I fall. Emily holds on to me and tells me to "SIT DOWN MUMMY" when she sees me get up as only a bossy five year old can. James can push me short distances in the wheelchair and quite enjoys having that control over me! He threatens to push me down hills on a regular basis.

Anti-Epilepsy Drug Restores Normal Brain Activity In Alzheimer's Patients

The Huffington Post | Sophie Gallagher | Posted 26.06.2017 | UK Tech

Scientists have found that doses of a drug designed to treat epilepsy, also has a benefit in restoring normal brain activity in those with mild Alzhei...

National Epilepsy Week

Katy Mann | Posted 19.05.2017 | UK Lifestyle
Katy Mann

Living with epilepsy is really hard and it would be so much easier if people understood the condition more. As I don't have the typical tonic clonic seizures people find it hard to class it as epilepsy. I get asked all the time if I just fell but it was actually a seizure. I also have myoclonic seizures which are jerks and can be very subtle.

How Do I Know If It's A Seizure?

Laura Rutherford | Posted 09.08.2017 | UK Parents
Laura Rutherford

Laughing was never something I ever associated with seizures. Then late one night when I was heavily pregnant with our daughter, Brody was asleep next to me and began laughing hysterically. I turned round to face him and he started having a clonic tonic seizure (I miraculously managed not to go into labour).

The Lack Of Answers When Your Child Is Undiagnosed

Laura Rutherford | Posted 09.08.2017 | UK Parents
Laura Rutherford

Or at least if they don't know the answers straight away, they will in the end. It's not easy to process the reality that they can't always figure things out. That there are unknowns and sometimes - no matter how many tests - some syndromes are so rare they are a needle-in-a-haystack hard to find.

Meningitis And My Family

Katy Mann | Posted 25.04.2017 | UK Lifestyle
Katy Mann

Six and a half years ago my life was changed forever. My baby son Charlie was diagnosed with pneumococcal meningitis. It turned our world upside down when he died six days after his diagnosis. As we lay with our baby while he took his last breath we couldn't believe our cheeky little 15 week old boy had been so cruelly taken from us

More Seizures And Epilepsy Awareness

Katy Mann | Posted 13.04.2017 | UK Lifestyle
Katy Mann

It's been a rather eventful couple of weeks here. I posted on Facebook that I made it to school without my wheelchair one day. Oh how the universe laughed at me. It's all been downhill ever since. My seizures have been terrible the past two weeks.

Pregnant Teen Dies After Having Epileptic Fit In The Bath

The Huffington Post | Jasmin Gray | Posted 05.04.2017 | UK Universities & Education

A pregnant teenager has died after having an epileptic fit while taking a bath. Australian Megan Walsh was taking a bath at a friend’s house in New...

Tips For Parenting With Epilepsy

Katy Mann | Posted 04.04.2017 | UK Parents
Katy Mann

I was diagnosed with epilepsy almost a year ago now and one of the toughest challenges for me has been looking after my two children, James (9) and Emily (5). I have atonic seizures, which means I fall several times a day

Mother's Day With A Chronic Illness

Katy Mann | Posted 24.03.2017 | UK Lifestyle
Katy Mann

We went out for lunch on Sunday as an early Mother's Day treat and I almost face planted my lunch. A coat strategically placed on the table meant I could have a nap while eating. There's no choosing when I sleep, it's when my body allows me to stay awake. My social skills aren't great though!

Surviving A Sleepless Life...

Ruth Drake | Posted 20.03.2017 | UK Parents
Ruth Drake

Ultimately, support and understanding, not only from each other but also friends, family and work colleagues is what is paramount in retaining your health, sanity and relationship. Don't underestimate people, most folk have experienced a sleepless night and will know exactly how you feel if you're dealing with it on such a regular basis.

Dealing With An Epilepsy Diagnosis

Katy Mann | Posted 17.03.2017 | UK Lifestyle
Katy Mann

So the purpose of this blog is to see the funny side of life. Life may be very difficult right now but I still have my sense of humour. I can only compare my life at the moment to one of a slug. I spend most of my time horizontal and moving slowly from room to room. The difference is I have arms so while I may feel as useless as a slug right now I still have the ability to type.

Scientists Have Uncovered An Extreme Way To Boost Your Short-Term Memory

The Huffington Post | Oscar Williams | Posted 14.03.2017 | UK Tech

If you want to boost your memory, you could try out a brain-training app or give the ancient Greeks’ techniques a go. But it’s probably best to st...

People With Epilepsy Are Being Accused Of Drunkenness And It Has To Stop

The Huffington Post | Rachel Moss | Posted 31.01.2017 | UK Lifestyle

As Dry January ends, a charity is urging the public to think twice before assuming that a person who is staggering around in a confused state is drunk...

Acceptance

Laura Rutherford | Posted 09.08.2017 | UK Parents
Laura Rutherford

Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.

When Is It OK To Give Children Cannabis?

Mary Biles | Posted 28.11.2016 | UK Lifestyle
Mary Biles

Vera Twomey-Barry, mother of 6-year-old Ava who, who due to a rare genetic condition called Dravet Syndrome, suffers from as many as 20 epileptic seizures a day, decided to march the 300km to Dublin from her home in Cork.

Take It Back

Vikki Hammond | Posted 27.10.2016 | UK Parents
Vikki Hammond

Unless you have had experience of having a disability or caring for someone with a disability do not judge. Words hurt, we have feeling too. Every comment every snigger or every stare it stays in our heart. What you think you know, you know nothing. My child is my world, my life is not what I thought it would be, I am a carer I am a wife and a mum, I am no longer me.