Epilepsy

Birthdays & Butterflies - The First Chapter Of My Son's Epilepsy Story

Roisin McArdle | Posted 24.08.2016 | UK Parents
Roisin McArdle

Over the next week I observed a further 6 or 7 seizures. I spoke with his school teacher who said she had noticed a remarkable deterioration in his concentration and attention since the start of the school term and she had been planning to move him to the front of the class to be closer to her.

An Open Letter to the Local Council...

Rachel Wright | Posted 04.07.2016 | UK Parents
Rachel Wright

Once you are home, after your difficult day, I hope you are able to relax on the sofa with your loved ones. When you do, please spare a thought for this family who, as a result of your difficult day, have had this 'luxury' restricted.

Hello Epilepsy

Laura Rutherford | Posted 21.06.2016 | UK Parents
Laura Rutherford

When your child has epilepsy, it is a constant weight on your mind. Without fail, the moment that weight eases off, a seizure will happen - just to make sure you know it's still there. It's thoughtful like that.

CDKL5 - Could This Be the Diagnosis You Seek?

Jonnie Temple | Posted 06.06.2016 | UK Parents
Jonnie Temple

It might be that your child has severe epilepsy and disabilities, but no diagnosis. Keep pushing, keep exploring the different options, and rarer conditions like Dravet and CDKL5. But more and more children are being diagnosed with CDKL5 as awareness spreads. We can all do something to share and make others aware of these condtions

Saving Lives With the Tech That Saved Our Son

Adrian Perry | Posted 30.05.2016 | UK Tech
Adrian Perry

PulseGuard successfully alerted us to every one of Tom's seizures within the first two years of trials. Whilst talking to Tom's consultants, other Epilepsy professionals and parents, it was very clear that a lot of people were interested in having an alarm system that seemed to be as accurate as it was proving, but this would mean throwing everything we had into it.

Mum Films Daughter's Seizures To Alert Parents Of Little-Known Condition

The Huffington Post | Amy Packham | Posted 20.05.2016 | UK Parents

A mum filmed her daughter having seizures to alert other parents how to detect a rare form of childhood epilepsy. Belen Sullivan Robbins said her daug...

Women With Epilepsy Must Be 'Empowered' To Become Experts During Pregnancy

The Huffington Post | Amy Packham | Posted 19.05.2016 | UK Parents

Pregnant women with epilepsy are faced with worries that go beyond morning sickness and heightened hormones. They have to consider the likelihood of s...

Why I Kept My Epilepsy Hidden for So Long

Vicky Smith | Posted 13.04.2016 | UK Lifestyle
Vicky Smith

My early childhood memories are full of seizures, nasty medicines and hospital trips. I had tonic clonic seizures when I was asleep and absence seizures during the day. I lived on a cocktail of drugs while the doctors tried to work out what would work best for me.

Study Reveals Reassuring News For Pregnant Women With Epilepsy

The Huffington Post | Amy Packham | Posted 07.04.2016 | UK Parents

Women who take the epilepsy drug lamotrigine during pregnancy will not "significantly" increase the risk of their child having birth defects, a new st...

People With Autism 'Die 16 Years Earlier Than The General Population'

The Huffington Post | Rachel Moss | Posted 18.03.2016 | UK Lifestyle

People with autism are dying decades before the average person, research has revealed. Scientists from Sweden analysed data from 27,000 people with au...

Children With Disabilities Are Missing Out On Vital Play Opportunities

The Huffington Post UK | Amy Packham | Posted 24.02.2016 | UK Parents

Children with disabilities are missing out on play activities that are vital to their development, according to report released by Lord Blunkett. T...

Santa Naps With Toddler Who Just Suffered A Seizure

The Huffington Post UK | Amy Packham | Posted 09.12.2015 | UK Parents

A Santa in America pretended to sleep while a tired toddler recovering from a seizure napped in his lap. The result was a heartwarming photo that ...

This Is What It's Like To Have An Epileptic Seizure

The Huffington Post UK | Rachel Moss | Posted 26.10.2015 | UK Lifestyle

Tim Fry was out cycling when he began to have an epileptic seizure. By chance, he captured video footage of the moment he fell to the ground becau...

The Sad Reason Why This Girl Hasn't Had A Birthday Party For Four Years

Caters | Posted 16.09.2015 | UK Parents

A four-year-old girl hasn't had a birthday party for four years because the excitement could be life-threatening. Isla Smith, four, has Dravet syn...

Dog Warns Owner She Is Going To Have An Epileptic Seizure

The Huffington Post UK | Rachel Moss | Posted 28.08.2015 | UK Lifestyle

To Shannon Locke, Poppy is far more than a pet dog. The labrador pup warns the 23-year-old when she is about to have an epileptic seizure, meaning...

Critically Ill Teenager Finds Out He's Going To Disneyland, Internet Weeps With Joy

The Huffington Post UK | Sophie Brown | Posted 03.08.2015 | UK Parents

The beautiful moment a critically ill teenager found out he was going to Disneyland Paris has won the hearts of thousands on Facebook. 14-year-old...

Caroline Frost

Katie Hopkins' Worst Brain Surgery Fear Is Waking Up With A Welsh Accent

HuffingtonPost.com | Caroline Frost | Posted 31.07.2015 | UK Entertainment

Katie Hopkins has revealed that one of her worst fears about her forthcoming brain surgery is waking up with a Welsh accent. Controversial right-w...

Twitter Pulls 'Irresponsible' Ad After Epilepsy Fears

The Huffington Post UK | Thomas Tamblyn | Posted 13.07.2015 | UK Tech

Twitter UK has pulled a Vine ad after complaints that it would be dangerous to those suffering from photosensitive epilepsy. The advert was for Twi...

Katie Hopkins Pans River Island's Epilepsy Campaign

The Huffington Post UK | Daniel Welsh | Posted 27.05.2015 | UK Entertainment

Katie Hopkins has hit out at a new campaign to raise awareness of epilepsy, claiming that making light of the condition isn’t the answer. SEE MOR...

No, River Island, We Epileptics Don't Want to 'Seize the Day'

Katie Hopkins | Posted 27.05.2016 | UK Entertainment
Katie Hopkins

Anything which makes epilepsy slightly more mainstream is to be welcomed so that kids can feel like they aren't so weird after all. And why the bags River Island pushed out in conjunction with Epilepsy Action should be a good thing. 'Seize the day' they said - what a lark! Look at us eppys, nature's fruit cakes, laughing at ourselves and soldiering on. Look at us eppys, nature's fruit cakes, laughing at ourselves and soldiering on. What a hoot! We even shop in the High Street despite ourselves. But strangely enough, they aren't right. There is something odd about them.

What Should You Do If Someone Is Having An Epileptic Seizure?

The Huffington Post UK | Rachel Moss | Posted 19.05.2015 | UK Lifestyle

Epilepsy is estimated to affect more than 500,000 people in the UK, yet a recent survey of 2,000 British adults revealed 74% of us do not know what it...

The Crossing: My Life Changing Adventure

Ashley Wilson | Posted 18.05.2016 | UK
Ashley Wilson

This month I set off to row 3,600 miles across the Indian Ocean. In history, there have only been four successful attempts by a rowing pair. But the question I am asked most often is, 'why'? The answer is, 'because I can'! But of course like most things in life, it's not quite as simple as that. Let me explain...

Katie Hopkins Reveals Epilepsy Will Kill Her

The Huffington Post UK | Matt Bagwell | Posted 06.05.2015 | UK Entertainment

Katie Hopkins has revealed her epilepsy will eventually kill her in an open letter to her three children. READ MORE: Schoolboy Asks Nick Clegg If ...

Why Katie Hopkins Is an Inspiration

Carrie Armstrong | Posted 29.06.2015 | UK Entertainment
Carrie Armstrong

Katie Hopkins is hospitalised every 10 days on average because of her epilepsy. Every 10 days. I find the uncertainty of that utterly horrifying. I don't understand how she does it.

My Marathon Story: Blood, Sweat and Many, Many Tears

Lucy McGuire | Posted 24.06.2015 | UK Sport
Lucy McGuire

Running this event was something I'd felt an overwhelming urge to do for many years. But when my eldest sister, Joanne, unexpectedly passed away in 2004 following a life of severe epilepsy, my casual interest in running became a coping mechanism for unbearable grief.