Epilepsy

When Is It OK To Give Children Cannabis?

Mary Biles | Posted 28.11.2016 | UK Lifestyle
Mary Biles

Vera Twomey-Barry, mother of 6-year-old Ava who, who due to a rare genetic condition called Dravet Syndrome, suffers from as many as 20 epileptic seizures a day, decided to march the 300km to Dublin from her home in Cork.

Take It Back

Vikki Hammond | Posted 27.10.2016 | UK Parents
Vikki Hammond

Unless you have had experience of having a disability or caring for someone with a disability do not judge. Words hurt, we have feeling too. Every comment every snigger or every stare it stays in our heart. What you think you know, you know nothing. My child is my world, my life is not what I thought it would be, I am a carer I am a wife and a mum, I am no longer me.

Cannabis-Based Drug Could Help Thousands Of Epilepsy Patients, New Trial Suggests

The Huffington Post | Rachel Moss | Posted 03.10.2016 | UK Lifestyle

A drug derived from cannabis could dramatically improve the lives of people with epilepsy, new research suggests. Scientists at Great Ormond Street Ho...

Who Am I?

Vikki Hammond | Posted 12.09.2016 | UK Parents
Vikki Hammond

I am your voice, I do these things because I want the best for you. I want you here with me for as long as possible. Although what you have gone through is hard, and every day is a battle. I need you, here with me. Because without you I am nothing, I am no one. But with you I am your mum x

From The Heart, A Letter To My Children

Vikki Hammond | Posted 26.08.2016 | UK Parents
Vikki Hammond

Bailey summed it all up for me one day in the car.. "Mummy we are so lucky to have Kai, just think some people never get to experience someone like him. We are very lucky." With that sentence I felt my job was done, Kai has brought more joy into your life's than I could ever imagine.

Birthdays & Butterflies - The First Chapter Of My Son's Epilepsy Story

Roisin McArdle | Posted 24.08.2016 | UK Parents
Roisin McArdle

Over the next week I observed a further 6 or 7 seizures. I spoke with his school teacher who said she had noticed a remarkable deterioration in his concentration and attention since the start of the school term and she had been planning to move him to the front of the class to be closer to her.

An Open Letter to the Local Council...

Rachel Wright | Posted 04.07.2016 | UK Parents
Rachel Wright

Once you are home, after your difficult day, I hope you are able to relax on the sofa with your loved ones. When you do, please spare a thought for this family who, as a result of your difficult day, have had this 'luxury' restricted.

Hello Epilepsy

Laura Rutherford | Posted 21.06.2016 | UK Parents
Laura Rutherford

When your child has epilepsy, it is a constant weight on your mind. Without fail, the moment that weight eases off, a seizure will happen - just to make sure you know it's still there. It's thoughtful like that.

CDKL5 - Could This Be the Diagnosis You Seek?

Jonnie Temple | Posted 06.06.2016 | UK Parents
Jonnie Temple

It might be that your child has severe epilepsy and disabilities, but no diagnosis. Keep pushing, keep exploring the different options, and rarer conditions like Dravet and CDKL5. But more and more children are being diagnosed with CDKL5 as awareness spreads. We can all do something to share and make others aware of these condtions

Saving Lives With the Tech That Saved Our Son

Adrian Perry | Posted 30.05.2016 | UK Tech
Adrian Perry

PulseGuard successfully alerted us to every one of Tom's seizures within the first two years of trials. Whilst talking to Tom's consultants, other Epilepsy professionals and parents, it was very clear that a lot of people were interested in having an alarm system that seemed to be as accurate as it was proving, but this would mean throwing everything we had into it.

Mum Films Daughter's Seizures To Alert Parents Of Little-Known Condition

The Huffington Post | Amy Packham | Posted 20.05.2016 | UK Parents

A mum filmed her daughter having seizures to alert other parents how to detect a rare form of childhood epilepsy. Belen Sullivan Robbins said her daug...

Women With Epilepsy Must Be 'Empowered' To Become Experts During Pregnancy

The Huffington Post | Amy Packham | Posted 19.05.2016 | UK Parents

Pregnant women with epilepsy are faced with worries that go beyond morning sickness and heightened hormones. They have to consider the likelihood of s...

Why I Kept My Epilepsy Hidden for So Long

Vicky Smith | Posted 13.04.2016 | UK Lifestyle
Vicky Smith

My early childhood memories are full of seizures, nasty medicines and hospital trips. I had tonic clonic seizures when I was asleep and absence seizures during the day. I lived on a cocktail of drugs while the doctors tried to work out what would work best for me.

Study Reveals Reassuring News For Pregnant Women With Epilepsy

The Huffington Post | Amy Packham | Posted 07.04.2016 | UK Parents

Women who take the epilepsy drug lamotrigine during pregnancy will not "significantly" increase the risk of their child having birth defects, a new st...

People With Autism 'Die 16 Years Earlier Than The General Population'

The Huffington Post | Rachel Moss | Posted 18.03.2016 | UK Lifestyle

People with autism are dying decades before the average person, research has revealed. Scientists from Sweden analysed data from 27,000 people with au...

Children With Disabilities Are Missing Out On Vital Play Opportunities

The Huffington Post UK | Amy Packham | Posted 24.02.2016 | UK Parents

Children with disabilities are missing out on play activities that are vital to their development, according to report released by Lord Blunkett. T...

Santa Naps With Toddler Who Just Suffered A Seizure

The Huffington Post UK | Amy Packham | Posted 09.12.2015 | UK Parents

A Santa in America pretended to sleep while a tired toddler recovering from a seizure napped in his lap. The result was a heartwarming photo that ...

This Is What It's Like To Have An Epileptic Seizure

The Huffington Post UK | Rachel Moss | Posted 26.10.2015 | UK Lifestyle

Tim Fry was out cycling when he began to have an epileptic seizure. By chance, he captured video footage of the moment he fell to the ground becau...

The Sad Reason Why This Girl Hasn't Had A Birthday Party For Four Years

Caters | Posted 16.09.2015 | UK Parents

A four-year-old girl hasn't had a birthday party for four years because the excitement could be life-threatening. Isla Smith, four, has Dravet syn...

Dog Warns Owner She Is Going To Have An Epileptic Seizure

The Huffington Post UK | Rachel Moss | Posted 28.08.2015 | UK Lifestyle

To Shannon Locke, Poppy is far more than a pet dog. The labrador pup warns the 23-year-old when she is about to have an epileptic seizure, meaning...

Critically Ill Teenager Finds Out He's Going To Disneyland, Internet Weeps With Joy

The Huffington Post UK | Sophie Brown | Posted 03.08.2015 | UK Parents

The beautiful moment a critically ill teenager found out he was going to Disneyland Paris has won the hearts of thousands on Facebook. 14-year-old...

Caroline Frost

Katie Hopkins' Worst Brain Surgery Fear Is Waking Up With A Welsh Accent

HuffingtonPost.com | Caroline Frost | Posted 31.07.2015 | UK Entertainment

Katie Hopkins has revealed that one of her worst fears about her forthcoming brain surgery is waking up with a Welsh accent. Controversial right-w...

Twitter Pulls 'Irresponsible' Ad After Epilepsy Fears

The Huffington Post UK | Thomas Tamblyn | Posted 13.07.2015 | UK Tech

Twitter UK has pulled a Vine ad after complaints that it would be dangerous to those suffering from photosensitive epilepsy. The advert was for Twi...

Katie Hopkins Pans River Island's Epilepsy Campaign

The Huffington Post UK | Daniel Welsh | Posted 27.05.2015 | UK Entertainment

Katie Hopkins has hit out at a new campaign to raise awareness of epilepsy, claiming that making light of the condition isn’t the answer. SEE MOR...

No, River Island, We Epileptics Don't Want to 'Seize the Day'

Katie Hopkins | Posted 27.05.2016 | UK Entertainment
Katie Hopkins

Anything which makes epilepsy slightly more mainstream is to be welcomed so that kids can feel like they aren't so weird after all. And why the bags River Island pushed out in conjunction with Epilepsy Action should be a good thing. 'Seize the day' they said - what a lark! Look at us eppys, nature's fruit cakes, laughing at ourselves and soldiering on. Look at us eppys, nature's fruit cakes, laughing at ourselves and soldiering on. What a hoot! We even shop in the High Street despite ourselves. But strangely enough, they aren't right. There is something odd about them.