Cerebral Palsy

A Letter To My Newly Diagnosed Self

Chloe Tear | Posted 28.08.2017 | UK Universities & Education
Chloe Tear

everybody banner You're currently seven years old and are about to embark on a journey of a lifetime. This journey will show you the world in a completely new light, it will show you things you never thought you would see, and allow you to meet people you might otherwise have never met.

Fashion Blogger To Shave Head And Raise £30k For Little Boy With Cerebral Palsy

The Huffington Post | Natasha Hinde | Posted 22.08.2017 | UK Lifestyle

A fashion blogger who lost her brother, who had a rare genetic disorder, is set to shave her head so a young boy with cerebral palsy can access potent...

Are Physically Disabled Children Invisible?

Laura Moore | Posted 19.07.2017 | UK Parents
Laura Moore

everybody banner It is not easy to cater for all disabilities individually, I agree, however what if we start to cater for the most physically disabled instead of the least? If we are doing that then by default we will be including everyone won't we?

Love Note To Portage

Sally Craythorne | Posted 13.07.2017 | UK Parents
Sally Craythorne

everybody banner We became parents eleven weeks earlier than we should have, when Alice and Mary were born spontaneously at 29 weeks. We weren't allowed to hold them. They were rushed straight to NICU, where they remained for six weeks. About halfway through their stay, we were told Alice had PVL (Periventricular Leukomalacia) and that the chances were high for a future diagnosis of cerebral palsy.

Stephanie Davis Urges People To Donate To Help Send 4-Year-Old Cousin To America For Treatment

The Huffington Post | Amy Packham | Posted 03.07.2017 | UK Parents

Stephanie Davis has urged her social media followers to help her family raise £25,000 to send her four-year-old cousin with cerebral palsy to America...

Look For The Helpers

Ruth Drake | Posted 30.05.2017 | UK Parents
Ruth Drake

This is the message we must carry forward with us in the wake of this awful attack. As we as a family have come to know, there really is so much love and kindness in the world, sometimes you just need to open your eyes a little wider to see it.

Why I Have Cried Over The Kindness Of Strangers

Ruth Drake | Posted 23.05.2017 | UK Parents
Ruth Drake

Lately I may have been guilty of focusing on negative reactions to my daughter, Elin, who has Quadriplegic Cerebral Palsy. Although I feel strongly that it's important for me to write about these reactions for a myriad of reasons, it's equally important for me to redress the balance.

Post Partum PTSD Support Needs Addressing - For Both Mums and Dads

Ruth Drake | Posted 16.05.2017 | UK Parents
Ruth Drake

I don't think anybody would disagree that support for parents following trauma should be offered as soon as possible. However, due to an extremely underfunded and overworked NHS, this support is rarely forthcoming.

Why I Hate My Daughter's Hoist

Ruth Drake | Posted 09.05.2017 | UK Parents
Ruth Drake

I have a total and completely irrational hatred of the hoist. A hatred which far exceeds any feelings about other specialist inanimate objects that are necessary in our lives now that Elin is almost nine. Until now it's just been dangling in the corner of Elin's room like an evil science fiction-esque spider, which I avoid eye contact with.

Why I Lie To My Grandad

Ruth Drake | Posted 25.04.2017 | UK Parents
Ruth Drake

Elin started the Easter holiday this year by visiting her great nanny and grandad. Elin and my cousin's two gorgeous babies bring their great nanny a...

Dad's Facebook Appeal To Find Feeding Tube For Daughter With Cerebral Palsy Is Huge Success

The Huffington Post | Amy Packham | Posted 19.04.2017 | UK Parents

A dad who appealed on Facebook for a specific sized feeding tube for his daughter who has cerebral palsy, was overwhelmed by the response. Dan Grace, ...

To The Family Who Ignored Us At The Zoo

Ruth Drake | Posted 04.04.2017 | UK Parents
Ruth Drake

They were scared of how to react or what they should and shouldn't say to us in our isolating, unfamiliar situation. Maybe they just figured it's just easier to say nothing at all. Well here is my open letter to them about what would have been a more preferable response to us and why, perhaps by sharing this I can help others to feel more confident about interacting with families like ours.

Bride's Dream To Dance With Disabled Son Comes True Thanks To His Amazing Step-Dad

The Huffington Post | Rachel Moss | Posted 30.03.2017 | UK Lifestyle

A bride was left in tears after her new husband enabled her to dance with her disabled son on their wedding day. Jo Atrill had said she wished she cou...

A Ghost Of A Dress

Ruth Drake | Posted 28.03.2017 | UK Parents
Ruth Drake

Today I said goodbye to my wedding dress. I didn't, as I perhaps liked to imagine on the day that I wore it, give it to my daughter. I haven't kept i...

The Mother Of All Fears

Ruth Drake | Posted 22.03.2017 | UK Parents
Ruth Drake

How funny that 'Cerebral Palsy Awareness Day' this year should fall on the same weekend as Mother's Day, since really the two are interchangeable for me. I would like to say that Cerebral palsy has not defined my experiences of motherhood but of course that would be a lie. It has infiltrated every part of my life as a mum from the very moment Elin didn't take that first breath.

Surviving A Sleepless Life...

Ruth Drake | Posted 20.03.2017 | UK Parents
Ruth Drake

Ultimately, support and understanding, not only from each other but also friends, family and work colleagues is what is paramount in retaining your health, sanity and relationship. Don't underestimate people, most folk have experienced a sleepless night and will know exactly how you feel if you're dealing with it on such a regular basis.

Raising Awareness Of Changing Places Toilets This Disabled Access Day

Laura Rutherford | Posted 09.08.2017 | UK Parents
Laura Rutherford

I won't give up campaigning for my child to have the basic human right of access to a toilet when we're out and about. Why should he be excluded? Why shouldn't our family be welcomed everywhere like all other families?

My Daughter Knows No Hate

Ruth Drake | Posted 07.03.2017 | UK Parents
Ruth Drake

So yesterday I was dismayed, like almost every other day since the U.S Presidential Election, by yet another story of Donald Trump disrespecting someone and acting like a high school bully via that least appropriate of presidential platforms, Twitter.

Riding The Tube

Ruth Drake | Posted 28.02.2017 | UK Parents
Ruth Drake

So it was recently Tube Feeding Awareness Week and in the malaise of awareness weeks that the double-edged sword of social media has brought to us, this is one I could most definitely get behind. When I was pregnant I thought the only feeding choices for my baby were breast or bottle.

Choose Life

Ruth Drake | Posted 23.02.2017 | UK Parents
Ruth Drake

Sleep deprivation will twist your feelings and muddy your thoughts like nothing else. I figured I forced her existence by having IVF and that my selfish need to be a mum was being punished. But it wasn't just me being punished, it was Paul too but mostly and worst of all, it was Elin. They were categorically the worst few months of my life.

Bruce Springsteen Fan With Cerebral Palsy Goes To First Concert And It's Amazing To Watch

The Huffington Post | Amy Packham | Posted 20.02.2017 | UK Parents

A Bruce Springsteen fan who has cerebral palsy and vision impairment went to his first ever gig, and absolutely loved it. The boy’s dad, Tony Wilson...

Empowering Hashtag Celebrates The Beauty Of Disabled People And Their Bodies

The Huffington Post | Natasha Hinde | Posted 16.02.2017 | UK Lifestyle

A journalist with cerebral palsy has launched a social media campaign encouraging disabled people to love themselves, loud and proud. #DisabledAndCut...

I Don't Want To Read Books That Treat Disability As A Tragedy

Anne Suslak | Posted 02.02.2017 | UK Lifestyle
Anne Suslak

I don't want to read books that treat disability as a tragedy, putting the stories in the same category as books about child abuse or people dying from cancer. Books where the disabled character dies aren't terrible, but they can't be the only type out there.

Phil Neville's Daughter, Who Has Cerebral Palsy, Achieves Dream Of Becoming A Model

The Huffington Post | Rosy Cherrington | Posted 24.01.2017 | UK Style

The daughter of former Manchester United and England footballer Phil Neville has been signed by a commercial modelling agency. Izzy Neville, 13, has b...

Exercises To Try At Home For Disabled People

The Huffington Post | Natasha Hinde | Posted 30.06.2017 | UK Lifestyle

When you live with a physical disability or illness, keeping fit can be difficult. Just 17.2% of adults with long-term limiting illness, disability o...